Hopeless most of the time

Hello everyone

 Reaching out and wondering if anyone else is unable to see a positive future.

 I've had s mastectomy, chemo and will start radiotherapy soon.

It all seems never ending and gloomy.

 I've been chatting with a cancer psychologist and have been journaling and practicing CBT but ultimately I feel hopeless.

 Feel like my life changed forever upon receiving diagnosis and that really I have no future. 
Constantly scared of recurrence and spread, and can't get this out  of my head.

I apologise in advance for the gloomy nature of my post and am happy to delete if need be as I don't want to upset anyone. Just really really struggling.

 If you have read this, I thank you xx

Parents
  • Hi Jayjay, I know exactly how you feel - it’s difficult to feel positive when all you can see are hurdles! 
    I was diagnosed with ovarian cancer in 2020 and whilst I’m currently on chemo for my 2nd recurrence, I’m still here and most of the time I carry on as normal. 
    That doesn’t mean that I don’t grieve for the life I thought I would have (though to be honest, before I was diagnosed I took my good health for granted and never thought I would get cancer!) but it has made me appreciate what I’ve got now and to make the most of each day. Reading that back, I probably sound a bit preachy and I don’t mean to be! You will have good days and bad days but as time goes by I think your confidence will return. I had nearly 2 years before my 1st recurrence and ovarian cancer is notoriously sneaky! 
    I’ll leave you on a positive note, my sister had breast cancer 15 years ago and has never had a recurrence so I hope that helps boost your mood a little. Take care xx

  • Dear EllyC. I too have ovarian cancer and am awaiting  mri for possible second recurrence. I’m terrified. I’ve also got to go to breast clinic. I had liver resection for my first recurrence. 

  • Hi Durhamlass,  it’s relentless isn’t it? I’m at clinic on Monday for the results of a chest CT scan as I’ve developed a pleural effusion around my right lung which unfortunately doesn’t seem to be responding to the chemo the way the disease in my abdomen has - that’s now stable. I’ve been on chemo for this recurrence since October & it looks like I may have to change to another treatment and start 6 months more of chemo! 
    I hope you get your scan appointment through soon & that it’s all clear - fingers (and everything else) crossed for you xx

Reply
  • Hi Durhamlass,  it’s relentless isn’t it? I’m at clinic on Monday for the results of a chest CT scan as I’ve developed a pleural effusion around my right lung which unfortunately doesn’t seem to be responding to the chemo the way the disease in my abdomen has - that’s now stable. I’ve been on chemo for this recurrence since October & it looks like I may have to change to another treatment and start 6 months more of chemo! 
    I hope you get your scan appointment through soon & that it’s all clear - fingers (and everything else) crossed for you xx

Children
  • Thank you. It’s taken a lot for me to reach out, but I just feel a desperate need to connect with others who understand what it’s like. I’ve been four years clear since liver resection in 2020, so if this is a recurrence, it will be a bitter pill to swallow. Also on Ct they found an area in my breast that needs checking out. My clinic appointment would have been today but for some reason the entire clinic has been cancelled. More waiting. So difficult. I hope your Ct results are good. I’m going for MRI with contrast on Monday.