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Staring at the great wave rolling towards me - I was diagnosed with glioblastoma 2 weeks ago. Feeling quite alone. How do you stay positive?

Noise-n-mess
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Bit of an obscure title, reference to the Hokusai painting.

DX with GBM 2 weeks ago. Self employed, well was until the DX, can't now drive or work. No tears yet but I most feel sorry for my delightful wife who has just been burdened beyond belief. I didn't want this for her or me or us or my children.

I'm grateful for the love and support been shown to me. Feel quite alone right now, telling me to stay positive doesn't quite cut it. How do I stay positive? What is a mechanism to do that?

Hello and love to you all.

Male 62, father, will always try to do my best, whatever that might be.

  • Hello Noise-n-mess and thank you for posting,

    It's a great reference, as I can imagine it can sometimes feel like you're alone and this wave is coming towards you so thank you for being honest and open. Please know that you're not alone and there is support out there.

    Your medical team might be able to point you towards support available in your area and we have information on ways of coping and managing your wellbeing. You can find guidance around coping with brain tumours and how cancer can make you feel on our website.

    It sounds like you've got a lovely family around you, so don't be afraid to be open with them. You're not going to feel positive everyday, but talking with people close to you can help you feel less alone.

    I hope this helps in some way and do keep us updated,

    Moderator Anastasia

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    Hi Noise n mess.  I don't really know what to say to you.  I do know the fear on the unknown is very scary.  I had breast cancer in 2012 and had surgery, chemo, radiotherapy and then medication for 5 years.  It took me two years to cry afterwards.  Last year I was diagnosed with secondary breast cancer with mets in most of my bones, including pelvis, spine ribs and skull.  When I found out I was so scared and felt alone and my whole world was turned upside down.  This year I feel better because I have to, I dont want to give in to negative thoughts.  I do have a wonderful husband and great friends.  Staying positive takes a long time I think and we can't be positive all the time.  I have just turned 60.  I know I am rambling but I just wanted to let you know that you are not alone.  I am here.

    Lee x

  • Offline in reply to leelaloo

    I, too, knew the fear, of the unknown. I send my support.

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