Prostrate Cancer

I have Gleason 10 castrate resistant prostrate cancer 

S4 M1 N1 and would like to contact someone with a similar condition to compare treatment and life expectancy 

Parents
  • Hi Victoria93 and a warm welcome to the forum though sorry you have to be here. My stats are T4 N2 M1a, Gleason 10 (9.88 to be precise), intraductal adenocarcinoma, metastatic, advanced prostate cancer with large cribriform pattern. Diagnosed June 2022,

    Eddie

  • Thanks Eddie 

    Its great to speak to you I was diagnosed July 22 I am on Enzalutamide 4 tablets daily and Firmagon injection monthly from the hospital

    plus Mistletoe that I augment my treatment 

    I refused chemotherapy  how is your health and what is your treatment protocol 

    How are you feeling 

    Would you like to talk sometime 

  • Hi Victoria93, sorry i took so long, I am doing pretty well, Treatment  June 2022 HT injections "prostap 11.25ml" every 3 months recently extended to Sept 2025. RT April 2023, 20  fractions, 70 gy total. that will be all the treatment i will have. Chemotherapy and surgery, other than minor surgery not an option due too a weak heart, I am happy to talk, though my bedtime now, i would like to hear about the mistletoe, catch up soon.

    Eddie

  • Hi Eddie

    Is your treatment Hormone only 

    I don’t recognise any of your protocol 

    The Mistletoe is a request you have to 

    make via the NHS 

    I am 64 what is your age 

    Haven’t you been given any life expectancy  

    Hope to hear from you soon 

    All the best 

  • Hi Victoria93, Yes HT treatment only, had RT which you can only have once to the area treated, and for medial reasons, heart, chemo and surgery not an option, I was in healthcare 15 years and di 5 in palliative cancer, so know whatever life expectancy your doctor gives you is an educated guess .I am 58, two questions, why mistletoe and what do you mean by my protocol, i am happy to share any information with you, best wishes.

    Eddie

  • Hi Eddie

    Mistletoe is extremely popular for cancer treatment especially in Germany 

    Protocol is your treatment plan in the UK we are very backwards in our cancer treatments 

    Its mainly chemo RT and hormone replacement

    Im other countries they have extensive treatment plans using Mistletoe Ozone Dendritic Cell Treatment LAK Lymphocite T Cell Treatment  Car T treatment 

    Plus IV treatment with B17 VitC plus Michondroial Enhancement High dose Melatonin 

    God bless

  • hi Victoria93, to be honest i know only a little about the treatments you mentioned and would doubt their availability on the NHS, but will look into them as i do like studying., the mistletoe treatment especially, best wishes.

    Eddie

Reply Children
  • Offline in reply to eddiel Unpublished Reply

    Hi Eddie

    My Mistletoe is on the NHS 

    From the Integrative Health Unit 

    next to the Beatson Cancer Centre 

    In Glasgow I have bid reservations 

    about this site and the knowledge and experience of the moderators