hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
Hi lee how you doing? I must admit I've had a tough few days feeling sorry for myself, I can't get used to this wig at all, can't wait for my hair to grow back. Last chemo on wed so looking forward to seeing the light at the end of the tunnel. Do you have facebook, if so add me Colette Jameson and we can compare notes lol x
hi sara i think we have figured befor that our paths are fairly similar
I started fec had my first one 12 days ago and so far so good next one is monday week
apperntly there are 2 regiemes a or b one without the t bit the others were taliking about i am haven 6 fec only (no t bit )
mcmillian website talks a bit more in detail
.i was dreading it but apart from a liitle bit tired and nauseated about 3 days after i am preaty much same
(iam off work ) but that was advised as i am anurse and they worried that i would be at risk of infection. but i feel i could be working but i will do as told for change .
i keep busy and active while i can i know it might get worse but no complaints so far !1
also i still have my hair (for now )they reakon 3-4 weeks so we will see i did go look wigss not sure how feel about that felt bit of a wally!! but have scarfs ready in case.
i too was really worried about family but it has been fine they rally when called upon and friends are wonderful !!I have never been invited for so many luches i am goin to be fat as pig !!!
take care sweetie hope all goes well and remember we are all in this together !!
I am on the FEC-T chemo, so same as Colly. I have had 3 of the FEC and symptons similar to others. I was always sick on the first night but seemed better after so stuck with same anti sickness. Ginger beer, ginger biscuits helps when appetite down. Keep the fluids up as I suffered badly with constipation!! Not nice. Always feel a bit down the first week after the chemo, but after a week I feel better and my mood changes. Also get very hot and sweaty - like menopausal symptons. I am eating like a horse and have taken to baking cakes A rare event in our house!
I decided to give the hair a number one all over as soon as it started to fall out, which was about 3-4 weeks after first FEC. I have got a wig which I do wear when I go out but as soon as I walk in the house it goes on the post at the end of the stairs! Keep your head oiled, olive oil is good. I also had a PICC line put in as my veins are not good, it is a bit of a pain as I have to have it flushed every week and it is a constant reminder but it will save my veins getting damaged. I have to continue for a further 9 months after the T bit with herceptin, not sure if I will be able to keep the PICC line all that time!!
Like the others have said it soon passes, I cannot believe I am half way through the chemo already. I am a bit nervous about the second half from what Colly said but we all react differently so I will let you know how I go.
Try and carry on as normal, my ironing is piling up and the house is not as clean as it could be - who cares. Get out in the fresh air and socialise to take your mind off it.
I have spent the whole weekend watching the Ryder Cup and I am lucky enough to have a ticket for Sunday so look out for me I will be the baldy one!!!!
hi ann i too spent ALLL day watchin ryder cup !! i will def look out for u 2morrow my husband always moans i wont sit still and donothin so i didd all day
love watchin it have fun xx have heaps fun bring water proofs lets hope 4 win xx
Hi Ladies, Thankyou so much for sharing your experiences with me, it has made me feel better about the treatment. I don't think my other half really understands the hair thing as he keeps saying im being vain and me being here is far more important and so I get quite upset that he doesn't understand. I know he means to help - but hey no one is perfect, and normally he's a star. I am so grateful for you all listening when I need a moan especailly as most of it isn't c related. I don't socialise much as I like my own company and writing, but you have all made my life so much easier and i am very grateful. we all have so many feelings and fears and it never ceases to amaze me how much love and support radiates from this forum. I feel so much more positive now - just have to find some things to think of doing while i sit with the drip in. Knittting out of the question I think!! maybe the answer is to stay up all night reading writing knitting and then sleep all day at the hospital and dream of pleasant things.......imaginary carribean holiday anyone?.......
I feel really strange, I can look down at my scars and I can just about cope.... but when I caught sight of myself in a mirror I fell to bits and promptly moved all mirrors that showed lower than my face.... it just looks so wrong to me, I look deformed and i dont feel complete anymore,.
I feel like they cut my breasts off and then just shoved me to the side.
I dont know what to do next
I suppose if I knew what the next step is going to be, I would be better able to cope... but all I know is that the lymphatic fluid keeps building up in my chest cavity (where my breasts used to be) and I have to keep going and getting it drained.... but beyond that.... I dont have a clue
you have not been pushed aside atall! you are still you, that will never change your very attractive and you have personality, no one can take that away, everyone is supporting you and wishing you well. I have had a bad week. I rang my hospital on wednesday evening because my temp went up quite abit and i started to get flu sysmtoms, next thing i know im having needles stuck in every where for blood tests, they came back really low which meant that if i caught anything, i could of ended up seriously ill, then they took more bloods for my heiimaglobin which was very low so i ended up staying in until about 5.30 this evening. i feel fine now but it certainly frightened me!
When is your next appt?You will probably need about 6 weeks to heal before anything else happens but it would be nice to be told.Plenty of fruit and veg and Manuka honey is supposed to help healing (I find Tesco the cheapest)It is a shock,I just had the right side but it is wierd.Before you know it you will have recon and look fab.Take it easy and dont dwell too much if you can.Have you had the prothesis?I have some bra sites when you need them.
Take care sweetheart and dont forget to rant and rave here,we want to support you.Also the bcpals girls will help.
