Hi everyone,
I was diagnosed with papillary thyroid cancer in 2016, it had spread to lymph nodes at this time. I had a full thyroidectomy, RAI and another neck dissection a few months later. 5 years went by and my thyroglobulin remained elevated and slightly creeping up from around 3 post surgery to 5ish. I pushed for a CT scan in 2022 as I was feeling anxious and was told that I had small volume lung mets in both lungs, the biggest measuring 3mm. I had another round of RAI in May 2022 and just found out last week that it didn't work and I am likely RAI refractory.
I am absolutely terrified, they are arranging an ultrasound to check my neck bed and another ct scan. My thyroglobulin has gone upto 6.4 from 5.2 in six months. My tsh wasn't suppressed for a while so I'm wondering if this could be it.
My nurse told me I am not palliative and it's not curable but I can be treated. I think the plan is to watch and wait until my lung mets cause symptoms and then start on lenvatinib, as the side effects are not great. I am 32 and wanting to try for a baby soon, which my nurse has said I can after my scans.
I'm just so scared I can barley function, I'm not eating and crying all the time. I've been through so many cancer hurdles but this one seems to much. Any advice? X
