Diagnosed last year with non hogkins lymphoma

Hi

Last year i was diagnosed with a non hogkins lymphoma (Nlphl). I received rituximabe each week for 4 weeks which killed the cancer cells and now I'm on maintenance treatment every 2 months for 2 year. The problem now is the Anxiety and depression are crippling my life with the following problem. The not knowing where its going to grow next and when.  Its driving me crazy :( 

I have explained how I'm feeling to my GP but all they seem to want to give me is antidepressants.

Is anyone else struggling or has struggled with this in the past? if so what did you find help full.

Desperately needing advice please

Parents
  • I had Non Hodgkin's Lymphoma (mantle cell) twice, the first time 15 years ago. It was very advanced & I was expected to die.  I had radiotherapy on tumours round my head but only palliative chemotherapy, . The treatment worked like magic & somehow all the tumours just disappeared. No one said I was cured.  I was left wondering what would happen next. Nothing happened!

    Fourteen years later I found a small tumour in the top of my leg.  It was the same NHL & was wiped out by radiotherapy. I do wonder whether it will come back again but I have regular check-ups & know what to look for so I don't worry about it. I know it can be cured & quite easily.

    I was very low at times when I had NHL the first time but wasn't treated for depression.  I saw a counsellor. He told me about survivors who'd had cancers several times which encouraged me & he let me talk about my concerns.I found it very useful. I was referred to the counsellor by the hospital, not a GP. I had a Macmillan nurse who was very helpful in many ways. I now think it's helpful to talk about it but it's wise to see knowledgeable people, experienced & professional. 

    I hope that's of interest to you

Reply
  • I had Non Hodgkin's Lymphoma (mantle cell) twice, the first time 15 years ago. It was very advanced & I was expected to die.  I had radiotherapy on tumours round my head but only palliative chemotherapy, . The treatment worked like magic & somehow all the tumours just disappeared. No one said I was cured.  I was left wondering what would happen next. Nothing happened!

    Fourteen years later I found a small tumour in the top of my leg.  It was the same NHL & was wiped out by radiotherapy. I do wonder whether it will come back again but I have regular check-ups & know what to look for so I don't worry about it. I know it can be cured & quite easily.

    I was very low at times when I had NHL the first time but wasn't treated for depression.  I saw a counsellor. He told me about survivors who'd had cancers several times which encouraged me & he let me talk about my concerns.I found it very useful. I was referred to the counsellor by the hospital, not a GP. I had a Macmillan nurse who was very helpful in many ways. I now think it's helpful to talk about it but it's wise to see knowledgeable people, experienced & professional. 

    I hope that's of interest to you

Children
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