Had really bad news today. I have extensive spread in nodes and the cancer has also metastasized to my brain. Gosh this is scary - hubby and I are numb! X
I too had a similar side effect to that drug a couple of years ago when I did the splits and broke my bubic bone. It made me feel like I was on a differnt planet and only took them for a few days, eventually reverting to paracetamol.
Wishing all the very very best for your meeting, sending love and hugs, Brian
Hi Max, you are such a night owl!! I will be thinking of you today (my time) and tomorrow your time. You will be in my prayers for your specialist appt. you have so many virtual friends rooting for you, you special lady. Bigs hugs, love Kathy xx
Hi Kathy .... Good to hear from you! I have been a rubbish sleeper a few years now and that's after taking a sleeping tablet. Nice to have time to browse the days events though and do the crossword! The MDT meeting about me is Wednesday so hopefully I will hear then or Thursday. Having read about cyberknife a lot now, it really seems quite common and easy to go through so I am not so terrified as I was - just another little hurdle to keep me comfy as long as possible! How are you my lovely? X
Hi Max, I am doing pretty well I think. Garden, pets, assisting with wedding arrangements keeping me busy. Mum (88) and 2 of my 5 siblings arrive March 8th for 19 days (for the wedding). Getting the 2 spare rooms ready is also a challenge. I have so much stuff to box up and place in shed. As hubby was ex miner and worked away we basically have 1 room devoted to protective equipment, flash jackets, men's work shirts etc a lot unused and still unwrapped. Will store till son has time and inclination to go through, take what he wants then I can pass the rest of the gear on. I will keep the riggers gloves and jackets, will keep me warm while sitting outside in winter. I am getting very excited at seeing my family again, travelling from Scotland. We will talk till the cows come home, laugh and probably shed a few tears and no doubt drink gallons of tea. Still doing admin re superannuation accts but will get there . eventually. Everything is doable. I am most fortunate in my family and friends and count my blessings. Hope you are keeping warm over there, the weather looks shocking. Xxx
Thanks for note on my thread and just wanting to let you know that am keeping you in my thoughts and hope the outcome of MDT chat/info will be what you need to hear to keep you comfy and within the arms of your loved ones.. Take care brave lady. Huge Hugs Jules x
Hi Max, you have been on my mind and certainly in my prayers every day. You are one brave lady and such a support and inspiration to everyone on this forum. I look forward to hearing the results of the MDT meeting on a plan for your treatment. I'm not familiar with a cyberknife procedure so can you enlighten me? This entire cancer journey for me is mind-blowing and I seem to learn something new about it every day.
Be kind to yourself and just know that we're all out here rooting for you.
Hi Max .hope you are well, you are one fantatic lady and we all love you to bits ,I am not to well but at 82 my life is comming to a end ,take care lots of love george xx
Sorry to 'gatecrash' your thread Max and am keeping you in my thoughts. Just wanted to respond to our mutual forum buddy, George. Sad to read that you are not doing so good my friend and send you comforting hugs (sorry too that they can only be virtual) and hope that your pain can be brought under control.Your loving family will be a huge support just now and your consideration for others during your own journey has been amazing, thank you. Warmest regards Jules xx
Hi Dear George - I too am sorry to hear you are not feeling so good and am sending you my love. How are your family and have you had help from the GP with how you are feeling?
Lorraine and Jules .... thank you so much for your ongoing support. The meeting went well but I am still waiting re funding issues so no real news. I am feeling okay physically and the discomfort has been helped a lot by steroids - just be good to know what is going on but the waiting game continues lol! Thinking of you all the time Jules and the emotions that you must be going through. Hope you are well Lorraine. Be in touch soon x
