Advanced Poorly Differentiated and Differentiated Thyroid Cancer - is there anybody out there with the same diagnosis?

Hi,

I'd like to connect with anyone living with advanced thyroid cancer (non- Medullary).

Many thanks.

Parents
  • Hi I have papillary thyroid cancer, diagnosed 2016 with lymph nodes mets and then lung mets diagnosed 2021 (but possibly there since 2017 just too tiny to see). I've had 2 RAIs, unknown if the last one worked my scans are stable, tiny nodules in lungs, no reoccurrence in neck, thyroglobulin under ten but fluctuating. Recently identified as being RET positive. Happy to answer any questions you have as I know it's a rare cancer and can be very lonely x

Reply
  • Hi I have papillary thyroid cancer, diagnosed 2016 with lymph nodes mets and then lung mets diagnosed 2021 (but possibly there since 2017 just too tiny to see). I've had 2 RAIs, unknown if the last one worked my scans are stable, tiny nodules in lungs, no reoccurrence in neck, thyroglobulin under ten but fluctuating. Recently identified as being RET positive. Happy to answer any questions you have as I know it's a rare cancer and can be very lonely x

Children