Right we just need Sandra now to say she will come and SHERI we will be coming over to you! That' brilliant , a lovely thing to look forward to.. 

Sue xxx

Awh that’s made me smile Mandy “bottom buddies” did you get my wee private message I sent you about stingy peeing? 

I’m in Scotland just outside Glasgow think a Texas trip sounds the best lol

just at airport waiting for flight home!

hugs to you all Sands xx

Hi Suzy,

I think it would be lovely to have a get-togehter.  I will have to save my money for that unless you guys want to come to Texas.  

I'm glad you are feeling ok thus far.  The time will go by faster than you think.  My radiiology oncologist said most people don't notice any difference for 2 - 2 1/2 weeks.  The last 7 days are the hardest.  The mouth ulcers sound so painful.  It must hurt to talk as well.  The salt water rinse doesn't help?  I think I used baking soda, too.  It really helped me almost immediately and definitely within 24 hours.  

I finished treatment 10/10 and the docs say I should not still be feeling this way.  The oncologist said mine was not your typical case because it was quite large and in the wall.  They got all of the cancer cells which is wonderful; however, they were not able to wipe out the tumor completely.  It is still blocking the exit a bit.  I also have an ulcerated spot on the inside but close to the exit which is really painful.  The doc said it would take a long time to heal because of the location.  I'm waiting on biopsy results from the upper GI from last week.  The docs thought I might have an ulcer, but they didn't find anything other than acid reflux.  I get really intense tummy aches throughout the day to where I'm doubled over in pain.  I didn't have the tummy aches during treatment and they have gotten worse over the last month.  So it must be food related.  And I'm still having bathroom issues where I have to make a run for it. It's happened to me several times while out and so I'm not anxious to go anywhere.  I think once we find out what's causing the tummy aches we will find a medication that works.  I feel better if I don't eat, but I cannot loose any more weight.  I look like a chicken.  The protein drinks make me barf but they say they really work for gaining weight if I could just get them down.  Chug-a-lug  My youngest daughter is getting married so I have a little over a year to get in shape.  

I apologize if I've previously told you all of this.

So what did you decide about clothing?  It feels better to wear skirts and dresses don't you think?

You are always in my thoughts.  Sheri

Hi Girls

all systems go from the 17 April, I had my planning session today and my radiotherapy timetable. Not long now just want to get going.

Happy Easter to you all.

Lynne xx

That’s great Lynne at least now you have a start date sooner you’re started sooner you’re finished 

take care thinking of you

Sands x

Hiya Sheri,

Well I've had a bad couple of days, not all due to treatment tho. Thursday I had my 10th radiotherapy session at 9.45am, then from there went up to chemo to get my picc line flushed and bloods taken.... I came out of there at 2pm, after I walked out and told them to forget it! The 2 appointments were 5 hours apart, I asked the nurse to change the time the week before but she said it would be fine just to pop up when I'd finished in radiotherapy.  

My mouth has only just cleared up, Saturday night the diarrhoea started! Terribly stomach cramps , watched casualty  ( my fav programme  ) sitting on the toilet! My ensuite looks out at my tv with the door open lol. My bum was super sore afterwards and where I'd had surgery started bleeding. Sunday was much better, but how the hell am I going to manage thru this treatment, I'm so scared 

Clothes I've bought some loose fitting, easy to wear trousers ( too cold here for skirts) and I've got loads of Bridgette Jones knickers lol.

I'm sorry to hear your still having so much trouble, I can understand you not wanting to eat but you have to so we can find you when we all come over for our get together! I've never been to Texas it will be an adventure, you will have to help us with where to stay.

Love Sue xx

Hiya Lynne,

Good news about your treatment starting soon. That date will soon be here.

Get your stuff ready, I tend to be super organised, I bought loose trousers, cotton knickers, and loads of Simple products, plus some tena lady for when I'm smothered in cream lol. Even some aluminium free deodorant .

Sue xx

Good luck for your treatment Lynne I am 3 weeks post treatment now ,it's tough towards the end and after but there is light at the end of the tunnel, xxx

Hi Lisa

glad you found our little group - everyone is amazing on here so good to have people who understand exactly what you’re going through.

hope you get on ok with your treatment and ask anything you want hopefully one of us will have an answer.

take care 

warmest regards Sandra