Hello everyone,
I am new to this group and just wondered if anyone else has been given the diagnosis of Thymic Carcinoma?
I was told it is very rare, but how rare?
I've had palliative chemotherapy, which didn't help. Then I had immunotherapy, that didn't help either. In July my consultant told me there wasn't anything else that could be done and I was being referred to the end of life care team.
A week later I had an urgent referral to see a "guru in the field of TC," He looked at my CT scans and notes and agreed to give me a 2 week course of high dosage radiotherapy.
Just before Christmas I had my 3 month scan (first since the radiotherapy ended) and was told that my tumour had strunk from 17.5cm to 12cm. Having had nothing but bad news since my diagnosis in December 2022, to say I was emotional is an understatement.
Today, I have had another scan to see how things are going. The best result for me would be No Change, or even a bit more shrinkage. I know I'm living on borrowed time, and ever day is precious extention. But cancer absolutely sucks doesn't it? Your whole world is turned upside down in a heartbeat, all the plans you thought you'd have time to do, now becomes more important to achieve than ever, if at all.
But despite all the sadness, heartache and hopelessness, I can't give in. I have to continue to fight with positively, in the hope my resilience will help me carry on a bit longer and give me more time with my amazing husband and family. I had never considered for one moment that I wouldn't be around to see my gorgeous grandchildren finish school, go to their school prom, maybe university, their first boy or girl friend, the list is endless.
So for now it's a waiting game until I get my results in 10 days time! I've never been very a very patient person, this a skill I'm having to learn!
