So scared of hospitals and starting chemo

Hi, I don't know whether anyone can offer me any advice.

I am due to start chemo very soon (one session per week for 3 weeks then one week off).  The problem is that although I am a very confident person, I am having severe panic attacks at just the thought of it.  I have a fear of hospitals and suffer from anxiety and panic attacks.  I explained this to the oncologist and he made a request on my notes for a side room.  However, the nurse who called me for a pre-chemo interview was very rude and said he hadn't made a request for a side room and they wouldn't allow it anyway.  She also said that my daughter (who is my carer) is not allowed to stay with me during my chemo.  

I called the hospital 25 times yesterday as there was no answer at the chemo dept to discuss this further. Eventually, an assistant ward sister called me and said my daughter is definitely not allowed to accompany me.  She said I would be fine (how does she know this?).  She too was very abrupt and I spent yesterday evening having a total meltdown. 

I was booked to have a covid test today but the roads are like ice here and the journey to the hospital is 1.5 hours away.  I cancelled the appt as I daren't travel on the roads until the bad weather has passed.  The Admin person called me today and was so rude it was unbelievable.  I am not imagining this and can not believe the lack of care and understanding.  

Any advice as to how I can get on with my treatment and did any of you have anxiety/panic attacks before starting your chemo?  I hope not, but did any of you experience any rude nursing staff? 

 

Sorry for the rant but I'm desperate. 

  • Oh that just sucks :(  I did quite often find the same on chemo days but like I said I just consciously decided to go with the flow on the grounds they're so busy and we're all there with the same aim. I guess that's easier for me to say when I was fortunate to be treated by an absolute army of angels. Hang in there though and just find your own way through it, whatever that may be. Maybe call the macmillan helpline for support? Or do you have a named macmillan nurse you can approach for advice? It's so hard i know when you're in the middle of active treatment and feeling scared and *** already :(

    I'm doing as well as expected at this stage, thankyou for asking. I'm super tired still and feeling a little sorry for myself as I still can't eat properly and I was hoping I'd be able to by Xmas. My cancer was head and neck so the radiotherapy has caused burns in my mouth and throat. It's very close to being healed but not quite close enough to do the full Xmas pig out   I'm still here for Xmas though which is the positive thing I take from it. Things could have been a lot worse x

  • I have got a Macmillan named nurse and she said she knows how bad the staff are at the other hospital!  She described it as having a 'toxic' culture. 

    Oh well, guess there's not much I can do.  Even the Head of Department's secretary failed to return my call when she promised she would. 

    Good that you managed to get through Christmas - let's look forward to 2023 and keep each other going with the lovely people in this group. 

     

    xx

  • Yes let's. Maybe someone else can come up with something practical that could help that I cant but please know I will be thinking of you and cheering you on from a distance. Just keep on being strong and lean on your support network as heavily as you need to. Much love xx