Inflammatory breast cancer

Hi,

Today I was told my punch biopsy came back positive,  meaning the breast cancer has gone into my skin. Consultant didnt use the word "inflammatory" but did say this makes me more urgent...I was diagnosed 27th May but still waiting for treatment plan...they did say chemo first though. Be good to chat with anyone who has gone through/ is going through similar as I'm feeling very wobbly today x

Parents
  • Hello there. I was thinking about how you are doing. I am so surprised, how long everything is taking for you.  Considering we were both diagnosed o the same day.

    Have you started any oral medication yet. I started Letrozole as soon as I saw the breast surgeon in an effort to reduce the size of the tumour whilst I wait for surgery. I had had my MRI  with contrast 2 weeks ago  and a provisional date of the 5th August for surgery, (lumpectomyand sentinel node biopsy). I have had numerous support calls from the breast nurses. An offer of counselling if I  need it. 

    I just feel for you that your journey is delayed or slow in many ways. I think that frustration must be making it so hard for you to make plans on your everyday life.  Please keep pushing your team as much as you can to try and expedite things. 

    Best wishes 

  • Hello, glad things are moving for you. To be fair, mine has moved quite quickly this last week. I've had ct scan, echocardiogram, pre chemo assessment, bloods etc and I start chemo Tues ...bit scary but I feel well informed. Not looking forward to the side effects though but if it does the job and shrinks the tumour enough then it will be worth it. Look after yourself and keep in touch.

    Big hugs xx

  • Good luck for Tuesday Mothergoose.  Best advice I was given is to try and stick to your normal routine.  I did this throughout chemo, went for a walk, meals etc.  Obviously you can't keep to exactly the same routine but as much as you can.  It gave me a sense of control.  I didn't work when having chemo though.

    Lee x

  • Hi Mothergoose,

    I am glad to hear that you now have a date for chemo to start and have done all of the pre-chemo checks. Not everyone gets problems with chemo - it depends upon what type of chemo you have. Here's hoping that you find it all manafeable.

    Please keep in touch and let us know how you get on. We are always here for you.

    Kind regards,

    Jolamine xx

  • Thanks for the tips Lee and yes want to try and keep things as near normal as poss. I'll keep you posted xx

Reply Children
No Data