Hi ladies

I just want to wish you all a Happy and as Healthy a New Year as possible - bring on 2012.

Its good to drop in and see what others are up to - scan and more treatment (fingers crossed!) in January for me.

Best wishes

Sue x

Hello everybody, may I join you and introduce myself?  I opened a new thread on this subject the other day in the "introduce yourself" section, but I really wanted to get onto this site.  I  am 67 yo and live in Essex, UK and have recently been diagnosed as having tumours on both ovaries, plus some areas on the omentum and outer bowel.  However, my hospital MDT  wants to ascertain whether my ovaries are the primary site or secondary to breast ca I had 15 years ago before planning my treatment, so I've just had a biopsy and await results on 22nd Feb.  I found your site about a month ago and was both heartened by all your posts, and at the same time scared - not of the treatment particularly but the outcome.  Some days I feel that I won't get through this, other days I think "No, you won't get me, you (expletive deleted!)"

The last post on your site was 28th Dec, I have been checking, so I hope you are all getting along OK

Best wishes, Hazel. X

Hi Dot ,

That is funny about your belly button. I couldn't get into mine after the hysterectomy so I couldn't clean it. Anyway since my tummy started to swell it opened like a flower ha ha so I now have a clean one.

Hazel so now you know what instructions to tell the surgeon..

Dot that sounds painful and I hope you can get it sorted out soon. Always something new to worry about.

Love Eileen xxxx

Hi Hazel,

Re chemo, I guess Mary was different to everyone else. She had her surgery first followed by weekly Taxol/Carbo with no weeks off, it was a regimen that was trialled in Japan with good results, and she did respond well to the treatment although it left her with some neuropathy in her toes which has still not gone. That is why her onc has opted not to give her any more Taxol  http://cancerchat.cancerresearchuk.org/message/31764#31764

Mary agrees with you about gardening being very therapeutic, she loves her garden and it does take her mind off of other things. I personally love to listen to music and that does the the same for me.

Sue, good to hear that you are starting to feel a bit better. Mary has noticed a big difference by taking the anti-sickness tablets as prescribed whether or not she feels nauseous. Like Hazel, she was wondering if she was ever going to feel better. Mary has had five good days in a row now and had a lovely mother's day at home with our family, our daughter cooked the roast dinner (with a little guidance from Dad).

Eileen, Sounds like you're starting to feel a bit better too. Just out of interest, do you take your anti-sickness tablets whether or not you feel nauseous? Mary's nurse recommended some different tabs (instead of Domperidone) which also help to keep things moving in the bowel. They are called Metoclopramide, and she is convinced they have made a big difference.

Dot, what are you like?! Just when you were doing so well you start having another problem. Hope that the antibiotics sort it out for you. Mary was very lucky with her vertical op scar, she thought it would look horrendous and was really worried about that. But it healed really nicely and is hardly noticeable now.

Sharon, I hope you had a good day today too and are feeling ok, I know you must be anxious having such a long wait for your scan results.

Best wishes to everyone,

John

x

...was it something I said? Hope everyone is ok.

Oh, poor John - don't be daft, of course not.  Don't know why but we all seem to be resting at once, for some reason.

Hope Mary is OK and pre-assessment goes well today.  Wish her good luck for tomorrow, sounds like a busy one!

Love to both,

Hazel xxx

Hi,

I am feeling nausea's again and am taking  6 anti-sickness tablets a day. I can't say I wait to take them but as soon as I lift my head off the pillow in morning I need one. I am eating even though I feel sick. I keep trying to watch tv in the evening but can't settle. I am in touch with a girl who is on same chemo ( she has finished her 6 cycles ) she has been desperately sick and no signs of it clearing. I still have 3 to go and god knows how I will get through it.

Hope everyone is doing good.

Eileen xxxxx

Hi everyone, I know I am not writing much but I do try to read the posts, I sometimes just don't know what to say.

Eileen I feel so much for you having this nausea it is an awful thing to have to tolerate, I just hope it will settle soon and you can have some peace.

I wanted to say that I feel very sad that Carole (Dizzie) passed away, she fought hard and long, I have been following her blog along with Tony and our dear Rose, my thoughts go out to her lovely family, Carole helped a lot of people on this site and was much loved. This made me think of Jayne and her lovely family too. I have to say I avoided checking her blog and the main site this week as I didn't want to read what I knew I would find.

