Ovarian Cancer

Hi,

I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2  chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..

Parents
  • HI ALL - Well, I had my scan yesterday and I AM IN REMISSION!!! Now, I of course am THRILLED and am sure you are ALL happy for me, however I have had a hard time posting this with the bad news...BUT, then I said to myself - If I can just let them know there is HOPE!!!! AND THERE IS - I am keeping it short as there is not more for me to say...Docotr every 3 months, my port flushed every 6 weeks - I asked for a blood test in six weeks, when port is flushed, and my nurse is more than happy to do so...that way I have a clue of where my #'s are as well as if anything is "off" - I will know then - I will still be here to offfer my prayers, my thoughts, my aches and pains, and best wishes for ALL of you....XXXXXXXOOOOOOOO - Becky

  • Ata girl Becky.That is such great news and dont ever feel as if you cannot tell good news.This is what keeps us focussed :love:

    Get the wine in and have a fab weekend,you deserve it !!

    Rose xxxx

  • Hi all,

    Jackie I couldn't bear the hair coming out so I cut it all off lol and my daughter shaved it to neaten it up, I feel much better, my little four year old grand-daughter kept asking me to put my wig on, but my scalp is sensitive so I declined lol, she will get used to it eventually, everyone else seemed to accept it, I thought I would want to hide but I am fine, in fact I like it as long as I put make up on which I only used to use if I went out lol. My next chemo is on Friday 13th, good job I am not superstitious lol.

    Good tip with the glove, I haven't had problems with any of my veins until it came to the chemo, they used the warm water trick and got it straight away. Sorry to hear about the thrush, hopefully it will clear up quickly.

    Dot xxxxxx

  • Hi Rose,

    two of my friends call me flower, so it was lovely that you used it too, hmmm wondering what type of flower I am lol.

    Thanks for the note about Dizzie I will check it out, it does sound interesting.

    Hope you are still feeling good.

    Dot xxxxx

  • Oh Rose,

    I loved your blog, I wrote a lovely long post but I couldn't post it as I don't have a blog, at least I think that is why lol.

    You are an amazing lady Rose, I was tearful reading it, your journey hasn't been an easy one, yet you are always strong and helpful to everyone on this site, you have always been able to make me feel better with your kind and thoughtful words.

    It was lovely to see the photo of you and your beautiful grandchildren. I am so glad I got to read it

    Love Dot xxxxx

  • Jackie have you heard from Eileen?

    I am hoping she is ok

    Dot xx

  • Hi Dot,

    And Ladies of course. I am ok now thanks but I am phoning the Hospital later to cancel my 6th and last chemo as I can't take anymore of it. I was thinking the other day that at first they said I would have 3 chemo then op then another 3 but as I have not had the op they have not given me break, so its been 5 months of hard chemo without a break. Unless they say that it can be reduced then I am not changing my mind. Everyone keeps saying just have the last one and its over with but that's easy to say, and its not over with. Its the begining of the nightmare of feeling so ill for 2 weeks.

    I am glad Dot you are happy with your hair or not as the case may be. Its a great feeling I think having no hair and so easy to get ready. You will have to take a pic of it and change your profile. Everywhere I look these days there are celebs on the cover of mags and papers with bald women. And they all look amazing. Do you think we have set a new trend ???

    I am still awaiting the birth of my grandchild who was due yesterday but nothing doing. I already Twin Grandchildren Benen & Patrick who will be 9 later this month so its a busy month. I am hoping to be able to go to Manchester to see them all but the way I am feeling I am not ready to go yet.

    Anyway I look forward to hearing from you all. Hope your ok Jackie and not feeling to bad after your chemo.

    Love as Always Eileen. xxxxxxxxxx

  • Hi all,

    I hope you are all doing good.

    Eileen it is good to hear from you, I gathered that the chemo was taking it's toll on you. I can't say I blame you about not wanting anymore, hopefully they can answer your questions and advise you whether you should carry on, they need to let you know that it is worthwhile, to give you that push to carry on, I hope you hear something good from them.

    Ah the baby is due, the time seems to have flown since you first mentioned it, I do hope that you get the strength to be there for your daughter and your new grandchild.

    I have only had one cycle of chemo and I don't think I can really grumble about mine, but I guess it probably gets worse as it goes along, would be nice if it didn't!! Next cycle is Friday ugh.

    You are always in my thoughts Eileen, I hope you get to hear something good soon.

    I have noticed that I use the word hope a lot when posting and I can't find another word to use instead, unless I use pray and not everyone is into that, so sorry if it sounds repetitive.

