Hi Redlizzie

I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

I would be interested in hearing about plans for followup when you get that far.

Best of luck

Jackie

Jackie,

I am worried about you as I have not heard anything from you and the other Ladies..xxxx

Hi Eileen,

Sorry have not been keeping intouch,I have been through a rough patch.The last treatment left me with a heart problem and I am seeing the heart specialist next month and my last scan shows it has spread to my lungs and possibly my ovary so I have been wiped out  but i am now on a new chemo,tablet again thankfully and apart from breathless and cough i feel much better,so onwards and upwards.Nearly 4 years on so cant complain.

Hope your house is nice and warm,you will need it soon when the snow comes.Went to Carmarthen the other day,it is lovely with all the new shops and easy to park..Hope you can get about now.

Plaxie and Dot,how are you both?

Love to all you other ladies here.Roll on next year,only good things ordered for 2011.

Rose xxx

Rose,

I am so happy to hear from you. xxxxxx

It has been such a long time since I heard from any of you.I am so sorry about all you have been through. You are still happy as ever though as I can tell in your message.. Good for you ..xxx

I am 4 days now since my chemo and not too bad but the next few days will tell. I am hoping I can stay out of Hospital this time.Anyway keep in touch please and I hope Dot and Jackie are ok and anyone else I have left out.

Love you all so much... Eileen xxxxx

Hi Rose,

so sorry to hear you are going through a rough patch, you are always so supportive on here and I have never once heard you complain, I will keep you in my thoughts and prayers. I hope the new treatment will have you feeling better soon!!

I haven't been too good myself, I had chemo yesterday, I am on weekly chemo and these last few weeks have been hard going, but the good thing is next Friday is my last one, then two weeks after that the dreaded ctscan lol. The Docs wanted to drop one of my chemo's as I am having flashing lights and general lethargy, but I didn't want to mess around when this is almost done

A friend of mine is very poorly, we met in hospital and stayed in touch, she had the same as me and it knocked the wind out of my sails hearing how rapidly she has gone down hill.

Dot xxxx

Hi Eileen,

sorry I haven't been on here, as you can see by my reply to Rose that I haven't exactly felt up to messing around on the computer, but I am hanging in there. It will be all over soon .

Fingers crossed you will stay well through this chemo and that any side effects if any, will be mild.

I hope Jackie is doing good, so unusual for her not to post.

Love Dot xxxxxxxxx

Hi Eileen,

sorry I haven't been on here, as you can see by my reply to Rose that I haven't exactly felt up to messing around on the computer, but I am hanging in there. It will be all over soon .

Fingers crossed you will stay well through this chemo and that any side effects if any, will be mild.

I hope Jackie is doing good, so unusual for her not to post.

Love Dot xxxxxxxxx

Dear Dot,

I am so glad to hear from you  xxx

You have been missed so much. I am sorry to hear you are going through a bad time yet again.I hope you can continue to  fight to the end of the chemo and will be ok for Christmas.I wish Jackie would get in touch and hope she is well, but I fear she must be poorly as she is always on the site even when she has been really ill. So Jackie if you read this message we are all thinking about you and if your to ill to reply don't worry just know that your friends are all thinking about you..

Keep in touch if you can Dot and good luck to everyone else...

Love as Always Eileen. xxxx

Hi Ladies

I'm horrible fine, feel guilty that you were worried but had router probelms!

Sorry to hear your all still having a hard time though Dot is nearly there. Eileen no more hospital i just won't allow it!

I've finished treatment without any of the problems I had last time (yea!), started decreasing my steroids so energy not brill but its the only way I will beat the mouth trush, so I'm doing what I can and sitting around for the rest!!!!!!!! Had Onc app last Fri and he was pleased, apparently Ca125 is the lowest its ever been (not that it ever goes very high!) which he seemed to think was good though I thought it didn't make any difference providing it was well down. Feel really well, like I've loads of energy and could run a marathon (never could before so highly unlikely now!) until I try and do something then after about an hour have had enough, not sure if it helps being retired as no reason to push, have noticed I can manage when I have to

Fingers crossed for you all, hang in there Eileen and Dot not much longer till your treatments done. Harlie (spelling sorry) hope your treatment works as well as last time and I can see no good reason why it won't.

Keep up the positivity ladies I'm convinced it adds benefits to the treatment

Lots of love

Jackie xxxxxxxxxxxxx

Never feel guilty to pass on good news.It makes us all feel brighter to know you are getting there.Roll on next year !!

Great to hear you are doing well

Jackie,

Brilliant, Brilliant, Brilliant,

You have made my day honestly.......

I was so worried about you. Great news on CA125 count being so low.

I am starting with the nerve endings in my spine shooting pains then under the breast bone.I had it before on one of the last lot of chemo. At least we all know what to expect though and also that it will pass.

Oh ladies can I have your address's for a Christamas card. Not sure about putting it on here but Dot & Jackie you have my email. Rose I will send you mine...I am looking forward to this Christmas and I hope you all are...

Will chat soon and keep in touch all....

  Love you all ... Eileen. xxxxxxx

Dear Rose,

Glad you are back on site as well, you are such a trooper and you don't even realise how you can brighten people up. I hope everything is going ok for you and your family can have a lovely Christmas and New Year. I can't wait for this year to be finished with.

Will try and figure out how to forward my email to you ....

Love you lots Eileen. xxxxxxx

If we go onto Private message we can talk without anyone seeing the message so that could be good.When we feel better and the weather is warmer we can meet up in carmarthen for a cuppa!!

Good to see everyone back on here.

Rose xxx

Well girls I have had an exciting weekend.As you know I have had a problem with breathing and chest pains lately and was due to see the heart specialist next week.Thursday night I felt grotty and every time I stood up I vomited so 8.30 my husband rang our GP for a home visit .He came out at 9 andmy blood pressure was 150/50 so he rang an ambulance and the hospital and i was blue lighted(soooo exciting)to hospital I did ask if I could drive but the ambulanceman said his blood pressure would end up like mine if I did!!! Straight into procedure room where 2 doctors and 2 nurses were waiting and I watched on the scanner as a Needle was inserted into the pericardium and 950 ml of fluid drained and my heart which was 1/3 size gradually filled back to normal.How can 1 litre of fluid build up like that ?

On the ward and eating tea by 4pm and out on Monday feeling much better.I love the NHS !!!!

Hope you are all getting there and Dot you should pick up soon(dont know why we say that,youre not a hoover or a bin man)

Jackie,how are the eyes,it sounds minor but i know how very annoying it can be.

Will meet up in the new year Eileen when we both feel better and it is warm/

Take care lovely girls xxx

Rose xxx

Hi Rose,

only you could find such a scary thing so amusing, you wanted to drive!! lol, I am so happy that you were treated so quickly and feeling a lot better. You really are a tonic for me, I have you in my thoughts and wish all the best for you.

I had my last chemo Friday just gone, I then picked up a nasty cold which I am just about done with now lol. I am in good spirits and just want to enjoy being with the family at christmas, my favourite time of year. I do actually feel like a bin man, picking up things as I go along, but I am really very grateful as my side effects have been a lot less than others.

Jackie and Eileen hope you are keeping well too and any of our other friends out there.

Keep strong all

Dot xxxxxxxx

hi Rose

just had to type i read your posts all the time to so many peolple and your sence of humour  is amazing i was actually chuckling reading the last post by you. I hope you continue to get better and have a great christmas (inspite of this dreaded disease)

Keep making us smile

luckyus

Hi ladies, Eileen, Dot,Rose and Jackie its been a while hope your all well just want to wish you all a merry christmas.

and an evan better new year!!! your always in my thoughts  love and hugs. [julygirl58] sharon xxxx