Thinking of you all

Dot xxxxxxxxxxx

Just kidding Hazel although my post was quite long looking back, thought it may have made everyone sleepy. Pre-assessment done and ok, we have an 8.30 start tomorrow, onc, port and chemo, all day job! Mary still feeling good.

Best wishes,

John

Dear Dot,

I didn't know any of the people you mention, though I have read bits of their stories on here and elsewhere, and I would just like to send my condolences and sympathy to all their families and friends. 

God bless and love to them all, and to you, Dot.

Hazel xxx

Hi Eileen,

Ask your doctor if you can try some different anti-sickness tabs, worked for Mary.

John

x

Hi John,

These are the new ones. It is the cistplaten that makes you sicker than the other chemo's..

xxxx

Hi John,

These are the new ones. It is the cistplaten that makes you sicker than the other chemo's..

xxxx

Eileen, it's so awful feeling sick like that.  I found that pure root ginger capsules used to make a "tea" helped me last week (the pack says you can use them like that). Not the best of drinks, but manageable with a bit of sugar, and worth it if it works, and you only need to have one cup with luck. I got the capsules in Holland and Barrett.

Hope they help!

Lots of love,

Hazel xxxx

Hi Eileen,

It may be worth asking again to try something else as there are various anti-sickness tablets available and different people respond better to certain types (according to Mary's nurse), just as everyone may respond differently to types of chemo or anything else. Mary notices that when she delays taking her Metoclopramide tablet, she starts to feel the nausea coming back, but taking another tablet straight away seems to sort her out. I can't offer any more advice than that, it can't make you feel any worse experimenting.

Hope you feel better soon,

John

x

Hello, Eileen

How are you?  Hope you are feeling a bit better. xxx

Well, the deed is done - I have chopped off the hair as it was beginning to come out in handfuls (already, only 2 weeks!).

The wigs and scarves are now in use, hence my new avatar.

Hope everyone is bearing up,  lots of love to all,

Hazel xxx

Hi Hazel,

Love the new avatar, as I said before the new wig makes you look younger. Very brave attacking the hair, I know it's a difficult thing to do.

Mary had her port fitted and chemo yesterday, we were home by 4.30 but she'd had so many meds she was away with the fairies! I had to help her to the loo in the night, when I brought her back she was trying to get into my side of the bed! Totally zapped!! She is fine again today apart from feeling like she's taken a bullet in her chest, been pottering in the garden again. I have booked a hotel saturday night so we can spend the weekend in Bournemouth, providing she is still feeling ok, it will be great to get away.

Hope everyone else feels better soon, I do get concerned when it goes quiet but I understand how you must feel.

Best wishes,

John

x

Thanks, John.

Poor Mary - why was she so zapped, did she have to have a general anaesthetic for insertion of the port?  Hope the pain has abated now.

I did my gardening again yesterday as well, great minds think alike!

Well, looks like you've picked the right weekend for a trip to Bournemouth, John, weather looks set fair, so you have a lovely time both of you - I am quite jealous!

Love to both,

Hazel xxx

Hi Hazel,

No it was a local anaesthetic but she had quite a lot I think, and it was the pre-meds for the op, then the pre-meds for the chemo, then the chemo itself.

She's fine now, texted me a little while ago saying she's done a bit more gardening and now she's sitting in the pub garden having a drink with our son! Lovely life eh? LOL

Best wishes,

John

x

Well done Mary, good for her! 

Enjoy your weekend!

Love, Hazel xxx

Hello, John,

Hope you enjoyed Bournemouth.

Is Mary due another chemo session today?  If so, wish her good luck from me xxx

To anybody else having treatment this week, as I am, or awaiting results etc, hope all goes well.

Everyone else, hope you are feeling as well as poss and able to enjoy the lovely weather.

Love to all, Hazel xxx

Dear Hazel,

Good luck with your results, when do you get them ? I have my chemo again tomor after a weeks break. It is my 4th so not many left now. Then the dreaded scan and results.

Hope Jaxkie you are doing ok after your chemo ( you are lying low so prob not too good )

Weather has been great but it was only yesterday that I actually went out and that was to my daughters for half an hour.

Love to everyone else. xxxxxx

Hello, Eileen,

I guessed you were still not too good ( maybe same as Jackie, as you say), but glad you were able to have a little trip yesterday at least.

I am having 2nd chemo session tomorrow, blood result permitting.  I'll think of you having yours while I'm having mine!  Good luck!

Love Hazel xxx