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Inflammatory breast cancer

Mothergoose58
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Hi,

Today I was told my punch biopsy came back positive,  meaning the breast cancer has gone into my skin. Consultant didnt use the word "inflammatory" but did say this makes me more urgent...I was diagnosed 27th May but still waiting for treatment plan...they did say chemo first though. Be good to chat with anyone who has gone through/ is going through similar as I'm feeling very wobbly today x

  • Offline in reply to leelaloo

    Hi Lee,

    Thanks for your reply and hopefully you're right re waiting a bit longer not making much difference. Feeling a little more upbeat and positive today. Just been for my CT scan to double check the adenoma so keeping everything crossed for that one. Hope all is good with you.

    Julie x

  • Offline in reply to Jolamine

    Thanks for your reassuring words Jolamine. Feeling more positive today and yes not even thinking about the surgery part of things just yet as that's a long way off. Your words are very reassuring though, much appreciated. 

    Julie x

  • Offline

    Hello there. I was thinking about how you are doing. I am so surprised, how long everything is taking for you.  Considering we were both diagnosed o the same day.

    Have you started any oral medication yet. I started Letrozole as soon as I saw the breast surgeon in an effort to reduce the size of the tumour whilst I wait for surgery. I had had my MRI  with contrast 2 weeks ago  and a provisional date of the 5th August for surgery, (lumpectomyand sentinel node biopsy). I have had numerous support calls from the breast nurses. An offer of counselling if I  need it. 

    I just feel for you that your journey is delayed or slow in many ways. I think that frustration must be making it so hard for you to make plans on your everyday life.  Please keep pushing your team as much as you can to try and expedite things. 

    Best wishes 

  • Offline in reply to Mintymo

    Hello, glad things are moving for you. To be fair, mine has moved quite quickly this last week. I've had ct scan, echocardiogram, pre chemo assessment, bloods etc and I start chemo Tues ...bit scary but I feel well informed. Not looking forward to the side effects though but if it does the job and shrinks the tumour enough then it will be worth it. Look after yourself and keep in touch.

    Big hugs xx

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