hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x
congratulations rose to you n your family. at long last the little bundle has arrived. bless. thank god this week of radio has gone a lot better than the last. 2 n half weeks left til most of this nightmare is over. hope all the girls are starting to feel better. my thoughts are with you.
off to the beach soon. lots of love leonie xxxxxxxxxxx
just had my lump and nodes removed thursday (12th Aug) so will know my treatment shortly. I am expected to have radiotherapy and chemo but i thought radiotherapy came first, seems on here it is the other way around - perhaps I wasn't listening. I'm feeling a bit daunted at what comes next but more so for the effect it will have on the family - i worry too about not being the glamourous vital woman i was and will that change my realationship with my partner and so on. Although we are planning to get married. So much to talk about! it would appear you will be going through treatment at around the same time as me, so if you would like to stay in touch and discuss our good and bad days, please do !!! my email is simplysara1@hotmail.com
First can I thanks tony who directed me to this post, you don't know how much this has helped me. Thank you so much Tony.
Right Ladies, I have only just been diagnosed with breast cancer, I have still got to have my MRI so I don't even find out how far the cancer has spread until 27th August, and my operation to remove it is set for 1st september, I put a post on this board explaining how lost I was feeling, but after spending a full day reading all 16 pages of this post, I don't feel as scared. I know I am in for the long haul but after reading all your experiences, for the first time, I don't feel so alone. Don't get me wrong, hy husband has been brilliant, by my side every step of the way, but you know what I mean when I say alone.
I have laughed with you and even cried with you... but please know ladies, you have all helped me so much.
At the moment, it's the not knowing that is doing my head in, I have got a 20 year old son and a 14 year old daughter and at the moment, I am pretty positive, but worried too.
I am going to add my own story to this one if thats alright with you ladies, and hopefully my experiences will help other ladies as much as your experiences have helped me..... they say that every cloud has a silver lining.... wel please know, you ladies are my silver lining.
Thank you for being selfless enough to document how you feel
Everyone will play their part - your husband, son, daughter, family, friends, yourself...but its amazing how this cyber world of 'strangers' plays its part too.
Tony is best at the cyber hugs, but here's my attempt at one from us all (((((( ))))))
hi im teresa i have secondary breast cancer and on fourth chemo i know how u feel but it gets better my first was 2006 and i was clear for four years keep positive and look at all the good things in ur life im sure ur children keep i smiling god bless you x
I am feeling ok today, not as lost as I was, husband and kids are being brilliant, but like you say, a group of virtual strangers seem to be helping so much, but I think that's because you all know exactly how I feel.
I will be back on here tomorrow because at 3.30 tomorrow I got to go back to hospital for my lymph node biopsy result..... I got a beautiful dark purple massive bruise under my arm... lol
i know how you feel too. It is also hard when you are not sure whether to read stuff on line or not as not all of it relates to the individual and some of it is scary. However, this forum has helped me so much. I went through all the motions and get my results of the biopsy sentinel nodes next week. Then I find out what treatment i will have. To top it all, during the lumpectomy, my front crown got broken and today i went to the dentist to find it is irreplaceable. i will need implants but can't have them while going through the cancer treatment. I am also planning a wedding (no date set due to treatment) and was also worried about my hair. I have suddenly become vain! However, i opted today for a plate and will have implants next year. Best start saving!!
Today, I got my lovely daughter to take a picture of my lopsided (due to the band aid) and stained blue breast with the normal one also in view and then the underarm where the biopsy was taken. I couldn't find anything on the internet that really helped me to know what to expect. I am going to have more pictures taken by my daughter when they take the band aids off next week and continue to take weekly pics through the treatment. I thought this might help others, but also a diary will help me to express all my feelings.
Any others of you who would like to join me in a basic photo diary would I am sure help many others. I had visions of being hideously messed up and thought I'd have all sorts of negative feelings. I was worried about the lymph nodes being removed after I read about not lifting and weak arms. This is not strictly true, but what I read scared the heck out me. i don't always feel positive, but I am sure by expressing ourselves and being able to compare - to see we are not alone - we can be further united.
I like the idea of doing a photo diary... if what I'm going through helps other that are going through a similar sort of thing, then some good has come out of a bad experience.
Everybody on here talks about having chemo before an operation and you all seem to know what your treatment is going to entail..... with mine, I don't even know what operation I am having until the MRI results came through on the 27th of this month, and then I will find out what treatment I am going to have until after the operation on the 1st september.
The upside to all this waiting is my daughter will be back at school before my treatment starts, and I get a couple of weeks of the holiday to have fun with my daughter.
And if the worry of not knowing what cancer I have got and not knowing what treatment I am going to have is not enough..... there are the money worries to think about...... My husband suffers from depression and a debillitating disease in his hands and I am his carer (Irony) so we are on benefits and we have been told that I might not get disability living allowance as breast cancer is classed as temporary (Bloody red tape) We are in doncaster and have to travel all the way to Nottingham for an MRI, and then when I get to the radiotherapy stage of my treatment I will have to travel to Sheffield, 5 days a week for 5 weeks.... that's a lot of petrol money and parking............. But I'm getting a bit ahead of myself here.
Lymph node biopsy results tomorrow............................................ one day at a time
As for worry about losing your hair...... the one thing I have noticed from reading the posts on here is... All women worry about losing their hair!
That's one of the things that worries me too, as my hair is down the bottom of my back................. but I would wear a padded bra and walk around bald if it means being around to see my 14 year old daughter graduate from university, get married and have children.
The only way I can cope at the moment is to prioritise..... STAYING ALIVE....... and take one day at a time.
Writing all this down helps me to cope with the things that are happening to me.... and hopefully my experiences may help others going through the same
Cancer does leave you feeling pretty ***, and sometimes makes us look pretty ***.... So vanity is allowed
Sar, your wedding will be wonderful, wether you have your own hair or you're wearing a wig.... because you will have survived
Your fiance will know he is marrying a fighter and a survivor.......... and if cancer cant split you up..... nothing can.
So wear your scars with pride honey.... they mean you are here to tell your tale and help newbies like me.
Thank you for being brave enough to share you experiences
They have helped me and I am right at the start of this scarey ride
glad we're here to chat with you, sorry you've had to come on because of cancer, hope you are doing ok and Caroline, same to you, Congratulations Rose on the safe arrival of your grandaughter. Ive not been on for a few days, my lap top away getting fixed and I hate using this one of johns as its so slow. How are the rest of you girlies and tony too? Ive been ok this week, but i must admit this 3rd chemo session seems to have tired me out quite a bit moire than the first 2. Thats me finished the FEC next wed i will be onto the T, so 6/10 is my last chemo then onto my Radio. Ive had a sore neck right from the beginning of this treatment as though its like swollen glands and my wind pipe seems narrower as tho i need to chew my food into smaller pieces, weird i know, im going to mention it next week, i did say to nurse as i was worried cancer had spread but she just said this chemo is blasting anything thats there so stop worrying and that my margins were clear so it hasnt spread, but how do they know that and wehn treatment is over how do they know its all clear do they scan you or do they just surmise its clear? This is what i feel confused about, so any of you ladies that have finished your treatment what did they say to you to put your mind at rest? Ive just read so many stories about people whove had breast cancer 4 years ago and now its back, how does this happen, is it bad luck, or is it because the chemo hasnt done its job properly? I know i sound a right misery guts but ive been thinking about this a lot recently, i want to get over this and never go through it again, any replies much appreciated. Anyway hope you are all doing well, speak soon Col x
