Hi Sprinkles,  I am so sorry that you find yourself on this horrible journey.  I have metastatic breast cancer too with mets in pelvis,, spine and ribs.  I have just finished my second cycle of Ribociclib and start again on Friday.  I am also off work and dont see me going back to be honest.  I seem to be okay generally and not many side effects.  I do make myself go for a walk every day.  I find that the walking helps (even if you dont think so at the time).  If I dont go for a walk every day, the pain seems to be much worse.  I really hope that your side effects get better. and wish you well.  Sending you hugs .

Lee X

Hello Lee,

We seem very similar and I'm about 2 weeks behind you with my treatment. 

I will find it very hard to give up work if it comes to that. I miss it a lot. I just assumed I'd be able to live an almost normal life but with cancer. Clearly I was misguided, esp at this point in my treatment.  

You said that you doubt you'll get back to work,  do you mind me asking how old you are?

Hello Lee,

We seem very similar and I'm about 2 weeks behind you with my treatment. 

I will find it very hard to give up work if it comes to that. I miss it a lot. I just assumed I'd be able to live an almost normal life but with cancer. Clearly I was misguided, esp at this point in my treatment.  

You said that you doubt you'll get back to work,  do you mind me asking how old you are?

Hi Sprinkles,

No I don't mind at all, I am 59 and work in the jobcentre and have done so for 21 years.  The first time I had stage 3 breast cancer was 12 years ago and I was off work for 1 year about.  I suppose I am lucky in that we get 6 months full pay and 6 months half pay.  I dont know if I will return to work but at this point I cant see it.  I am living an almost normal life except the work.  I go shopping, for meals to pubs etc.  I am a lot slower than I used to be but still keep active.  Hopefully as your treatment continues, you will start to feel better, I hope so.  What kind of work do you do?  Sending hugs.

Lee x

Hi Lee,

I'd take that kind of lifestyle if I could. I'm still in a lot of pain and unable to do those day to day things. 

I had an op on my spine following lots of back pain so I'm still trying to get fit again following that. 

A few weeks ago i was feeling good, and strong, but now I'm just tired and achey.

I'm a receptionist, so if I can do any job then it's a sit down computer job like I have. Fingers crossed things get better. 

Hi Sprinkles, no wonder you are still in lots of pain, a back operation.  What is to do with the cancer or unrelated.  I really hope you feel better soon, one day at a time.  Take care, here if you need to chat.

Leex