hi i too would like to talk about breast cancer.

hi im 36 mother of 3 n diagnosed dec 23. ive had 2 ops n 5 of 6 chemo n finding it very hard at mo. feel so peed off n cant get rid of that feeling. would love to chat. x

Parents
  • Hi to each and everyone of you don't you think that we are all quite amazing to be able to even be able to come on here and tell our stories I feel like I'v made so many new friends.

    Anyway Leonie I'm so glad that you've managed to get some funding for nursery at least you know that Charley will be having a nice time whilst you gain some energy back. You really are having a rough time of it but how nie that you could get to the beach, I take it you live nearby to one. That must be lovely. As for having a looney doctor me too!! Just nice to be able to speak to someone who doesn't judge and you can say what you want about anything!!!!

    Don't know bout you lot but I have all different feelings creep up on me when I least expect them. People who are close to you want to see you positive all the time and tell you how well you look and now i'v lost my hair how much it suits me but no matter what personally I just don't feel remotely like the same person. People say losing hair and putting weight on are least of worries but it does alter how I feel about myself and has affected my confidence.

    Anyway each and everyone of you if I don't mention you by name doesn't mean I'm not acknowleding your messages but I do think about you all.We are all at different stages and will hopefully stick together through thick and thin.

    Take care and hope you are all ok

    love Lou

  • Well said Lou,

    There are so many of us on this site now .Good luck and bless you all and the lovely people who care for us.

    Rose xxx

  • Hi Rose, I've been staying with my brother the last week as he always cheers me up and his house is always busy so it keeps my mind of the sickness, the nurses have changed my tablets now so I don't feel so sick and my appetite has come back, but the dreaded hairloss has begun and its coming out thick and fast, i still don't know what to do, cut it all off!!! or wait and see how thin it becomes I really don't know what to do for the best anyway I got back yesterday and this morning when I read the messages I was so sad to see both Lonie and Patricia having a bad time, I guess I look up to them so much and knowing that they are so much further ahead than I, I just wished it would get easier for them x

    Well how are you and what's been happening in your life and how are you feeling, I haven't heard from Colly in a while so ..,COLLY! how ya doin girl xx

    I have missed everyone and I'm glad to be back

    lots of love lee xx

  • Hi Lee,

    Good to hear from you again and glad you had a break.I have had 2 weeks off treatment as I was very breathless and worn out and by the end felt almost normal.havent had such a clear head for a long time.Back on it now but feel better for the break.We are waiting for our grandaughter to appear.She is due next weekend and is our sons first.We have a 3 year old grandson and a 7 month old grandaughter with our daughter so I have a very good reason to fight on !!!

    It is awful to hear what the other girls are going through,especially when there are children as well.It is strange how different it is for everyone.Fingers crossed you get through with mimimum problems.

    Love Rose xxx

  • Hi Rose, Lee, Leonie, Tricia and all the other guys and gals, thanks for asking after me, I'm doing grand, no problems at all, the first 4 days after chemo I feel a bit queazy and tired and I had a few mouth ulcers but after that I feel good. I still have quite a lot of hair tho has become very thhi, but i clip it up at back and put a little hairband on and it looks fine, there is def too much to shave it off and to be honest that would be my biggest hurdle if I had to do that. Lee glad your starting to get your appetite back and Rose a little baby how beautiful, leonie and patricia hope you guys are doing well. John has been away in Turkey all week and is back fri night, ive really missed him but time has flown by. Take care loasdsa love Col xxx

  • Glad you are not suffering too much,it makes such a change!Hope it continues all through.

    Hope John brings you a fab prezzie ;)

    Rose xxx

  • nice to hear from you/about you. im so glad you dont seem to be suffering too much from the chemo. n im sorry about your hair lee but maybe you'll be more like colly. she seems to be hanging on to hers. when is next chemo for you both?

    lou where are you love? i hope you are not suffering too much. keep telling myself your busy n not feeling too bad but cant believe it til we hear from you. sending you lots of love n think of you often.

    love leonie xxxxxx

  • Hi Leonie, hows things with you? Im feeling grand and looking forward to John coming home tonight, still dont seem to be moulting so much with my hair, so the longer i hold on to it the better lol. Im due my 3rd chemo next wednesday then after that i only have 1 more FEC the E being the one that maked the hair fall out then the next 4 after that are the T or D as some call it, so ticking them off on the calender. Hope everyone is well and have a lovely weekend, weather not to great here today but hopefully pick up for the weekend, we always seem to have our summer in may/june up here in scotland, drives me mad the rain does. Love to you all. Col xxx

  • Hello Ladies

    Hope you do not mind me jumping in but I had my first lot of Taxatere last Friday, well I was not expecting the side effects that I got as when I had the Fec all was fine concidering. I found with the Tax I did not have any energy for a few days and everything seemed to be an effort even a walk to the shops, all my joints seemed to ache etc etc. Can anyone let me know how they felt on it or what to expect as I have another 3 to go and not looking forward to it, 8 weeks today and all chemo finished yipeeeeeeeee .

