Lobular cancer

Does anyone else have this? 

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  • Hi Pink I had chemo for lobular cancer 12 years ago.  This time it has spread into my bones so I am on exemastane, ribociclib and denosumab.  What trial drug are you on?

    Lee x

  • I have this type of cancer and have been told the liver, lungs and bones are the first to be hit if it comes back. What symptoms had you to know it was in your bones? What was the time frame between first diagnosis and next episode?

  • Hi Mazza I had lobular cancer in 2013 and had lumpectomy, chemo then radiotherapy.  Was on tamoxifen/letrazole for 5 years , I was 47.  Last year I had hip and back pain and had MRI and now been diagnosed with secondary breast cancer in pelvis, hips, spine, ribs and skull.  So it has been 12 years since my first diagnosis.  Yes this cancer can come back but it doesn't mean that it will.  Not everyone has a reoccurrence  Are you having treatment at the moment?

    Lee x.