    Love to all

    Dot xxxxxxx

  • Hi Ladies

    Dot its good to hear your not suffering to much from the chemo, it does get worse but not much, more an energy thing for me anyway! Poor Eileen you seem to get all the side effects for all of us, I think you'll find that they always give 6 doses so while they may delay it (very short delay!) they will want you to have it. It's so difficult for you espically as it has been so drawn out due to the hosp admissions while I'm thinking 2 down only 4 to go!

    Had busy weekend but totally energyless today! Just got my letter through to say ill-health retirement approved so now waiting for the pensions agency to tell me what that ammounts to!

    Looking forward to hear of the birth of your next grandchild soon!

    Loosing lots of hair (but I've loads to loose!) haven't bothered to shave it yet as am debating if I can pay a visit to a freinds child Thurs, she'd not overely keen on me bald or with bandama! Not sure I'll make it as getting fed up with it now, looking forward to the release it gives you :)

    As you can see, head all over the place today so I'll love and leave you

    Take care

    Jackie xxxxx

  • Jackie it is good to hear from you, I hope your ill-health retirement will give you a comfortable amount to live on, fingers crossed for you!!

    I love it now my hair is gone lol, I look like a shaolin monk lol, hoping I will be brave enough to go out without wearing a bandana or wig, I will find out Friday when I go across London for chemo haha, now that is a test, I will let you know what happens.

    A special hug for you Jayne hoping you are keeping strong

    Love to all

    Dot xxxxx

  • Dot,

    You look amazing with no hair. I told you it makes you feel better. You will find the back of your head gets cold though, and I always walk about with my dressing gown hood up and I look like the mad monk.

    I forgot to ring the Hospital up but will do this week. Its funny as everyday you get that bit more energy and start to forget how ill you have been.

    Jackie you will be next then to lose the locks so we shall await the next monk to join the monastery .... Love to you Rose & Hilary and Jayne and anyone else I forgot. Love Eileen. xxxxxxxxxxxxxx

  • Hi all,

    Jackie I did write a post to you but it has gone out into the ether somewhere lol. (oops found it, I knew I mentioned your pension, must be old age lol)

    My family are calling me Grasshopper lol for those who remember the Kung Fu series with David Carradine, lol you all may be too young, not sure how long ago it was but possibly aeons haha.

    Had a night of cold sweats, I did have this before and my body temperature goes down to 32 degrees, when I mentioned it to the hospital last time I was there they didn't seem concerned but checked my urine and bloods which were clear. My temp is gradually getting back to normal now. Oh the joys of this treatment lol.

    Hopefully your pension will be enough to give you a reasonable living, they aren't usually generous in that department but one can hope.

    Wishing you a good day Jackie with more strength and energy.

    Hope you other ladies are dealing well.

    Eileen let us know when you have spoken to the hospital, I have you in my thoughts as usual

    Love Dot xxxxxxxx

Reply
  • Hi all,

    Jackie I did write a post to you but it has gone out into the ether somewhere lol. (oops found it, I knew I mentioned your pension, must be old age lol)

    My family are calling me Grasshopper lol for those who remember the Kung Fu series with David Carradine, lol you all may be too young, not sure how long ago it was but possibly aeons haha.

    Had a night of cold sweats, I did have this before and my body temperature goes down to 32 degrees, when I mentioned it to the hospital last time I was there they didn't seem concerned but checked my urine and bloods which were clear. My temp is gradually getting back to normal now. Oh the joys of this treatment lol.

    Hopefully your pension will be enough to give you a reasonable living, they aren't usually generous in that department but one can hope.

    Wishing you a good day Jackie with more strength and energy.

    Hope you other ladies are dealing well.

    Eileen let us know when you have spoken to the hospital, I have you in my thoughts as usual

    Love Dot xxxxxxxx

Children
  • Hi Ladies

    I am now one of the monks! Though I do need my mate to finish work to get the bits I've missed!!!!

    I remember the Kung Fund series and Grasshopper so it can't be that long ago :devil:

    you both seem to have problems with cold sweats while I still sleep with a fan on How different these drugs affect us all. I seem to be going down the horrible mouth which is getting very sore again (must be the Doxil as didn't have it on the Tax), can't find anything to cover the taste and most things seem to make it worse, ah well I could do with losing some weight but 'missing' my coffee big time!!!! Apart from that feel better today thankfully, not used to being that tired

    When are you contacting the hosp re your next chemo Eileen? Hope it goes well.

    Hope your all feeling better for the time being

    Love Jackie xxxx

  • Hi everyone..

