Nerve pain

Hi I have been living with nerve pain for about 6months now and was wondering will I ever get use to it ? I was diagnosed with head and neck cancer early last year , I was 14years old. Is there anyone who has had a similar experience ? I am on gabapentin and have been since it started and I do get side effects of these but unfortunately I can't come off these tablets as I am still feeling the pain. Does anyone have any tips on how I can deal with the pain and the side effects the medication has? 

  • Hi Cat2000

    I'm really happy for you that your scans are clear, it's such a relief isn't it. I go every three months but don't have scans at the moment  just a though examination of my mouth and neck all round. I had an ultra sound last month due to my terrible  pain but it was fine thank goodness.my consultant said some is referred pain and the rest is nerve damage affecting my jaws, arms, neck and shoulders. 

    I hope you can be seen by the clinic soon because they have a much better understanding of what's needed.

    keep in touch and keep well! 

    Carol 

  • Hi Cat200 

    I find that a massage now and again helps me, also a jaquizzi helps as well. Nerve pain is sore i have it in my legs and it feels likey legs are on fire constsntly. Hope you get something sorted. 

    Kieran