Is it possible for metastatic breast cancer to be a chronic illness rather than death sentence? Looking for stories of hope

Recently diagnosed with MBC ER+/HER2- Has come completely out of the blue as no symptoms other than tiredness leading up to Christmas (which isn’t unusual). Have been on Letrozole and Ribociclib with monthly Zoladex and Denosumab injections and feel fine. But am terrified of what this means long term (I have 2 young children and am 45). Hoping to hear some success stories and people managing to get into remission x

  • Hi GoingToBeatThis,  I am sorry to hear about your diagnosis.  I have same as you, have bone mets.  I am on same medication except not zoladex.  I was diagnosed in 2024.  When I first met my oncologist he asked me what I knew about my cancer.  I said I know it is terminal and he said no it is not terminal.  It is not curable but it is treatable.  I didn't know that I would see Christmas.  Now am in a much better place and have been on holiday to Portugal last year and going to Iceland this week.  I am living with this disease and have decided to live the best life I can.  I don't have young children though so that must be scary.  My cancer is now stable so that is good.  I thing you can phone the helpline on here tomorrow for someone to talk to.  I had counselling that Macmillan organised for me and it helped.  I am also doing online zoom courses through the cancer charity Penny Brohn and find these really helpful.  Sending you hugs and I am here if you want to chat.

    Lee x

  • Hi Lee, thank you so much for your message and so sorry you also have MBC. I think your approach is fantastic, it doesn’t mean we can’t go on and enjoy life and travel and do the things we want to do. I’m so glad your cancer is stable. I’m determined to get mine stable, too. The medication we’re on seems to be very effective and new drugs coming out all the time. We can do this! X

  • Hi GoingToBeatThis,

    A very warm welcome to the forum.

    I am so sorry to hear about your diagnosis, but I hope that your title indicates how you feel about this - the more positive you can be about the outcome, the better you'll cope with it. There are a number of people on this forum who have had unfavourable diagnosis/prognosis and many are continuing to "beat the odds". Many have been given a short-term prognosis, but are still here several decades later. Not all are in remission. Some rely on careful monitoring and medical help. Have you discussed with your care team exactly what your diagnosis means and what the outlook is likely to be? If you haven't already done so, this is the first place to start. It is usually best to write down any questions you have to ensure that you don't forget anything important and no question is too trivial to ask.

    Once you've got all the facts and possibilities to hand, you need time to take this all in. You are naturally going to be worried about your children too - what ages are they? At this stage you might find it helpful to talk to a counsellor. I attended a Maggie's centre and saw a counsellor there, which I found very helpful. There are a number of different services which provide free counselling sessions. One thing I found was that I had to 'gel' with the counsellor - if this doesn't happen, change to another one.

    The main thing to do is as Leelaloo suggests and "live the best life you can". Enjoy every moment and make memories with and for your children.

    You can do this! Please remember that we are always here for you.

    Kind regards,

    Jolamine xx