thyroid cancer

i found out 2 week before xmas i had thyoid cancer then they just left me to it ,just got a date on saturday im going back in for another operation in 2 weeks why do these things always happen to the good ones.the stress of all the waiting i no i will be fine its just the fear of the unknown ,i had the lump for 13 years i never ever thought i would get cancer ,i think its harder on the family i feel i need to stay stong for the ,xx

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  • Hi bubblymags,

    I'm not a great poster on forums but you sound like you could use some info. Just to let you know a little bit what to expect.

    Before RAI, I was only off meds for 2 weeks (I was taking T3 not T4 at the time). I felt tired but not ill and worked until the week before (some people don't, probably depends on the type of work you do).

    When I arrived at the hospital on a Monday morning I went up to the ward, and was shown my room which was at the end of a corridor. There was a window although it was too high to see out of. I had an "ensuite" bathroom, shower etc. The nurses were nice. The first thing they did was give me lunch! After lunch the physicist came and gave me "the drink". It didn't taste of anything much. I was pretty worried after taking it, but didn't really feel anything at all, not sick or anything. The nurses kept their distance though, but they brought me food and water regularly and said I could ring whenever I wanted anything. I could have visitors, although they had to stay behind a screen at the foot of the bed. The door to my room was left open, unless I wanted to close it, which I did at night. I was given disposable pyjamas and disposable towels for use after showering. The only side effect from the RAI was a slight odour, which disappeared after a day or two. The physicist measured my radiation levels on Tuesday and Wednesday, when I was allowed home, after having a scan, which didn't take long. I drank loads of water to clear the RAI from my system.

    After I went home I restarted medication and went back to work 2 weeks later. I have felt fine since then, although I go back for regular review.

    It really is the best treatment. The isolation for a couple of days is the worst thing, but hopefully you will have a phone and a TV and you can probably take in books and DVDs, although you won't get them back. Wishing you all the best.

  • hi thank u for your reply well ive got a week n a half to go then i go in for my treatment i told my wee boy i was going to manchester for a while so he is going to stay with his aunty, it will be hard on the monday morning droping him at school then knowing i wnt see him for over a week ,ive bn very tired bn off my thyroxine my face keeps on swellen up n going all rashy ,but as i keep saying its only for a short time being nt well then it will be all over with ,i hope you have bn fine after your treatment ,i will keep you posted ,fingers crossed all goes well

  • Hello, i was diagnosed with thyroid cancer at 12, im now 15 and in remission. My oncologist can't get rid of the cancer spots on my lungs but their inactive thankfully! (althought they have caused a lung disease:| ) I had 5 radio iodine treatments, so i know how hard it is them few weeks before. I thought i'd write as i don't know many people like me and its good to talk to others who are sharing the cancer experience! Best of luck!! Jordan xx

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  • Hello, i was diagnosed with thyroid cancer at 12, im now 15 and in remission. My oncologist can't get rid of the cancer spots on my lungs but their inactive thankfully! (althought they have caused a lung disease:| ) I had 5 radio iodine treatments, so i know how hard it is them few weeks before. I thought i'd write as i don't know many people like me and its good to talk to others who are sharing the cancer experience! Best of luck!! Jordan xx

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