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Anyone who has metastic breast cancer please help

Veroni1
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Hi

 Can u lovely people help me please. 

 I have since March been having tests to see why I have lost over 2 stone in 6 months without dieting or anything. I had a chest xray which I was told would be a cpl weeks for results but now this was done on a Friday and my gp called the following tuesday and said the results were back and she was sending me for a chest  ultrasound which turned out to be a ct scan yesterday.  I have other symptoms.  Fatigue. Can sleep for days on end if I allowed myself to

   Been seeing a physio due to joint and muscle pain in legs and knees from all the mess but he said that it's coming from my pelvic area.  I have had a pain in my lower back but just put it down as normal back pain.

So what I

 Asking I guess is for those that had been diagnosed with metastic breast cancer ,how did you discover it  and what tests did u have

 

  • Offline in reply to ISABEEBEE

    My story exactly. GP only responded with telephone messages to refer me to physio. Again it was physio that wrote to my GP to suggest I have imagery especially with history of breast cancer. How the GP never thought to do this is beyond me. Eventually after an X-ray and ct scan I went to A&E in an ambulance in sever pain to be given the result that I had tumours in my spine hips and ribs. 
    I’m now on targeted chemo tablets and hormone suppressant therapy and Denosumab  for stage 4 metastasis. I’m responding well and less pain and more mobile.,

    I would urge anyone with a previous cancer to ask the GP for scan to determine cause of back pain and not simply go to physio sessions . 
    Don’t be afraid to ask. If I had any clue that after 8 years the lumpectomy I had thought  had successfully cured my cancer could have metastasised I would have insisted that tests were done 

    in reality no information was given to me about how the cancer could recur I thought I was cured. 

  • Offline in reply to DeniseP

    My story exactly too.  I had stage three breast cancer three years ago and thought I was cured.  Went to doctor in March this year with hip and back pain.  Was referred to physio.  The physio referred me for MRI and they have found out that I have metastatic  cancer in my spine and pelvis.  It is now October and still not had any treatment.  Waiting for a breast MRI.  

  • Offline in reply to leelaloo

    I mean twelve years ago I had breast cancer, not three.

  • Offline in reply to leelaloo

    Hi thanks for getting back. I've had a hell of a time. I had x-rays done and was diagnosed with oa on my knees hip wrists and neck. Had steroid injection to the worst knee in march there.  However I started having really bad pelvic pains that at times doubled me over. Got so bad I thought I may have appendicitis so went to hospital given orimorph for pain . X-ray showed my appendix was ok so sent home and told to get my GP to find out the cause.  So I did. Long story short . Had CT scan bloods q fit test. Bloods back I'm anemic scan showed an anomaly in the colon. Q fit came back very high 379. Had colonoscopy on wed there and have been told I have cancer in the hepatic flexur .funnily enough I did not have any polyps.which has me scared that it's metastatic from the breast cancer. Now I'm on the waiting train again. Will keep u all updated. Thanks for Ur advice

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