Eee Marlyn

we must all b the same lol. My thoughts exactly when I got my letter and my next step was google too! 

In reality that letter should contain the exact information that you have already had explained to you albeit in more clinical terms than the layman’s terms they will have used when the consultant spoke with you. 

Take the letter with you to your next appointment and ask them to explain it to you. My explanation was pretty much exactly what they had already told me..... but still felt worth while the ask :-)

now im not certain but I think HER can change.... which may be why they are repeating.... think a change happened with [@TwinTwo]‍. 

So try not to get too worried... most likely explanation is  it is what you have already been told. 

Take care lass x

Ah glad u enjoyed ( I could quite see myself doing a bibity bobity boo makeover lol ;-)

I am soooo with u on the mobility scooter front.... already told my lot that as soon as needed I’m getting one lol. A way to stop pain and or keep you out and about.... to me a no brainier :-)

you go for it girl..... let me know about your 1st adventure out :-) x

Ooh Marlyn, that’s the same diagnosis as me! What are they retesting though? I’ve heard they check to make sure it’s pure mucinous rather than mixed with DCIS...

Hello mrsfingers, they said they were retesting the HER 2 - as it can sometimes change? Apparently if it changes from neg to pos it will mean chemo...so of course I am praying for it not to change. The letter also said there wasn't DCIS....

what treatment did you end up getting? Xxx

Just read your bio....you were strongly positive? How did you get on with chemo....what meds you on ? Xxx

Hey ladies - been snowing down here in Kent. So glad I'm not working or commuting as trains will be buggered. This country makes me laugh as coming back from Canada with the amount of snow and freezing icy weather they carry on like normal. It really is cold tonight.  

Had some pretty devastating news - hubby's brother who had cancer and has been fighting it well now has brain tumour. It has spread and prognosis isn't good.  Not a great start to the year. His was really far gone and in the thyroid gland, lung and back when first diagnosed so it is what it is and from day one were told it wouldn't be cured. He was in denial and I could see that. Sigh....it is what it is.

We all have to keep fighting no matter what stage we are diagnosed at and yes cancer does suck but live, love and laugh to the highest degree every single day. Keep soldiering on ladies - you got this.

Keep warm and keep well.x

They usually grade the ER and PR result and mine were 8/8 so the most strongly positive. This is a good thing as it means it will respond to hormone therapy as a means of preventing recurrence.

mucinous carcinoma is usually Er+ Pr+ and Her2-. It’s typically slow growing and does not often spread to lymph nodes or other distant areas. However mine had gone to 2 lymph nodes hence chemo.

if it isn’t in nodes you may get away with doing an oncotype test which will typically show a low risk of recurrence and hence no chemo. Generally speaking the prognosis for mucinous carcinoma is quite good.

im on fec-t chemo and it’s gone pretty well overall. I had brain fog with the fec but not so bad physically. T has been no brain fog but various different pains. So mind or body takes a hit but all doable overall.

after chemo I’ve got 3 weeks of rads. I’m also starting 3 years of zoledronic acid infusions (prevents spread to bones) and hormone therapy for 10 years...due to the strongly hormone positive thing this is another way of preventing recurrence.

Hmm interesting they never retested mine. As I understand it mucinous is normally her2 negative but...I shall ask! Xx

Thank you Sandra, just lovely to keep in touch with you all and see how your doing! 

Its snowing here on the east coast!! X