    Looking forward to any advise or help

    Take Care

    Littlesis

  • Hi Leonie,

    Good luck for your rads tomorrow.I hope you have no side effects and sail through it all.How are you coping with the school hols?Are the legs OK?I really hope the side effects are wearing off at last.

    Let us know how you get on.

    Take care.

    Rose xxxxx

  • Hi Leonie,

    Just a quickie to say good luck with the radiotherapy tomorrow. Hope you don't have to far to travel.

    Patricia x

  • Hi guys glad to see you are all coping so well, Lonie have missed you hope you are ok.... Colly I have gone for the chop, I decided with such masses of long b blonde hair coming out almost every day I was sick and tired of it, so off it came! and boy does it feel better my husband calls me his little GI Lee although the blonde version he he ,I am actually quite pleased with the look and boy does shower time go quick, actually first day I put a handful of shampoo on my hand and then stopped in my tracks and just burst out laughing at myself and ended up washing my entire body with that handful of shampoo lol. Anyway got chemo again tomorrow so will be 2 down and 4 to go.

    take good care of yourselves

    lots of love Lee xx

Reply
  • Hi guys glad to see you are all coping so well, Lonie have missed you hope you are ok.... Colly I have gone for the chop, I decided with such masses of long b blonde hair coming out almost every day I was sick and tired of it, so off it came! and boy does it feel better my husband calls me his little GI Lee although the blonde version he he ,I am actually quite pleased with the look and boy does shower time go quick, actually first day I put a handful of shampoo on my hand and then stopped in my tracks and just burst out laughing at myself and ended up washing my entire body with that handful of shampoo lol. Anyway got chemo again tomorrow so will be 2 down and 4 to go.

    take good care of yourselves

    lots of love Lee xx

Children
  • Wow Lee do you mean you've completely shaved off all your hair? I still have quite a bit of hair but it is very thin and you can see my scalp, dont think it will be much longer till its all out. Had my wig on around the house today and John came in for lunch, he says aw Ive got my sexy girlfriend back lol tho he does say im gorgeous even with the little bit of straggly hair i have left lol.Just got to get a bit of courage to wear it outside now, have you worn yours out lee? Im going for my 3rd chemo wednesday but Ive to have 8 sessions 4 of the FEC and 4 of the T or D as some call it, so you'll prob be ahead of me. Hope your well and hope everyone on here is well too. Love Col x

  • Hi there Colly, Yes Its all gone!

    I understand your reluctance to get rid of the hair but I feel so much better now, and I'm quite excited about all the new styles I can try out when it starts growing again, I shall try and get a picture uploaded so you can see over the next few days, I have worn the wig out and its very close to my old style but in the house I just wear my scarves and bandanas, I was really worried about people staring at me with the wig on but there are so many girls wandering around with hair pieces and extensions, that its really no big deal.

    You will know when the time is right for you xxx

    your doing amazing as you are

    lots of love lee xx

  • Well done you, I really dunno what to do, I keep thinking I should just shave it off then friends and family say no theres too much hair left at the mo, so I'll prob leave it another bit yet. We are going to go outwith our town to let me get used to wearing the wig where no one knows me, weird i know but what if it blows off? The style of wig I have is very similar to what I had tho it is a few shades darker blond than what i had, i rally do need to get over this hurdle but as you said lee I'll know when im ready. Thanks babe xx

  • well today I had my 2nd chemo 1 3rd of the way through!! I'm now sat at home after a very very long day at the hospital, staff shortages and all that stuff,,,, anyway I'm sat here with a tube coming out of my arm into a little plastic box containing a syringe full of anti sickness medicine, so now I'm hoping that this time I wont be so ill, got to have this for the next 48 hours and then the nurse takes it out and I try the tablets.

    Don't worry about the wig blowing off as there is wig tape that secures it firmly and remember this is about you and how you feel not your family and friends, do what is right for you.

    take care lots of love Lee xx

  • Hi girls

    Lee I went for my bloods today and yeehaa it is only 6 sessions of chemo ive to have so thats good news, i'll be finished 6 weeks earlier than I thought. Sorry to hear your feeling sick, I also feel yucky for first 4 days but not actually sick. Leonie lucky you living down cornwall way it is lovely down there. Hope everyone is well. love Col x