Hi Redlizzie

I to have ovarian cancer diagnosed in Jan 2009. I had 3 lots of chemo, operation, and another 3 lots of chemo.

The main problems I had with the chemo were gross taste in mouth and nothing tasted like it should, neuropathy of fingers and feet, these got worse with each chemo, but taste improved after about 6 weeks, fingers and feet improved but I still have neuropathy in my left foot (and right but only when I walk!). Hair loss - very slow to grow back and now have corkscrew curls! Tiredness but only realised how bad once I returned to work!

Most of the complications I had with chemo have been rare ones but then I only got diagnosed with ovarian cancer due to a rare autoimmune disease! I developed arterial bloods clots (aortic settling in left Femeral artery) just before my 4th dose, had daily blood thining injections but still developed another clot 5 days after the 6th dose! The onchologist/haematologist aren't sure if its cancer or chemo related and they don't seem to have personally come across it before so please don't worry about it!

I would be interested in hearing about plans for followup when you get that far.

Best of luck

Jackie

Jackie,

I am worried about you as I have not heard anything from you and the other Ladies..xxxx

Dear Dot,

I am so glad to hear from you  xxx

You have been missed so much. I am sorry to hear you are going through a bad time yet again.I hope you can continue to  fight to the end of the chemo and will be ok for Christmas.I wish Jackie would get in touch and hope she is well, but I fear she must be poorly as she is always on the site even when she has been really ill. So Jackie if you read this message we are all thinking about you and if your to ill to reply don't worry just know that your friends are all thinking about you..

Keep in touch if you can Dot and good luck to everyone else...

Love as Always Eileen. xxxx

Hi Ladies

I'm horrible fine, feel guilty that you were worried but had router probelms!

Sorry to hear your all still having a hard time though Dot is nearly there. Eileen no more hospital i just won't allow it!

I've finished treatment without any of the problems I had last time (yea!), started decreasing my steroids so energy not brill but its the only way I will beat the mouth trush, so I'm doing what I can and sitting around for the rest!!!!!!!! Had Onc app last Fri and he was pleased, apparently Ca125 is the lowest its ever been (not that it ever goes very high!) which he seemed to think was good though I thought it didn't make any difference providing it was well down. Feel really well, like I've loads of energy and could run a marathon (never could before so highly unlikely now!) until I try and do something then after about an hour have had enough, not sure if it helps being retired as no reason to push, have noticed I can manage when I have to

Fingers crossed for you all, hang in there Eileen and Dot not much longer till your treatments done. Harlie (spelling sorry) hope your treatment works as well as last time and I can see no good reason why it won't.

Keep up the positivity ladies I'm convinced it adds benefits to the treatment

Lots of love

Jackie xxxxxxxxxxxxx

Never feel guilty to pass on good news.It makes us all feel brighter to know you are getting there.Roll on next year !!

Great to hear you are doing well

Jackie,

Brilliant, Brilliant, Brilliant,

You have made my day honestly.......

I was so worried about you. Great news on CA125 count being so low.

I am starting with the nerve endings in my spine shooting pains then under the breast bone.I had it before on one of the last lot of chemo. At least we all know what to expect though and also that it will pass.

Oh ladies can I have your address's for a Christamas card. Not sure about putting it on here but Dot & Jackie you have my email. Rose I will send you mine...I am looking forward to this Christmas and I hope you all are...

Will chat soon and keep in touch all....

  Love you all ... Eileen. xxxxxxx

Dear Rose,

Glad you are back on site as well, you are such a trooper and you don't even realise how you can brighten people up. I hope everything is going ok for you and your family can have a lovely Christmas and New Year. I can't wait for this year to be finished with.

Will try and figure out how to forward my email to you ....

Love you lots Eileen. xxxxxxx

If we go onto Private message we can talk without anyone seeing the message so that could be good.When we feel better and the weather is warmer we can meet up in carmarthen for a cuppa!!

Good to see everyone back on here.

Rose xxx

Well girls I have had an exciting weekend.As you know I have had a problem with breathing and chest pains lately and was due to see the heart specialist next week.Thursday night I felt grotty and every time I stood up I vomited so 8.30 my husband rang our GP for a home visit .He came out at 9 andmy blood pressure was 150/50 so he rang an ambulance and the hospital and i was blue lighted(soooo exciting)to hospital I did ask if I could drive but the ambulanceman said his blood pressure would end up like mine if I did!!! Straight into procedure room where 2 doctors and 2 nurses were waiting and I watched on the scanner as a Needle was inserted into the pericardium and 950 ml of fluid drained and my heart which was 1/3 size gradually filled back to normal.How can 1 litre of fluid build up like that ?

On the ward and eating tea by 4pm and out on Monday feeling much better.I love the NHS !!!!

Hope you are all getting there and Dot you should pick up soon(dont know why we say that,youre not a hoover or a bin man)

Jackie,how are the eyes,it sounds minor but i know how very annoying it can be.

Will meet up in the new year Eileen when we both feel better and it is warm/

Take care lovely girls xxx

Rose xxx

Hi Rose,

only you could find such a scary thing so amusing, you wanted to drive!! lol, I am so happy that you were treated so quickly and feeling a lot better. You really are a tonic for me, I have you in my thoughts and wish all the best for you.

