If you enter the words lobular cancer in the grey 'search forum' box at the top of this webpage you will be presented with a list of all the discussions about this type of cancer that are on the forum. If there are any that resonate you with, then don't hesitate to reach out to our members by clicking on the pink reply button underneath their post - just keep in mind the date the post was made as the more recent it is, the higher the chance of receiving a reply.
Hopefully some of our members will respond to you here as well but if you have any other questions about lobular cancer you can give our team of cancer nurses a call on 0808 800 4040, Monday - Friday between 9a.m - 5p.m. They're very insightful and will do all they can to give you any further information and insight you are seeking at this time.
I hope this helps and you are able to connect with others who are on this journey soon.
Hi Pink I had chemo for lobular cancer 12 years ago. This time it has spread into my bones so I am on exemastane, ribociclib and denosumab. What trial drug are you on?
I have this type of cancer and have been told the liver, lungs and bones are the first to be hit if it comes back. What symptoms had you to know it was in your bones? What was the time frame between first diagnosis and next episode?
Hi Mazza I had lobular cancer in 2013 and had lumpectomy, chemo then radiotherapy. Was on tamoxifen/letrazole for 5 years , I was 47. Last year I had hip and back pain and had MRI and now been diagnosed with secondary breast cancer in pelvis, hips, spine, ribs and skull. So it has been 12 years since my first diagnosis. Yes this cancer can come back but it doesn't mean that it will. Not everyone has a reoccurrence Are you having treatment at the moment?
