Anyone who has metastic breast cancer please help

Hi

 Can u lovely people help me please. 

 I have since March been having tests to see why I have lost over 2 stone in 6 months without dieting or anything. I had a chest xray which I was told would be a cpl weeks for results but now this was done on a Friday and my gp called the following tuesday and said the results were back and she was sending me for a chest  ultrasound which turned out to be a ct scan yesterday.  I have other symptoms.  Fatigue. Can sleep for days on end if I allowed myself to

   Been seeing a physio due to joint and muscle pain in legs and knees from all the mess but he said that it's coming from my pelvic area.  I have had a pain in my lower back but just put it down as normal back pain.

So what I

 Asking I guess is for those that had been diagnosed with metastic breast cancer ,how did you discover it  and what tests did u have

 

Parents
  • Hi there

    Mine was discovered by a MRI after months of having back pain. My GP had put it down to arthritis and did nothing but send me to a physio! Which of course did nothing. It was the physio who arranged for the MRI as she was surprised no tests had been done. The MRI showed multiple tumours in the spine.

    Had you already had breast cancer, or why do you think it could be bone mets?

  • My story exactly. GP only responded with telephone messages to refer me to physio. Again it was physio that wrote to my GP to suggest I have imagery especially with history of breast cancer. How the GP never thought to do this is beyond me. Eventually after an X-ray and ct scan I went to A&E in an ambulance in sever pain to be given the result that I had tumours in my spine hips and ribs. 
    I’m now on targeted chemo tablets and hormone suppressant therapy and Denosumab  for stage 4 metastasis. I’m responding well and less pain and more mobile.,

    I would urge anyone with a previous cancer to ask the GP for scan to determine cause of back pain and not simply go to physio sessions . 
    Don’t be afraid to ask. If I had any clue that after 8 years the lumpectomy I had thought  had successfully cured my cancer could have metastasised I would have insisted that tests were done 

    in reality no information was given to me about how the cancer could recur I thought I was cured. 

  • My story exactly too.  I had stage three breast cancer three years ago and thought I was cured.  Went to doctor in March this year with hip and back pain.  Was referred to physio.  The physio referred me for MRI and they have found out that I have metastatic  cancer in my spine and pelvis.  It is now October and still not had any treatment.  Waiting for a breast MRI.  

Reply
  • My story exactly too.  I had stage three breast cancer three years ago and thought I was cured.  Went to doctor in March this year with hip and back pain.  Was referred to physio.  The physio referred me for MRI and they have found out that I have metastatic  cancer in my spine and pelvis.  It is now October and still not had any treatment.  Waiting for a breast MRI.  

Children
  • I mean twelve years ago I had breast cancer, not three.

  • Hi thanks for getting back. I've had a hell of a time. I had x-rays done and was diagnosed with oa on my knees hip wrists and neck. Had steroid injection to the worst knee in march there.  However I started having really bad pelvic pains that at times doubled me over. Got so bad I thought I may have appendicitis so went to hospital given orimorph for pain . X-ray showed my appendix was ok so sent home and told to get my GP to find out the cause.  So I did. Long story short . Had CT scan bloods q fit test. Bloods back I'm anemic scan showed an anomaly in the colon. Q fit came back very high 379. Had colonoscopy on wed there and have been told I have cancer in the hepatic flexur .funnily enough I did not have any polyps.which has me scared that it's metastatic from the breast cancer. Now I'm on the waiting train again. Will keep u all updated. Thanks for Ur advice