Hello my dear forum buddies - I cant thank you enough for your support and am sorry I have been absent for a while - was a bit lost for a few weeks but now accepting the new situation and coming to terms with it.

I have had the go-ahead for brain cyberknife and have had preparations - the treatment will be on Wednesday this week.  I havent felt too well but have had a much better day today thank goodness. Apart from a harsher chemo regime starting on the 13th, I really dont know what else may be done over the next few weeks to try and stabilise me a little - but I will let you know when I can.  Our lovely daughter and her boyfriend have decided to marry within the next 3months - so that is wonderful news!

Sending so much love to you all and know that I am so lucky to have you all routing for me.  Take care x

Hi Max,

Not surprised you needed a bit of time out there..although we missed you! 

Delighted they have agreed to a bit of CK and with another bash of chemo. Should give the Big C a "Back off for a bit, I've got a wedding to get to!" 

They wouldn't do CK for my boy cos they didn't think he would have long enough to get the benefit of it.. I am really pleased that they have reckoned it's not your time yet! 

best luv

sueps

Thank you Sueps.  How are you managing sweetheart? X

Bumping along....it took me a long time to find my soul mate and it is VERY hard not to have him around. But I really feel in many ways that he is still with me... the "extra" time we had to make those special memories are priceless. I look forward to seeing those wedding pics of you in your finery!

It's past your bedtime now...night night x

little glitch on this website - double posting if you are too impatient...I was

I am sure you miss him terribly and equally as sure that he is still with you.  You look as though you were having a fab night out on your picture!  Night sueps, sleep well x

I am sure you miss him terribly and equally as sure that he is still with you.  You look as though you were having a fab night out on your picture!  Night sueps, sleep well x

Max

Holding you and your family in my thoughts today as  you bravely undergo Cyberknife treatment.Gentle hugs and virtual hands being held lovely lady.  Jules xx

Been thinking of you also max and hoping that things have gone to plan. Hugs to u all xxx

Hiya ..... and as always, thank you so much!  Home this evening - cyberknife went fine and so far no problems. Apparently, the radiotherapy carries on working for up to 2wks so I may get some side effects but hopefully I won't.  Saw the oncologist today and not too good news. I should have a 2wks recovery period from chemo after cyberknife but my disease is so obviously advancing quickly that he wants me in next Friday for a new regime.  My liver is large and uncomfortable as are the nodes on my clavicle and in my tummy. The oncologist says he has no idea if I will respond to the chemotherapy but we have just got to wait and see. 

I hope everyone is okay and although I know you will say not to worry, I do apologise for not posting more individually just now. Hopefully I will get a little more energy soon. Take care my friends and please know how much you are appreciated x

Evening Max,  Well done getting that CK done.and fast.. I reckon that is good to crack on with chemo as soon as poss. With the benefit of the the CK directly slowing down the bit in the brain, then starting that chemo asap will give the other cancer bits a real wallop.

No time for messing about . Wedding to go to.  Dresses to buy. Do we assume this chemo will mess up the hair...? I know some don't .Although I understand the cold cap is pretty damn difficult.  If so what plan are you making for hats, wiggie, headscarves etc to go with your special outfit? You do realise you will risk outshining the bride? But I am sure she won't mind.

I hope you're not experiencing too much pain at preset are you doing the Fentanyl patches +? The one time in your life when you are allowed to cheat the rules of possible addiction. Back in the day they used to have a Bromptom Cocktail which used to include Morphine/ Medical Heroin/ Cocaine and a spirit such as Gin. Most effective...

best luv sueps

did you get a mask to keep?

I suppose this is the type of message that should be private pm....

Hi Max

Glad to see your post and to hear that you are back within the fold of the family following CK. Bringing the new regime of chemo forward  is obviously the  best option for  you and the sooner its started hopefully the sooner it can do something to help and you will have a little time to get used to it before the wedding.  Sending soothing hugs and lots of love your way. Thinking of you. Jules xx

Hello Max,

I just wanted to send you a massive, enormous, gigantic moderator hug.

We are all thinking of you at the moment and hope the chemo will go well next Friday.

Lucie

Hi Max,

I was wondering how you had got on with the CK :-)

That sounds far more positive than you had dared hope for a few weeks ago. Good luck with the chemo - and the wedding shopping - not sure which of the two I would prefer to endure!

Cheers
Dave

;-)

Hi Max, I was glad to see your post as I was wondering about you. We have also wrapped you in our virtual hand holding circle, so you are well surrounded with our love and support. Just know that you are in our hearts always and we are wishing you all the best as you go through these procedures. Whenever you feel up to it, come on here and give us an update on your progress. In the meantime, I send you massive hugs. I don't know if you're a believer or not, but I will also offer prayers for your well-being and a good outcome.

Lorraine 

Hello max

thats good that the procedure went well for you but not so good that you are uncomfortable and in pain.  I hope it can be managed well for u.  You must be absolutely done in with it all! It's positive tho I think that they are treating you so assertively they must be confident that it will improve thingsxxxx hope you are getting lots of hugs and doggy cuddles xxxxx