Hi everyone its been a long time since Ive been on AGAIN because the computer has been playing up AGAIN and its made me very  . could do with a new one but this time of year its an expense we can't afford! I've been reading back a few posts but it will take me forever to catch up so wondered if you could all just update me on how you are all doing!! Its lovely to be back in the community I've been on a bit of a rollercoaster last two months and am waiting for the straight jacket to arrive lol!! Seriously does anyone else get really angry!! My anger has been uncontrollable at times with me even smashing a wall and it has really upset me!!

Please be intouch

LOTS AND LOTS OF LOVE TO YOU ALL

Louise

Hi Louise

Sorry to hear you are having problems with your computer and your emotions.I dont get angry because I find it just leaves me feeling worse in the long run,plus my last treatment has damaged my heart so at the moment I cant get stressed.Waiting to see the heart specialist in 2 weeks and when he gives me a magic pill I will be fine.You have been through so much for so long.Can you have some sort of therapy or a massage or reiki treatment to help?Being on here should help to unload so rant away and let us help.No more wall hitting!!!

Stay strong

Rose xx

Hi Sue I think during radiotherapy hospital are very wary about using creams other than the ones they supply "just incase" but as from mon when my treatment finishes I will try the pure aloe vera, the hosp supply you with aqueous cream but when the skin is broken they supply a gel, which does seem to be doing the trick, i will certainly pop into primark and have a look, I also have 2 scars so they are quite sore just now. Good luck with your treatment. Colette xx

Hi Sue,

          If I could just back up what Colly is saying about using other creams. I had radiotherapy for rectal cancer and by the end my bum was really sore in that I could hardly sit down and dreaded going to the loo. I went to my doctor and while he prescribed some creams he also advised just to check with the radiotherapy department at the hospital. I contacted them and they came back saying do not use the creams recommended and instead they prescribed two types of water based gel type material. There is no question that this worked very well and quite quickly. Prior to the doctor I had tried a whole range of proprietary products from the chemist but none seemed to be able to take the edge off. Consequently because of this experience I am a bit wary of trying anything other than what those specializing in the subject recommend.

Take care and all the best.

Graham

Happy New Year to you all, this has been my first week back at work, really enjoyed it was good to see everyone again am training quite hard at the gym again trying to build up some strength in my left arm and also shed some of those unwanted pounds gained over the last 7 months, anyway got a bit of hair now but much too cold to go out without hat or wig, not quite sure what colour it will be,however my husband says it has special hightlights in it at the moment........... I think what he is trying to say is there is some grey in there! I dont care just want my hair back.

Good luck Colly and Lonie another step closer to closing the door on 2010, I have to say Colly I didnt really struggle with the rads, was a little red but nothing too bad so not very helpfull with the answers on that one, however the breast nurse did give me a square pad that fitted over my breast to stop the rubbing of the bra or clothes and it was wonderful, maybe you could ask about that.

Well Im off to the gym now girls and boys so I shall send much love and good wishes to you all.

Lots of love Lee xxxxxxxx

Hi Lonie

I seem to think that it is your birthday today,if so HAPPY BIRTHDAY sweetheart.I I could sendyou a prezzie it would be a day free of pain.Hope your snow has all gone and you can get around better all good things for you in the new year.

Im getting a bit more energy now and  my new chemo isnt too bad.Scan at the end of the month to see whats what and on from there.Actually drove on my own yesterday to the dentist,wierd how your confidence goes.Roll on the spring  !!!!

Lee cant believe you are back in work.You go girl !!Dont overdo it though,it takes along time for the body to recover inside and you have done so well.

Good luck to everyone else with the treatments and finishing them .

Love to all

Rose xxx

\hi all

gosh you all seem to be doing so well. Hats off and raised glasses to the end of chemo and rad, i had my 4th chemo today and cant wait for it to be over. spoketo the doc today about rad as i was worried when i heard how sore you ladies have been. been told will have three weeks of radiation, would be intrested to know what time scale you ladies had. so far all your advice has helped me go through this without too much fear.

caz how are you?

love sara

Hi Sara,

Hope you are not suffering with too many side effects.Dont try to fight it just do what your body tells you,lots of *** daytime TV and lolling around in your jammies !!!

I had 5 weeks of rads and had no side effects at all apart from finding a parking space every day !!I used aloe very after sun cream although some say not to use anything except the cream they give you but it seemed to work so to each their own.How many chemos have you got left?You have come such a long way now,not too far to go until you can start healing and getting back to normal.Onwards and upwards

hi all

hope everyone had lovely xmas and new year had my last chemo on thursday feel bit rubbish but sos sos glad my last one (sara it will come quick u r so almost there xx) starting radio 2nd feb so will let u know re side affects but lets face it got to be better than horrible chemo !!

i am hoping i can start planning to get my life back unfortunately i need knee op so have to decide when .do i go back to work then off again or do i go and have it soon having chat to surgoen soon so will see .but then it s all systems go try get fit again xx

hope everyone is ok any more news re tony and caz?

thinking of u all xxx

nina xxxx

Hi Rose, I know exactly what you mean about parking! Luckily Hillingdon Hosp is a 15 min walk and there is a bus to Mount Vernon so if i haven't got the car i can get there easily enough. But even with the car parking tokens at £2 a time, I was thinking about those who are on a limited budget, thats £10 a week - a hell of a lot of money on a small budget. I haven't been too bad to be honest with the chemo and I am counting the days. I have a break around the time of my birthday so i have saved a bottle of champagne and then will have to behave again before the rads start.

Nina I can't believe your chemo has finished - i don't know where the time has gone! I am so pleased for you - chemo makes us all feel a bit rubbish. I saw the doc yesterday with rgards to the pills for sickness as the steriods made me so depressed. I told him i take half the dose and step up the domperidone a bit. so he gave me 50mg of cyclizine.  I haven't taken any yet only side effects include hallucinations. i feel spaced out enough for the first four to five days without imagining aliens talking to me! I think perhaps i will just try and manage, incase someone shuts me in the mental institution.

I met a lovely lady yessterday who sadly lost her mum last week to cancer - she was on her second chemo, the same age as me and very positive although tearful. She has booked herself ont he look better course and we have both been told March, so i really hope she is on the same one as me. She also doesnt live that far away so i hope i can take her for the course and maybe go for lunch and make a day of it. It reminded me once again how wile i was complaining to the doc about possible rad burns and different appearance in my boobs and all the other vanity issues that they are isignificant when someone else is having a hard time. One thing I can say about this bloody awful disease is that it humbles you and opens your heart. It does so change us all.

And with that said, I read though nearly all the posts again here today and the love and strength that always comes through regardless of our own feelings is truely amazing. I wish you all well and look forward to hearing your news.

with love,

sara xx

Hi lee well done to you for getting back to work, have you went back full time or part? I've got a line till end of feb then using my hols for march then phasing gently in April. I really need to get to the gym, my bones are so stiff with all the treatment, lack of oestrogen they say. My boob really red and peeling, the gel hosp supply is really good, I usually tan but seemingly that goes for nothing, I've been braless for a couple of weeks now lol, just wearing boob tube tops. Happy birthday leonie hope you had a fab day. Colette x

Hi Sara I got 6 weeks the last week is a boost week where they concentrate only where tumour was, so you may be ok with 3 as it was about 4th week mine starting getting red, everybody diff so you never know, hope you don't. Good luck. Colette x

Hi Sara I got 6 weeks the last week is a boost week where they concentrate only where tumour was, so you may be ok with 3 as it was about 4th week mine starting getting red, everybody diff so you never know, hope you don't. Good luck. Colette x