Would you believe it but I actually slept all night last night, must have been through exhaustion!
I have had a PET scan and CT and MRI, not sure why I’ve got to have another CT scan tomorrow, but I just do as the Docs tell me. In fact the PET scan showed up not only where the cancer was it also showed a cyst on one of my ovaries, therefore Gynae are going to have a look and next week I’m having a ultrasound on my thyroid as there was something there they wan to look at! The nurses did say that the PET scan is the mother of all scans and they wouldn’t be doing there job properly if they didn’t investigate everything unusual. I just put my faith in them to do whatever.
are you relieved that you only have a couple of more treatments to do? I didn’t realise you had to wait 3 months to find out if it’s worked, more waiting!
I suppose as everyone keeps telling me saying little steps, one day at a time. Not always easy though.
Hiya Sheri, Lovely to hear from you. In answer to your question o don't know if mine is HPV related, all the stuff I've read suggests most anal cancers are, I did ask my surgeon initially where it would have come from his answer was " it's just one of those things". I have looked at CBD oil, I think my daughter would like me to get it. I'm on day 9 today of radiotherapy, no real pain yet,, I'm just aware something is going on slightly. I still got anti sickness tablets, tried to leave them off yesterday but felt nauseated all day, ended up taking one at tea time. My mouth has stopped feeling furry but I'm left with ulcer type sores dotted around my tongue and gums, so painful. Have you finished all your treatment now Sheri? I also have loved having our little community , I tell my daughter about you all. Wouldn't it be nice when we're all thru this and better to have a get together somewhere? Sue xx
My pain medication has now been changed to liquid morphine, only just started it so building up my resistance to the drowsiness. So far so good and be used with the aid of laxatives.
Interesting about cannabis oil, although it’s illegal in the UK. I’ve read stories of people who have after conventional treatments have turned to it in desperation in and it has 'cured' them, trouble is we all have to be careful with fake news nowadays. CRUK certainly doesn’t advocate its use as it’s not been proven. I found that out from this site.
hope all is going well with treatment and you are right this little group has been abreast of fresh air.
Hi Lynne,
A good nights sleep will have made you feel so much better. It’s good your rolling through all the visits prior to treatment starting..once it begins you’ll be surprised how quickly it goes. I now have 2 days to go including today! I have felt a bit faint this morning but I’m sure it to do with going to toilet which I dread first thing in the morning. Pee stings and pooing is painful so I go i a bath of water which helps....very dignified! Sues suggestion about meeting up sounds lovely.... where are we all located to each other? I’m wiltshire! Sending you lots of love and thinking of you all. Mandy xxx
so sorry to hear that you have a sore mouth, is eating difficult or do you just not want to eat.
Yes it is planning tomorrow....eek!
meeting up what a great idea, I’ve only been on here a couple of weeks but all the help and support I’ve had from you all has really helped me, especially as this cancer is rare and it’s a job to find anything online.
Hi Sheri, As always you give such sound advise which is so appreciated. I’m going to investigate the meds you mention and see what is available... I love this little group of bottom buddies....it’s been such a warm comfort during my journey. May it continue! Love to all..Mandy xxx
