lonely

hi my name is sue i am 65 and have got cancer its is called a GIST but thay cant oparate on it ,i have loads of tumors on the wall of mu tummy ,i had a tumor 17 years ago and all was good untill now it has come back,i am on chemo tablets that target the tumors,but wont get rid of them,,i cant get my head round it that it has come back i am very deressed and feel i have no one to talk to in where i live ,i have a lovely hubby who is golden ,i live in solihull birmingham uk ,and would love to chat to someome i dont know anyone who has this scarcoma i hope who ever reads this please dont think i am moaning but i just feel lonely thank you if you read this xx

Parents
  • Sue, I think many of us will empathise with you, cancer does make you feel lonely.  I think we know that other people cant really understand what we are feeling, because we can hardly understand it ourselves.  Do you have any cancer groups near you?  Perhaps you could ask the local Macmillan nurses!  Sometimes a counsellor is a good place to start - I see one myself at a local cancer charity and I really look forward to my hour of dumping all my fears and worries on him!

    We are always here, Sue, please come back and talk, whenever you want.

  • thank you so much for your reply it meand alot to me ,and yes i have a lovely macmillan nurse ,i am waiting for councling ,i just cant get my head round it that thay cant oparate on me i will always have it in me ,i have to take chemo tablets every day ,thank you very much for chatting to me 

  • I was told that my secondary cancer could be operated on at my local hospital but when I got to the specialist hospital in London they said it couldnt be operated on.  They have never given me a satisfactory answer either.  I wont have radio or chemotherapy so they just give me hormone tablets and tell me I don't have a great deal of time.  Am contemplating asking to change to a different hospital.  

    I have realised that this disease changes our lives forever and we have to stick together because few other people understand.

    Keep strong, Sue. x

  • Hi sue x x 

     

    anything to do with with disease is completely and utterly draining x xi wish we could sit and talk about our experiences x xi feel very lost with it x I'm non. Currable but manageable ..... That's a first in my life because I've always been considered as non manageable .... Ha ha x x there is no easy way to deal with this but being positive helps .... It puts less stress on your body and mind ..... What u can't control ......don't worry about ???? Easy to say say  I know x xx x I was first diagnosed 10'years ago and all I know is this illness must not be what your life is evolved around x x be strong x have a good cry then know you can get over this x x x x your not alone x x x 

  • Ah Sarah, you are right and we mustnt let it control our lives, but sometimes when you are feeling low it pops out and frightens you.  I had one last thing to do on my bucket list.  Ever since I was a little girl I have wanted to live very close to the sea, so I have put my house up for sale and am going!  Not sure I have enough time left but its going to be fun trying!

Reply
  • Ah Sarah, you are right and we mustnt let it control our lives, but sometimes when you are feeling low it pops out and frightens you.  I had one last thing to do on my bucket list.  Ever since I was a little girl I have wanted to live very close to the sea, so I have put my house up for sale and am going!  Not sure I have enough time left but its going to be fun trying!

Children
No Data