Had really bad news today. I have extensive spread in nodes and the cancer has also metastasized to my brain. Gosh this is scary - hubby and I are numb! X
Hi max
Such wonderful news about your daughter, something for you all to share and look forward to together. Sorry to hear that you have been so poorly, what a huge struggle for you max, both physically and emotionally and I am so struck by your quiet dignity and courage in the gave if that. I hope that things go well for you tomorrow and beyond. Let us know, when you can now you are. I'll be thinking of you max. I know I'm newbie on here, but you were one of the first to reach out to me and your compassion ad understanding I find truly remarkable. Sending you a hug and warmest of wishes
G xxxxx
Holding you and your family in my thoughts today as you bravely undergo Cyberknife treatment.Gentle hugs and virtual hands being held lovely lady. Jules xx
Hiya ..... and as always, thank you so much! Home this evening - cyberknife went fine and so far no problems. Apparently, the radiotherapy carries on working for up to 2wks so I may get some side effects but hopefully I won't. Saw the oncologist today and not too good news. I should have a 2wks recovery period from chemo after cyberknife but my disease is so obviously advancing quickly that he wants me in next Friday for a new regime. My liver is large and uncomfortable as are the nodes on my clavicle and in my tummy. The oncologist says he has no idea if I will respond to the chemotherapy but we have just got to wait and see.
I hope everyone is okay and although I know you will say not to worry, I do apologise for not posting more individually just now. Hopefully I will get a little more energy soon. Take care my friends and please know how much you are appreciated x
Evening Max, Well done getting that CK done.and fast.. I reckon that is good to crack on with chemo as soon as poss. With the benefit of the the CK directly slowing down the bit in the brain, then starting that chemo asap will give the other cancer bits a real wallop.
No time for messing about . Wedding to go to. Dresses to buy. Do we assume this chemo will mess up the hair...? I know some don't .Although I understand the cold cap is pretty damn difficult. If so what plan are you making for hats, wiggie, headscarves etc to go with your special outfit? You do realise you will risk outshining the bride? But I am sure she won't mind.
I hope you're not experiencing too much pain at preset are you doing the Fentanyl patches +? The one time in your life when you are allowed to cheat the rules of possible addiction. Back in the day they used to have a Bromptom Cocktail which used to include Morphine/ Medical Heroin/ Cocaine and a spirit such as Gin. Most effective...
best luv sueps
did you get a mask to keep?
I suppose this is the type of message that should be private pm....
Glad to see your post and to hear that you are back within the fold of the family following CK. Bringing the new regime of chemo forward is obviously the best option for you and the sooner its started hopefully the sooner it can do something to help and you will have a little time to get used to it before the wedding. Sending soothing hugs and lots of love your way. Thinking of you. Jules xx
I was wondering how you had got on with the CK :-)
That sounds far more positive than you had dared hope for a few weeks ago. Good luck with the chemo - and the wedding shopping - not sure which of the two I would prefer to endure!
Hi Max, I was glad to see your post as I was wondering about you. We have also wrapped you in our virtual hand holding circle, so you are well surrounded with our love and support. Just know that you are in our hearts always and we are wishing you all the best as you go through these procedures. Whenever you feel up to it, come on here and give us an update on your progress. In the meantime, I send you massive hugs. I don't know if you're a believer or not, but I will also offer prayers for your well-being and a good outcome.
