Living with Thymic Cancer and Myasthenia Gravis

I was hoping to speak to any individuals who might also be dealing with Thymic Cancer and MG.

It would be great to speak to people who understand the daily struggles, the affect it’s having on loved ones, the mental impact and anything else that comes with these *** conditions. 

cheers 

Parents
  • Hello Adoasc, 

    A warm welcome to our friendly forum - and this is really what our forum is for, bringing together people who may never have met otherwise but who share the same - often rare - condition. Here you will meet others who understand the same daily struggles, the mental impact and how living with thymic cancer can affect your life and that of your loved ones. Cancer of the thymus gland is rare and apparently "around 30 out of 100 people with thymoma (30%) have other conditions such as myasthenia gravis (MG"). As you know, MG is a rare condition that affects the immune system and causes muscle weakness.

    I did a little bit of digging around the forum looking for other members who may have been diagnosed with thymic cancer before and/or been affected by myasthenia gravis. I have found for example  who posted her thymic cancer story a few months ago or more recently I remember responding to  who posted this thread about being diagnosed with thymic carcinoma. They are just a couple of examples but past threads on thymic cancer but don't hesitate to respond to them if you would like to do so. I thought  I would also mention a member whose username is  who mentioned in this thread having Lambert-Eaton myasthenia syndrome and Myasthenia Gravis - again don't hesitate to reply to them and share your own experience of MG. 

    I hope this helps a little and that you will hear from others shortly who have been affected by these conditions. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

Reply
  • Hello Adoasc, 

    A warm welcome to our friendly forum - and this is really what our forum is for, bringing together people who may never have met otherwise but who share the same - often rare - condition. Here you will meet others who understand the same daily struggles, the mental impact and how living with thymic cancer can affect your life and that of your loved ones. Cancer of the thymus gland is rare and apparently "around 30 out of 100 people with thymoma (30%) have other conditions such as myasthenia gravis (MG"). As you know, MG is a rare condition that affects the immune system and causes muscle weakness.

    I did a little bit of digging around the forum looking for other members who may have been diagnosed with thymic cancer before and/or been affected by myasthenia gravis. I have found for example  who posted her thymic cancer story a few months ago or more recently I remember responding to  who posted this thread about being diagnosed with thymic carcinoma. They are just a couple of examples but past threads on thymic cancer but don't hesitate to respond to them if you would like to do so. I thought  I would also mention a member whose username is  who mentioned in this thread having Lambert-Eaton myasthenia syndrome and Myasthenia Gravis - again don't hesitate to reply to them and share your own experience of MG. 

    I hope this helps a little and that you will hear from others shortly who have been affected by these conditions. 

    Best wishes, 

    Lucie, Cancer Chat Moderator

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