I was diagnosed with Cancer in March and although we knew it was Cancer its still a shock to be told it. I have had 2 chemo cycles now and have my 3rd at the end of the month. I would love to chat about the chemo side affects to anyone..
HI ALL - Well, I had my scan yesterday and I AM IN REMISSION!!! Now, I of course am THRILLED and am sure you are ALL happy for me, however I have had a hard time posting this with the bad news...BUT, then I said to myself - If I can just let them know there is HOPE!!!! AND THERE IS - I am keeping it short as there is not more for me to say...Docotr every 3 months, my port flushed every 6 weeks - I asked for a blood test in six weeks, when port is flushed, and my nurse is more than happy to do so...that way I have a clue of where my #'s are as well as if anything is "off" - I will know then - I will still be here to offfer my prayers, my thoughts, my aches and pains, and best wishes for ALL of you....XXXXXXXOOOOOOOO - Becky
Dot if you can avoid washing, brushing hair you can keep it till just after the 2nd dose on the other hand if you start eating it its time to get rid of it! I've still got mine and as I cut it really short I'm not eating it yet but either way it will be gone by Sunday evening! 2nd dose today, went well. A friend (chemo specialist) told me to wear a glove prior to cannula, so I 'acquired' a plastic glove and put it on for about half an hour, took it off for the hot water and I've never had such promemient veins, they got it first time! neat little trick which none of the other nurses knew about! Got the horrible Thrush back again so saw Dr and have another week of Fluconizole and then go onto a maintaince doses mon, wed, and Fri. Very tired today due to only 2 hours sleep last night all caused by Dex 16mgs and Pred 17, at least some of the 'high' should be dampened by the chemo so fingers crossed for tonight.
Glad your still feeling strong Dot, still thing thats the main key
Hi Jackie,Dot,EileenJayne and where are you Becky?Long time no hear !!
Hope you are all coping with the side effects and managing to have a good weekend.Have you still got any hair Jackie? Good tip about the glove.
Dizzie has started a blog site where we can follow each others journey if anyone wants to add to it.It is theraputic writing things down and handy if you forget when things happened.I am useless on the computer but even I did it !! It is under other discussions
Hope you are OK Eileen,I was hoping you would escape the horrible side effects.Jayne I hope things are better for you .You certainly deserve a break.Dot how are you my flower?Any more appts lined up ?
Jackie I couldn't bear the hair coming out so I cut it all off lol and my daughter shaved it to neaten it up, I feel much better, my little four year old grand-daughter kept asking me to put my wig on, but my scalp is sensitive so I declined lol, she will get used to it eventually, everyone else seemed to accept it, I thought I would want to hide but I am fine, in fact I like it as long as I put make up on which I only used to use if I went out lol. My next chemo is on Friday 13th, good job I am not superstitious lol.
Good tip with the glove, I haven't had problems with any of my veins until it came to the chemo, they used the warm water trick and got it straight away. Sorry to hear about the thrush, hopefully it will clear up quickly.
I loved your blog, I wrote a lovely long post but I couldn't post it as I don't have a blog, at least I think that is why lol.
You are an amazing lady Rose, I was tearful reading it, your journey hasn't been an easy one, yet you are always strong and helpful to everyone on this site, you have always been able to make me feel better with your kind and thoughtful words.
It was lovely to see the photo of you and your beautiful grandchildren. I am so glad I got to read it
And Ladies of course. I am ok now thanks but I am phoning the Hospital later to cancel my 6th and last chemo as I can't take anymore of it. I was thinking the other day that at first they said I would have 3 chemo then op then another 3 but as I have not had the op they have not given me break, so its been 5 months of hard chemo without a break. Unless they say that it can be reduced then I am not changing my mind. Everyone keeps saying just have the last one and its over with but that's easy to say, and its not over with. Its the begining of the nightmare of feeling so ill for 2 weeks.
I am glad Dot you are happy with your hair or not as the case may be. Its a great feeling I think having no hair and so easy to get ready. You will have to take a pic of it and change your profile. Everywhere I look these days there are celebs on the cover of mags and papers with bald women. And they all look amazing. Do you think we have set a new trend ???
I am still awaiting the birth of my grandchild who was due yesterday but nothing doing. I already Twin Grandchildren Benen & Patrick who will be 9 later this month so its a busy month. I am hoping to be able to go to Manchester to see them all but the way I am feeling I am not ready to go yet.
Anyway I look forward to hearing from you all. Hope your ok Jackie and not feeling to bad after your chemo.
Eileen it is good to hear from you, I gathered that the chemo was taking it's toll on you. I can't say I blame you about not wanting anymore, hopefully they can answer your questions and advise you whether you should carry on, they need to let you know that it is worthwhile, to give you that push to carry on, I hope you hear something good from them.
Ah the baby is due, the time seems to have flown since you first mentioned it, I do hope that you get the strength to be there for your daughter and your new grandchild.
I have only had one cycle of chemo and I don't think I can really grumble about mine, but I guess it probably gets worse as it goes along, would be nice if it didn't!! Next cycle is Friday ugh.
You are always in my thoughts Eileen, I hope you get to hear something good soon.
I have noticed that I use the word hope a lot when posting and I can't find another word to use instead, unless I use pray and not everyone is into that, so sorry if it sounds repetitive.
Dot its good to hear your not suffering to much from the chemo, it does get worse but not much, more an energy thing for me anyway! Poor Eileen you seem to get all the side effects for all of us, I think you'll find that they always give 6 doses so while they may delay it (very short delay!) they will want you to have it. It's so difficult for you espically as it has been so drawn out due to the hosp admissions while I'm thinking 2 down only 4 to go!
Had busy weekend but totally energyless today! Just got my letter through to say ill-health retirement approved so now waiting for the pensions agency to tell me what that ammounts to!
Looking forward to hear of the birth of your next grandchild soon!
Loosing lots of hair (but I've loads to loose!) haven't bothered to shave it yet as am debating if I can pay a visit to a freinds child Thurs, she'd not overely keen on me bald or with bandama! Not sure I'll make it as getting fed up with it now, looking forward to the release it gives you :)
As you can see, head all over the place today so I'll love and leave you
Jackie it is good to hear from you, I hope your ill-health retirement will give you a comfortable amount to live on, fingers crossed for you!!
I love it now my hair is gone lol, I look like a shaolin monk lol, hoping I will be brave enough to go out without wearing a bandana or wig, I will find out Friday when I go across London for chemo haha, now that is a test, I will let you know what happens.
A special hug for you Jayne hoping you are keeping strong
Jackie it is good to hear from you, I hope your ill-health retirement will give you a comfortable amount to live on, fingers crossed for you!!
I love it now my hair is gone lol, I look like a shaolin monk lol, hoping I will be brave enough to go out without wearing a bandana or wig, I will find out Friday when I go across London for chemo haha, now that is a test, I will let you know what happens.
A special hug for you Jayne hoping you are keeping strong