    Its a little Girl, well not so little she was 8lb 8oz and arrived at 1: 40 this morning after 18 hours of labour..... I phoned the Hospital yesterday and they said I was down for a CT scan on the 30th but said I need a break. So I have a week off now, my next one is 24th so my scan will be put off for another week...We are hoping to go up to see the Baby next week, its about 4 hours drive but will try to get there and see her. The Boys are going to Ireland for a week so it will be quiet in the house...... Glad to invite you Jackie to the mad monk society. Get your pic on here so we can see you......Hope all your treatments are going ok. Rose it is like child birth you do forget how bad you feel and every day you start to feel that bit better...... Love as alway's Eileen. xxxxxx

  • Congratulations Eileen! bet your looking forward to seeing her, that should give you the energy for the journey!

    Didn't think they'd put it off for long but hey a week feeling better in yourself and getting to see grandchild should be worth it. Then you just need to dig in and get it over with cos believe me if you think you feel better in week 4 you don't compared to what you do as time goes by without the chemo!

    Hope your enjoying what's left of the week Dot before your next big day on Friday! Just imagine with time next week it will be 2 down and one to go before checking progress (which I'm SURE will be good), before you know it we're half way there!

    Rose - congratulations to you as well.

    Would be nice to hear how Jayne's doing but as she wasn't really well enough for chemo but had it anyway, I assume its taken its toil and we will have to wait patiently, thinking for you though Jayne.

    Take care everyone

    Jackie xxxx

  • Congratulations Eileen,you must be so thrilled.Im hoping I will be in the same situation tomorrow as Rhian is being induced tonight

    Im glad you are having a break from your treatment.You must be torn between not wanting any more and wanting to get it over with.A visit to see the baby is just the ticket.Feet up while the boys are away,you could even have the TV remote to yourself!!

    Take care gran

    Rose xxx

  • Hi Flower,

    Good luck for tomorrow-another one out of the way.

    I remember Kung Fu (I remember his dad Big hairy man called Kung Kong)There were so many good programmes then.Champion the wonder horse,Fury and I loved Flipper..Do you remember The Thorn Birds? Very naughty in its time.

    Anyone know what happened to Becky (Vermont)?Perhaps she will write soon

    Hi to everyone with hair and without.You might want to look on www.lgfb.co.uk and www.bohemiafashions.co.uk or www.fashionscarvesandshawls.com

    Take care

    Rose xxx

  • Hi Eileen,

    Glad to hear your baby grand daughter is here, she is a good size bless her, hope your daughter is doing good after the long labour.

    I am glad you are getting a break from the chemo Eileen, you certainly need it!!

    I do hope you make it so your daughter and new baby!!

    Love to all Dot xxxxxx

  • Thanks Rose for thinking of me, another chemo another step along the way.

    I do remember the Thorn Birds, yes, naughty for it's time, nothing compared to what is out there now lol.

    Thanks for the link Rose, I will check it out. I have a lovely wig but at the moment don't feel the need to wear it, but my trip tomorrow on the tubes to London might make me want to wear it lol. I shall wait and see how I feel, I think it might be a bit drafty on the stations lol.

    Hope you are well Rose

    Dot xxxxxxxxx

  • Hi Dot

    Just wishing you luck for tom. It's interesting going out without hair! Last time I covered my head (bandana) everyone was more polite/helpful than usual but that was tempered with seeing what they were thinking (thought it was me being sensitive but not so such now) this time went out bald, everyone was more polite and chatty, as in jovial its like they are not sure if its a problem or a fashion statement!!!!

    I would advise if you want a seat on the tube go for a scarf otherwise try the bald monk approach!!

    Good luck with the chemo

    Jackie xxx

  • Hi Jackie,

    thanks for thinking of me, I am tempted to go out in monk fashion hahaha, not sure if I will yet, depends on if I can get my eye makeup just right lol, at my age I have to put in a lot more effort lol.

    Wish it was this time tomorrow night lol.

    Dot xxxxxxxx

  • Hi Jackie,

    That message made me laugh, I think people are so used to seeing us bald monks now that its not a shock anymore. You still do get that sympathetic look though. I hope your all doing ok with your chemo, and its not taking it out of you. I am getting my strength back every day but not looking forward to having that last chemo. Its such a great feeling to be able to do normal things....

    I hope you sort your pension out and get what you deserve... All the other ladies' I hope your ok and Dot you sound like your keeping positive... You look great as well. I am not sure if I am going to Manchester next week as it sounds like a mad house up there so may go up later in year.....I will keep you posted on that on anyway.....

    Love Eileen. ...xxxxxx:love: