lonely

hi my name is sue i am 65 and have got cancer its is called a GIST but thay cant oparate on it ,i have loads of tumors on the wall of mu tummy ,i had a tumor 17 years ago and all was good untill now it has come back,i am on chemo tablets that target the tumors,but wont get rid of them,,i cant get my head round it that it has come back i am very deressed and feel i have no one to talk to in where i live ,i have a lovely hubby who is golden ,i live in solihull birmingham uk ,and would love to chat to someome i dont know anyone who has this scarcoma i hope who ever reads this please dont think i am moaning but i just feel lonely thank you if you read this xx

  • Sue, I think many of us will empathise with you, cancer does make you feel lonely.  I think we know that other people cant really understand what we are feeling, because we can hardly understand it ourselves.  Do you have any cancer groups near you?  Perhaps you could ask the local Macmillan nurses!  Sometimes a counsellor is a good place to start - I see one myself at a local cancer charity and I really look forward to my hour of dumping all my fears and worries on him!

    We are always here, Sue, please come back and talk, whenever you want.

  • Hi I am amy I had cancer 8 years ago which they also managed to treat , mine has just come back and there is nothing they can do this time. I'm 34 and have the same problem getting my head it. ( diagnosed in February this year 1-2 years . I have a  lovely family too but to feel alone too. They want to be supportive but I don't want to bother them. They are dealing with a lot them selves. I've just started therapy through the hospice and although it is hard and making things very real I know it will help. Have you looked into support groups at your local hospice , people might not have the same cancer but do understand more and there may be people there in similar situations. Don't know if this is helpful or not , first time I've put anything on here  amy xxx 

     

     

     

     

  • thank you amy for replying to me ,sorry to hear about you ,i is so hard to get your head round it when it comes bk i had done so well for 17 years,of being clear ,i am going to try and find a surport group i have a nurse ar the hospital she is so lovely ,but its just the lonely feeling ,i know its hard but keep your chin up ,thats what i try to do ,i get bad days and a few good,i live in birmingham dont know where you are but thank you very for chatting to me sue50 x

     

  • thank you so much for your reply it meand alot to me ,and yes i have a lovely macmillan nurse ,i am waiting for councling ,i just cant get my head round it that thay cant oparate on me i will always have it in me ,i have to take chemo tablets every day ,thank you very much for chatting to me 

  • I was told that my secondary cancer could be operated on at my local hospital but when I got to the specialist hospital in London they said it couldnt be operated on.  They have never given me a satisfactory answer either.  I wont have radio or chemotherapy so they just give me hormone tablets and tell me I don't have a great deal of time.  Am contemplating asking to change to a different hospital.  

    I have realised that this disease changes our lives forever and we have to stick together because few other people understand.

    Keep strong, Sue. x

  • Hi sue x x 

     

    anything to do with with disease is completely and utterly draining x xi wish we could sit and talk about our experiences x xi feel very lost with it x I'm non. Currable but manageable ..... That's a first in my life because I've always been considered as non manageable .... Ha ha x x there is no easy way to deal with this but being positive helps .... It puts less stress on your body and mind ..... What u can't control ......don't worry about ???? Easy to say say  I know x xx x I was first diagnosed 10'years ago and all I know is this illness must not be what your life is evolved around x x be strong x have a good cry then know you can get over this x x x x your not alone x x x 

  • Ah Sarah, you are right and we mustnt let it control our lives, but sometimes when you are feeling low it pops out and frightens you.  I had one last thing to do on my bucket list.  Ever since I was a little girl I have wanted to live very close to the sea, so I have put my house up for sale and am going!  Not sure I have enough time left but its going to be fun trying!

  • hi have been told that thay cant op on me as i have to many tumors and could not get to them all,,,i am on chemo tablets that targret the cancer cells but i will always have ,,i am under a great cancer hospital in birmingham thay are really good,,,but like you said hun it has changed me and my whole life i am not the same person,,i just take each day as it comes but seem to be having more bad than good ,,thank you for chatting to me you keep strong hun and take care xx

     

  • Sue, I, too, have been having more bad than good days lately, pains and bleeding, depression and worry.  But it will pass.  I wish sometimes that we all lived close so we could go for a coffee and a good old moan about how we were feeling, I am sure it would help.  

    Well, I hope tomorrow (actuallyit's today) will be a better day.  I am having lunch out and then Friday I am buying a new car.  Foolish or what!  :-))))  Stay strong!I

  • hi pauline,thank you for your reply ,and yes it would be nice to live near and have a chat and coffee cuz i think would help and be nice ,and as you say we could all have a moan together lol ,well hope you have a lovely day out for lunch,i am going out for lunch with my son and hubby,,good for you going to get a new car well done you will enjoy it i am pleased for you ,,can i ask where you live ,,stay strong hun x