Hi Victoria93 and a warm welcome to the forum though sorry you have to be here. My stats are T4 N2 M1a, Gleason 10 (9.88 to be precise), intraductal adenocarcinoma, metastatic, advanced prostate cancer with large cribriform pattern. Diagnosed June 2022,

Eddie

Thanks Eddie 

Its great to speak to you I was diagnosed July 22 I am on Enzalutamide 4 tablets daily and Firmagon injection monthly from the hospital

plus Mistletoe that I augment my treatment 

I refused chemotherapy  how is your health and what is your treatment protocol 

How are you feeling 

Would you like to talk sometime 

Hi Eddie

Just wondered if you got my reply 

Hi Victoria93, sorry i took so long, I am doing pretty well, Treatment  June 2022 HT injections "prostap 11.25ml" every 3 months recently extended to Sept 2025. RT April 2023, 20  fractions, 70 gy total. that will be all the treatment i will have. Chemotherapy and surgery, other than minor surgery not an option due too a weak heart, I am happy to talk, though my bedtime now, i would like to hear about the mistletoe, catch up soon.

Eddie

Hi Victoria93, Yes HT treatment only, had RT which you can only have once to the area treated, and for medial reasons, heart, chemo and surgery not an option, I was in healthcare 15 years and di 5 in palliative cancer, so know whatever life expectancy your doctor gives you is an educated guess .I am 58, two questions, why mistletoe and what do you mean by my protocol, i am happy to share any information with you, best wishes.

Eddie

Hi Eddie

Mistletoe is extremely popular for cancer treatment especially in Germany 

Protocol is your treatment plan in the UK we are very backwards in our cancer treatments 

Its mainly chemo RT and hormone replacement

Im other countries they have extensive treatment plans using Mistletoe Ozone Dendritic Cell Treatment LAK Lymphocite T Cell Treatment  Car T treatment 

Plus IV treatment with B17 VitC plus Michondroial Enhancement High dose Melatonin 

God bless

hi Victoria93, to be honest i know only a little about the treatments you mentioned and would doubt their availability on the NHS, but will look into them as i do like studying., the mistletoe treatment especially, best wishes.

Eddie

Hello Victoria93,

Thank you for sharing your insights on alternative cancer therapies. While alternative treatments like Mistletoe therapy and others you mentioned may have gained attention in certain regions, it's important to approach them with caution and a critical eye. For example, you might want to read this article Mistletoe as a treatment for cancer from BMJ which discusses the importance of evidence based medicine in cancer treatment and covers a variety of side effects this treatment can have on a patient. 

We also have a page on our website about the safety of complementary and alternative therapies which might be hepful to read.

While we believe every cancer patient has the right to decide what, if any, line of treatment they wish to pursue, there’s growing evidence that cancer misinformation can be harmful and what might have worked for you may not work from someone else so if anyone is considering using complementary or alternative therapies is vitally important that they speak with their doctor, GP or specialist nurse before doing so.

I hope this helps.

With best wishes,

Renata, Cancer Chat Moderator.

Hello Renata and thank you foe your advice, always appreciated, have done a little research and  can't find much science to support them, take care.

Eddie