I had my last chemo Friday just gone, I then picked up a nasty cold which I am just about done with now lol. I am in good spirits and just want to enjoy being with the family at christmas, my favourite time of year. I do actually feel like a bin man, picking up things as I go along, but I am really very grateful as my side effects have been a lot less than others.

Jackie and Eileen hope you are keeping well too and any of our other friends out there.

Keep strong all

Dot xxxxxxxx

hi Rose

just had to type i read your posts all the time to so many peolple and your sence of humour  is amazing i was actually chuckling reading the last post by you. I hope you continue to get better and have a great christmas (inspite of this dreaded disease)

Keep making us smile

luckyus

Hi ladies, Eileen, Dot,Rose and Jackie its been a while hope your all well just want to wish you all a merry christmas.

and an evan better new year!!! your always in my thoughts  love and hugs. [julygirl58] sharon xxxx

Hi ladies, Eileen, Dot,Rose and Jackie its been a while hope your all well just want to wish you all a merry christmas.

and an evan better new year!!! your always in my thoughts  love and hugs. [julygirl58] sharon xxxx

Hi Sharon,

Thanks for Christmas wishes..xxxx

I hope you have a lovely time and yes we all have a healthy new year........That is the main thing...xxxxx

Hi all,

got my results yesterday, cancer has gone from my left lung, abdomen is clear and all that is left is the lymph nodes in the centre of my chest, Doc said the chemo has shrunk it enough for them to be happy, CA125 is good, I am free now until March, when I will have another ctscan to ensure all is still ok. I am still struggling with this cold and have a pain in my back which made me think the worst, but the Doc is happy and I can relax wooooooo hooooooo.

I hope everyone is doing well, I wish you all a Happy Christmas, blessings to all.

Sharon it is good to hear from you, hugs to you, Eileen, Jackie  and Rose

Dot xxxx

Dear Dot,

That's great news I am so happy for you.....

See Dr's don't always get it right do they ...What a great Christmas you are going have Dot xxxxxxxx I am so Bloody HAPPY  for all of you.....

Merry Christmas & a Happy New Year. xxxxxxxxxxxOh and Healthy of course. xxxxx

YEEEEEEEEEESSSSSS !!!!!!!!!   

What a wonderful Christmas present for you but also for us all !!! You must be walking on air my flower.So glad you had this news before Christmas and did not have to wait until after.This is just the start of good news for us all.Thank you for sharing this and have a wonderful Christmas.

Rose xxxxx

Hi girls,

Following the wonderful news we have just read,I have an invite under other topics ifanyone  would like to join in.

Love and good wishes to you all

Rose xxxx

Hi Eileen and the rest of the ladies,

Just popped in to see how you all were.  That is great news Dot what a christmas present that is, i finished chemo in November and due to go back in January to see consultant.  Enjoying the very tiring break from chemo every three weeks as you can all appreciate. Ca125 levels down to 10  at last consultation.  Will see what they are doing in the new year.

I wish all of you a very Happy Christmas and a very healthy New Year. xxxxx

Hi guys

Great to hear the good news Dot, Hope you get the same Eileen.

May you all have a Happy Christmas and a health and happy New Year

Lots of love

Jackie

XXXX

Hi gals

No posts at all for ages, not like you lot at all!

Hope you all had a good christmas and new year.

I've got a cold but otherwise fine, eyes still a biut more leaky than normal but not enough to be annoying!

Hope the new year finds you all well

Love Jackie xxxx

Hi Jackie,

Sorry you have a cold,they are so draining .Have you retired yet?Lots of time to go for walks in the summer.

Eileen,how are you? Hope you have managed to avoid infections so far this year.

Blue eyedgal,any news yet or is your appt.later on?

Sharon,hope you are getting on Ok and getting around now the snow has gone,very pretty but nice now it has gone.

And Dot,hw are you?Still made up after your news.Which chemo were you on?

I am picking up slowly.Actually drove to the dentist myself yesterday,only a mile but it is surprising how you loose your confidence so quickly.Still trying to put on the 1 1/2 stone that I lost 2 months ago but finding it really difficult.57 years of dieting and now Im trying to put weight on,Sods Law !! My clothes are all too big,I was walking up the stairs t my dentists and stood on the hem of my skirt and the skirt came down over my bum,started laughing which started me coughing so need to visit the sales before Im arrested for flashing !!New chemo seems Ok,scan end of month to see if it has worked but definitely getting a bit of energy back.f only I could breath I would be A 1 but after reading Dots story I am very hopeful.

Hope i havent missed anyone.

Take care girls

Rose xxxx

Hi Jackie & Ladies,

Happy New Year to all of us ....Sorry to hear you have a cold I just hope none of us gets that flu that is circulating.

I should have had my  last chemo on Wed but didn't have it as I had earache  for 3 days and was lightheaded. Anyway I said I didn't want the last one and the Dr had said he wouldn't push me for it. So I am waiting for the appointment in clinic and I expect he will send me for a scan... Fingers crossed everything will be fine.

Hope everyone had a good Christmas especially you Dot...

It will be nice to have no more chemo and Hospital appointments..

Keep in touch  will chat soon now everything is back to normal xxxx Eileen.xx