Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

Parents
  • I was diagnosed with early ovarian cancer four weeks ago following a total hysterectomy, there were tumours on both ovaries, I have an appointment for a kidney function test and another ct scan next Friday, if everything is ok I start taxolcarbo chemotherapy after that. I was told there will be six sessions with 3 weeks rest in between.

    I do hope I am posting this in the right place, I am concerned about the chemo and hope to learn more through this forum

    Dot

  • Hi Dot

    Welcome to the site although it would be nice if you did not have to be here.

    The waiting is always the worst part.Once you have your plan and things are underway it is easier to understand.I had breast cancer so can not advise you about your treatment but would like to wish you the very best of luck.Do keep coming on here for us to support you .good luck

    Rose xxx

  • Big hugs Sharon, it must be confusing for you, not knowing what to do, maybe when the second opinion comes back it may help you make the decision, I found that although I was given options, they did suggest what they thought would be the best way to go.

    Try not to worry and I know that is really hard, hopefully you will feel more positive once a decision has been made.

    My thoughts are with you

    Love Dot xxxxxxxxx

  • Oh Sharon,

    What a downer Lets hope when all the results are in ,as Dot says ,it will be easier for you to make a decision.. Get some chocs in and curl up in front of the telly then tomorrow go out and have a walk or a nice drive.Hope you feel better soon

    Rose xxx

  • Hi ladies

    Annie thats brillent news get u out there and celebrate!

    Sharon thats not so good. Can you give any more details - talk us though it - it may just help clarify things in your own mind to, have you previously had surgery? no pressure if you don't want to go into detail then don't. As the days pass and you mull over what you were told things may become clearer or not, it would probably be helpful if you jot down any questions which come up so you can discuss these during the second opinion. As Dot says they usually advise you which option to go for and if they don't you can ask them which they would choose.

    Dot, glad the reduced dose has left you feeling good, hope it continues and you can enjoy all the time between treatments!

    As for me feeling ok now but cannot shake this cold, bored with it now but at least I don't feel bad with it so shouldn't complain.

    Love to all

    Jackie xxx

  • Hi jackie, to cut a long story short had ct scan july 12th called back aug.something was showing on the scan asked surgeon to veiw it for op.

    they have said no now my oncoligist wants me to haveanother ct scan and she wnts a second

    oppinion you confused yet cause i am!! but shes told me surgery could leave me with more problems so what am i ment to do? i thinks she prefers that i have surgery instead of just chemo again.

    avery confused sharon.xxxx

  • Hi Ladies,

    I have been busy with the move on Friday so not had much time to pop in.. I am really pleased for you Annie that's great news, you must be over the moon. And poor you Sharon I don't know what you must be thinking at this time. Just try and deal with it the best you can & we are all here for you xx

    Jackie you have had that cold for ages now, it must be driving you mad. I hope your feeling ok apart from that though.xx

    Dot you seem to be doing alright as well and hope it all continues for you as you deserve some good luck xx

    Rose you are so funny with your jokes. I was going to say come and see me next week in Hospital but on second thoughts I don't want my stitches bursting open from laughing xx

    Well I hope I haven't forgotten anyone if so its my age and I apologise for it. Will send a final message on Thursday as I won't have time after that as I go in on Sunday.....

    Love Eileen xx!www.cancerchat.org.uk/.../love.gif!

  • Thanks Eillen. had a phone call this morning got ct scan saturday morning.

    just wont to know whats going on thanks again sharon xxxx

  • Hi Eileen,

    Glad you managed to move house and get settled before going in,you will be glad of the rest !!

    I will try to visit if bloods are OK.What is your surname and how long are you in for?I was in ward 12 for a few hours on Sunday as i came out in a rash on face and neck.Turned out to be an allergy,probably to the woolen poloneck jumper that I wore the day before ,thankfully not my tablets.

    Hope you dont get too stressed (easy to say ) and all the luck in the world for next week,we will all be thinking of you and cant wait to see your next post on here.

    Good luck

    Rose xxx

  • Hi Eileen, hope all goes well for you il be thinking of you

    lots of love and big hugs sharon xxx

  • Hi ladies

    Eileen good luck with the op next week, hope you've managed to settle in your new home.

    Dot - hope everything is still going well, not like you not to post for a few days!

    Sharon - yes a bit confused, you need to know what problems the surgery could have before you can weight things up. Second scan is a tad confusing unless they are extending the area they are looking at. Obviously you also need to know what they have seen, you suspect its the cancer back and I suspect your right but that in itself don't mean much, where (exactly) is it, how big/extensive, what area/organ involved, advantages/disadvantages of having surgery, how well would chemo do alone, would surgery be followed by chemo.................... think I'd better stop! Sorry but you cannot make an informed choice without these answers, yes the oncologist and the surgeon can give you an opinion on what action they would take but that don't mean you understand where they are coming from and thats important for you to be 'happy' with the decision you make. Do you have a follow up app with anybody after the scan?

