hello there

i'm new to this forum..first time here in fact!

I was diagnosed with Follicular thyroid cancer 4 days before christmas in 2004, aged 33. I had my 2nd surgery in the new year 2005 and went on to radio active iodine treatment... i posted some info on that somewhere else on this forum earlier today.. let me know if you can t find it !

I had a 3rd surgery to deal with some scar tissue issues. I have been clear for 4 years. I see my consultant every 6 months.

I found the best way to deal with everything was by talking to people who had already had thyroid cancer.. i was lucky enough to meet a group of women who had all been there.. so i knew what to expect every step of the way.

Get back to me if i can be of any help.. now i've found it ,i will keep checking the forum..promise

Good luck and keep me posted

vix

hi there just got ur message thank u very much for replyn to me ,i go in on the 23rd march for my treatment i got some paperwrk on it ,ive to *** off my thyroxine this monday for 4 wks so im really dreadn that ,im findn it really hard to tell people in my family how im feeln so they dont worry about me but i think once i go into the beatson i will fall apart ,i no it will be all over in 6 wks time but it seems such a long time away .xx

hi there just got ur message thank u very much for replyn to me ,i go in on the 23rd march for my treatment i got some paperwrk on it ,ive to *** off my thyroxine this monday for 4 wks so im really dreadn that ,im findn it really hard to tell people in my family how im feeln so they dont worry about me but i think once i go into the beatson i will fall apart ,i no it will be all over in 6 wks time but it seems such a long time away .xx

hi bubblymags

as a carer of my wife with secondary bowel cancer (terminal) i found the drop in centres such as kilbride hospice red deer road east kilbride;;maggies centre opposite wishaw general and haven in blantyre all very good places just to drop in for a chat and share experiences

i am not familiar with any in the glasgow area but i'm sure there will be some ask your cancer specialist nurse or macmillan nurse

you mention the beatson clinic so i asume your from around these parts although of course you may be travelling from further afield

best of luck for 23rd march

chin up

Hi bubblymags

i'm sorry to hear you re finding it hard to find anyone to talk to. I remember that too. You need to find a group of cancer patients and survivors to talk too, can your hospital or GP point you to anyone in your area? Its really important to talk to people who have been through it.. Friends and family can be fantastically supportive but its talking to those who ve had the same treatments/ surgeries and more importantly all the feelings that you are experiencing that can really understand.

Did you find and read my post on radio iodine treatment on this forum.. you will find it very useful for march 23rd. If you cant find it, let me know..

Its hard to follow the iodine free diet, i used a recipe book i down loaded from Thyca, a thyroid cancer group in america. It was useful, but theres no getting away from the fact you re in for a very dull eating experience for a while. I went into my local health food shop in search of foods i could eat and had to enlist the help of the assistants as everything i picked up had banned stuff in it. At first they had a look of ' what is this ridiculous woman doing' as i'm sure they thought i was just following some faddy hollywood diet..it was when they saw me checking things on my thyroid cancer booklets that their attitude toward me changed and they all[ 3 of them] scoured the shelves for me. I left with some rice cakes with dark chocolate on them and a ginger cake bar. That was it! So read the thyca recipe book and follow that, not very exciting but at least you won t go hungry.

Let me know about the radio iodine treatment information i posted.. i'll send it again if you can t find it...

Try and find a support group. This forum is great but nothing beats the face to face i think.

Which area do you live in ?

You will get through this. X

Keep in touch , Vix x