Had really bad news today. I have extensive spread in nodes and the cancer has also metastasized to my brain. Gosh this is scary - hubby and I are numb! X
Hi max
Been thinking about you and your big heart, despite your own mo u mental struggle, you still think of others and have a gentle and reassuring word for us all. I just wondered how you were...
Take care
Gaynor xx
Hello my dear forum buddies - I cant thank you enough for your support and am sorry I have been absent for a while - was a bit lost for a few weeks but now accepting the new situation and coming to terms with it.
I have had the go-ahead for brain cyberknife and have had preparations - the treatment will be on Wednesday this week. I havent felt too well but have had a much better day today thank goodness. Apart from a harsher chemo regime starting on the 13th, I really dont know what else may be done over the next few weeks to try and stabilise me a little - but I will let you know when I can. Our lovely daughter and her boyfriend have decided to marry within the next 3months - so that is wonderful news!
Sending so much love to you all and know that I am so lucky to have you all routing for me. Take care x
I am sure you miss him terribly and equally as sure that he is still with you. You look as though you were having a fab night out on your picture! Night sueps, sleep well x
Good to read your update and for such a brave lady you deserve the best treatment out there to give you the best quality of life possible. No apologies needed as regard absence (I really don't know how you keep getting 'your head round things') besides you do, and have still been, supporting others on the forum (including me) - thank you does not seem enough in the scheme of things.
Sending love and big hugs for today, tomorrow and all the days ahead. What a wonderful day to look forward to - love a good wedding - congrats to the happy couple. Keeping you in my thoughts. Jules xxxx
Hi Max, just read your post about you getting started on your procedure and treatment. I'll be thinking of you in the coming weeks and wishing you the best care possible. Post when you can, and when you can't, we'll still be out here pulling for you. Just remember, we will be joining hands tomorrow, (Feb. 4/15 World Cancer Day) and interestingly enough, that is the day you have treatment. We really are out here holding both your hands in our circle of virtual friends. You're certainly not alone.
All the best my friend and lots of hugs coming your way.
Hi max
Such wonderful news about your daughter, something for you all to share and look forward to together. Sorry to hear that you have been so poorly, what a huge struggle for you max, both physically and emotionally and I am so struck by your quiet dignity and courage in the gave if that. I hope that things go well for you tomorrow and beyond. Let us know, when you can now you are. I'll be thinking of you max. I know I'm newbie on here, but you were one of the first to reach out to me and your compassion ad understanding I find truly remarkable. Sending you a hug and warmest of wishes
G xxxxx
Holding you and your family in my thoughts today as you bravely undergo Cyberknife treatment.Gentle hugs and virtual hands being held lovely lady. Jules xx
Hiya ..... and as always, thank you so much! Home this evening - cyberknife went fine and so far no problems. Apparently, the radiotherapy carries on working for up to 2wks so I may get some side effects but hopefully I won't. Saw the oncologist today and not too good news. I should have a 2wks recovery period from chemo after cyberknife but my disease is so obviously advancing quickly that he wants me in next Friday for a new regime. My liver is large and uncomfortable as are the nodes on my clavicle and in my tummy. The oncologist says he has no idea if I will respond to the chemotherapy but we have just got to wait and see.
I hope everyone is okay and although I know you will say not to worry, I do apologise for not posting more individually just now. Hopefully I will get a little more energy soon. Take care my friends and please know how much you are appreciated x
Evening Max, Well done getting that CK done.and fast.. I reckon that is good to crack on with chemo as soon as poss. With the benefit of the the CK directly slowing down the bit in the brain, then starting that chemo asap will give the other cancer bits a real wallop.
No time for messing about . Wedding to go to. Dresses to buy. Do we assume this chemo will mess up the hair...? I know some don't .Although I understand the cold cap is pretty damn difficult. If so what plan are you making for hats, wiggie, headscarves etc to go with your special outfit? You do realise you will risk outshining the bride? But I am sure she won't mind.
I hope you're not experiencing too much pain at preset are you doing the Fentanyl patches +? The one time in your life when you are allowed to cheat the rules of possible addiction. Back in the day they used to have a Bromptom Cocktail which used to include Morphine/ Medical Heroin/ Cocaine and a spirit such as Gin. Most effective...
best luv sueps
did you get a mask to keep?
I suppose this is the type of message that should be private pm....
Glad to see your post and to hear that you are back within the fold of the family following CK. Bringing the new regime of chemo forward is obviously the best option for you and the sooner its started hopefully the sooner it can do something to help and you will have a little time to get used to it before the wedding. Sending soothing hugs and lots of love your way. Thinking of you. Jules xx
Glad to see your post and to hear that you are back within the fold of the family following CK. Bringing the new regime of chemo forward is obviously the best option for you and the sooner its started hopefully the sooner it can do something to help and you will have a little time to get used to it before the wedding. Sending soothing hugs and lots of love your way. Thinking of you. Jules xx
