Newly diagnosed

I had a colonoscopy today and have been told I have cancer, will need a CT scan and then they will decide what happens next. I’m just trying to get my head round it and needed to get in touch with others. Any advice would be gratefully appreciated. 

  • Hi Beverly, I’ve recently been diagnosed with lung cancer and I’m still waiting for it to hit me. My daughter has been wonderful and I’m worried she’s taking all the stress. I sincerely hope things go smoothly for you and that you get some information soon, at least then you will know what you are dealing with x

  • Hi I’ve just been told I’ve got a 13mm suspicious nodule on my lung it wasn’t there 10 mths ago when I had a scan before, but I’ve had two scans in the last 3 mths and it’s still there  , I’m being sent for a heart scan and a PET Scan.this week Although so far they haven’t said it’s cancer, they are saying they can’t rule it out. 

  • Hi Beverley, my husband was diagnosed last week with lung cancer following a CT scan of his abdomen and chest. They had noticed " metastatic changes" in a routine MRI after he had a benign tumour removed from his spine in July. He waited 3½ weeks for the CT results and as you can imagine, we are devastated at this development. He has an appointment today to meet the respiratory Dr taking over his care, but just the fact they have asked him to ensure he has his wife, partner or a family member with him at the meeting, fills me with dread. I'm trying to keep my sensible nurses head on, but it's not working. I'm frightened, shocked and broken for him. The thing is, with this forum, nobody is alone and everyone will totally understand how each other is feeling!

  • Hi Cuddly_Moon thank you for responding. I worry about how my husband will cope. I know I’m grateful I’m not on my own but it’s the waiting which is worse x

  • Hi Scottishgranny it is devastating have no such awful news isn’t it. I thing my husband and I are feeling everything that you’re feeling. I’m pleased I found this forum as it’s good to know there’s somewhere safe to talk. Stay strong today   

  • Hi thank you for responding it’s not easy is it waiting without knowing what you’re dealing with. I hope you get a positive outcome soon. 

  • Hi I was diagnosed  with the same in Nov 23 had my surgery in Jan.  Now waiting to see what happens next.  Take each day as it comes.  Do not ignore your feelings good or bad.  

  • Hi Jahaan2000 thank you for sharing that. It’s very helpful and important advice, just hard isn’t it. I hope your recovery goes well. 

  • Sorry to hear about your diagnosis. I've been exactly where you are (cancer found in colonoscopy in Jan,  complete shock) and in many ways this bit - waiting for the scans, then waiting for the results and to find out what's next - was the worst part. Once I knew exactly what I was dealing with and there was a plan in place to deal with it, things felt easier.

    Hopefully your scan appointment will come through soon - don't be afraid to chase if it doesn't. 

    Good luck xx

  • Hi thank you for your message. I’ve just heard that I have a scan booked for Friday. The specialist nurse at the hospital has been good and talked me through the process. As you say once you know what you’re dealing with then things should feel easier.

    i hope that your treatment is going ok and thank you again for responding it certainly helps to hear from other people. xx