    Rose - sorry to hear you were admitted but glad it was 'only' an allergy and hopefully easily sorted.

    As for me seem to be getting away with the chemo clot wise............... fingers still tightly crossed! 4 down and only 2 to go :D another month and I'll be done!!!!!!!!!!

    Keep finding the postive and enjoy everything you do

    Love to all

    Jackie xxx

  • Hi jackie, to right just want to know .hope i get better answers from the scan on saturday.

    my consultant said the surgeon wont operate because it could cause complications.

    i.e my other organs. just wont to get things sorted.oncologist wants a second opinion thats

    why im having another c t scan saturday morning il keep you updated!.

    best wishes sharon xx

Reply
  • Hi jackie, to right just want to know .hope i get better answers from the scan on saturday.

    my consultant said the surgeon wont operate because it could cause complications.

    i.e my other organs. just wont to get things sorted.oncologist wants a second opinion thats

    why im having another c t scan saturday morning il keep you updated!.

    best wishes sharon xx

Children
  • Hi Sharon,

    Hope your scan was OK yesterday.

    Jackie,hope you are managing better now,sore eyes are a real nuisance.

    Dot,how are you.We worry when you are quiet,hope you are Ok.

    Eileen,hope they are treating you well at Singleton

    Hope you all have a good weekend

    Rose xxxx

  • Hi everyone

    I picked up a nasty cold and it wiped me off my feet lol, still got a tight chest but getting there. Went ahead and had chemo on Friday no major side effects, which is lovely.

    Eileen I will be thinking of you, finally got to that op at long last.

    thanks all for thinking about me.

    Sharon hope you get more information this time, ask lots of questions

    Dot xxxx

  • Afternoon ladies, hope your all keeping well.ct scan on saturday went ok.

    just hope they have the results back this time when i go on the 20th.

    speak soon BIG HUGS to you all sharon xxxxxx

  • Hi Ladies

    Don't think this thread has ever been so quite so I hope you are all well!

    Dot - hope the cold has gone but am worried as no posts.....................

    Eileen - hope your on the way to recovery and not worried as know you can't post!

    Sharon - glad the scan went ok but it seems a long time to the 20th,

    I'm post chemo and at the bad bit but on the whole doing ok. Eyes still leaking on and off, more on than off but they're not flooding so its more comfortable.

    Keep in touch

    Love to all

    Jackie

    xxxx

  • Hi guys, you all seem to bow what you are talking about in regards to ovarian cancer so I was wondering if anyone could tell me what the next steps would be.

    So far I have had tumour marker blood tests and ultrasound internal and external. Am now waiting for appointment to see specialist gynaecologist and would like to know what to expect them to do as my hospital is a bit crap!! Don't want them to tell me one thing and they should really be doing something else

    Any advise would be greatly appreciated

    Sue

  • Hi everyone,

    Jackie, I haven't seen it this quiet either, I am still struggling with the cold but getting there I think lol. Had chemo on Friday, now I have a rest week which I am looking forward to. Sorry you are still having problems with your eyes, my symptoms are less severe since they put me on weekly dosage. They want me to have a PICC as they have problems trying to put the canular in and I am thinking about it lol.

    I wrote to Eileen and she sends her love to all, she will post when she can.

    Love Dot xxxxxxx

  • Hi Sue,

    glad to see you posted but sorry you have to be here.

    You seem to be on track with your Doctors, I had the ultrasound etc then met with the onco/gynaecologist. I was sent for a ctscan which gives them a better idea of what they are looking at. I know it is daunting waiting to see what is going to happen. Not all hospitals follow the same routine, so don't get worried if you don't have the same treatment.

    What information have you been given so far from the scans you have had?

    Try and stay positive, yes it is hard.......and ask lots of questions when you get to speak with Docs again.

    Dot xxxxx

  • Hi Dot,

    Sorry you still have that cold.Is Eileen still in hospital? I had intended to visit but after being away for a couple of days my grandaughter gave me hand foot and mouth virus so i have been in quarentine for a week .Who said its good to share ?!!

    Hope all you girls cope with whatever gets thrown at you.At least the weather is good.

    Rose xxx

  • Hi Rose,

    sorry to hear you haven't been well, sharing isn't all it is cracked up to be lol. Great to see you post

    Eileen is home now, she had a few problems but seems to be getting there now, early days for her, she said she will post when she can.

    Dot xxx

  • Hi dot, thanks for your reply.

    I have been told that it's 5x4x3cm so I suppose its not huge. And that's it! I have received my appointment this morning, it's on Tuesday and they want me to have another ultrasound beforehand.

    I guess not long to wait now till they hopefully start sorting me out!

    I'll post after my appointment to let u know what they said and what they r gonna do next.

    I think its really gonna help me having you guys here as the other half is not very good at this kinda stuff.

    Thanks

    Sue (duracell)