Hi Billy,

This was my day : Well appointment over. The first thing the oncologist said there is no cure and it’s all inoperable and it’s stage 4. Then he proceeded to say there would be no chemo as I had no symptoms he would wait 3 months to see if the tumours grow. Well you could have picked me up off the floor. I then told him with all due respect that’s not accurate what you have just said I am on pain killers for the tumour that’s in my sacrum/pelvis, I do have symptoms. Then he handed me a box of tissues I was quite incensed and told him it’s not tissues I needed as I was not crying. I told him that I required a team round me that have not written me off, and there heart and soul are in it . I told him my treatment was a discussion of which my views will be included. At that he said what’s your job mam I said I’m retired. He then said yes but what was you job before you retired. I was shocked why he would ask this! I replied I don’t think that’s relevant but know this I’m highly intelligent, why I said that I don’t know maybe because I felt he had written me off. Long story short I will now be getting targeted radiotherapy for five days to target the tumour in my sacrum/pelvis. Ct scan before and after and further conversation regarding chemotherapy. He’s not sure the tumours in my lungs are cancer at this stage ! Xx 

Hi Rovey,

I can't sleep still up. There are many of us here. I think it's frightening at least that's how I feel. Honestly I'm trying to keep things normal. I don't know how long I have being blunt I've never asked for a prognosis. I've researched and feel I'm well informed. Apparently I had one of the tumours in 2020 and no one bothered to tell me. It was the radiologist  at showed me it on the Ct scan and said it was reported on at the time and it's grown since then!!! My point is that was two years ago so not sure if it had spread then or not. I think if you have a good team and they offer you treatment your off to a good start xx

Morning cath, really glad they are giving you treatment and could be changed later,.

Hopefully soon your mind will settle down to having treatment and you can relax and sleep more, remember you need sleep to feel healthy (sorry not really right word couldn't think of another).

Alot of people have a name for their uninvited guest some rather rude. 

Im having another bone scan on 17th, that will be 10 in 6 years checking what's going on as my cancer is on the move again,  im still sticking to my promise to my darling wife of over 50 years to look after her when we get old, she was always worried about me being nearly 14 years younger than her. 

We've another wet sunrise here. 

First thing i thought of when i was diagnosed was arrange funeral for both of us all paid and done with and the wills sorted., seems ages ago now. 

We're having a quiet Sunday, "hopefully ",eating drinking (nothing alcoholic) watching TV. 

Hope things go well for you and you can relax. 

Billy 

I'm impressed by your fighting spirit you are a warrier and that's the way it should be ,too many people give up the fight and accept what they say first off ,well you found out there was another way to do this and its well worth the effort you have nothing to lose ,the hardest part is getting someone to listen which you did I'm proud to say ,keep fighting keep pushing never ever give in 

Hi Billy, 

yes radiotherapy for 5 days in a row to target the tumour in my sacrum/pelvis that's the one giving me the pain and apparently the biggest tumour. 
 

think I will sleep when I think they are doing all they can to keep this at bay, I'm not convinced yet. 
 

you are a fighter I can feel it and I'm sure you will be here with wife to look after her. 
 

May I ask what treatment you have been on since your diagnosis?

Hi cath, i started with hormone therapy, injection every 3 months and daily tablets for life. And chemotherapy at beginning for 3 months every 3 weeks. Hormone therapy varies depending on cancer increase. 

Remember alot of the people will read your messages but not reply. 

Trying to keep positive is good Remember. 

Billy 

Hi, thank you for replying.

I just hope my oncologist is genuinely looking at treatment plans. At this moment in time I will give him the benifit  of the doubt . I don't like the wait and see if your cancer grows before we give you treatment, 

No problem you can chat with me anytime stay as strong as you can I'll be thinking about you ,All my Best Wishes xxx

Thank you, I will update when any news about treatment.