Just had the letter that the surgeon sent doctor.....I had a mucinous carcinoma which was ER + PR+ and HER 2 neg ( but for some reason it needs retest)  now what all this actually means I have no idea but when you read it in black and white it all sounds so real and scary.......

Also just want to say what a lovely group of ladies you are....thank you all for being here....xxxx

Ooh Marlyn, that’s the same diagnosis as me! What are they retesting though? I’ve heard they check to make sure it’s pure mucinous rather than mixed with DCIS...

Hello mrsfingers, they said they were retesting the HER 2 - as it can sometimes change? Apparently if it changes from neg to pos it will mean chemo...so of course I am praying for it not to change. The letter also said there wasn't DCIS....

what treatment did you end up getting? Xxx

Just read your bio....you were strongly positive? How did you get on with chemo....what meds you on ? Xxx

Just read your bio....you were strongly positive? How did you get on with chemo....what meds you on ? Xxx

They usually grade the ER and PR result and mine were 8/8 so the most strongly positive. This is a good thing as it means it will respond to hormone therapy as a means of preventing recurrence.

mucinous carcinoma is usually Er+ Pr+ and Her2-. It’s typically slow growing and does not often spread to lymph nodes or other distant areas. However mine had gone to 2 lymph nodes hence chemo.

if it isn’t in nodes you may get away with doing an oncotype test which will typically show a low risk of recurrence and hence no chemo. Generally speaking the prognosis for mucinous carcinoma is quite good.

im on fec-t chemo and it’s gone pretty well overall. I had brain fog with the fec but not so bad physically. T has been no brain fog but various different pains. So mind or body takes a hit but all doable overall.

after chemo I’ve got 3 weeks of rads. I’m also starting 3 years of zoledronic acid infusions (prevents spread to bones) and hormone therapy for 10 years...due to the strongly hormone positive thing this is another way of preventing recurrence.