My husband has the opposite problem He was treated successfully with bcg for bladder cancer and he has been clear for 6 years Following blood appearing in his urine a couple of months ago a tumour was found in his ureter Kidney and ureter  removal  not an option as kidney on tumour free side has low function due to previous  kidney stones Consultant reluctant to do anything  other than monitor and laser recurrence whilst it remains  in ureter but it will at some stage get out and the treatment will be palliative 

Would you let me know what treatment you have had and the details of the trial

Good luck with you future bladder treatment 

best wishes 

Wilbert

Hi Wilbert

Just to let you know that my Ronnie did really well on his first BCG. In and out in 20 mins. Did not feel a thing and had no pain after at the loo. So i just hope the next one on Saturday goes as good as the first. He managed the 2 hours and was told to drink after the first hour. We managed to get home in 50 mins so all was well. Thinking of you and David. 

Take care and stay safe

Regards Renny

Hi Renny

jJohn had  his 2nd  mitomycin today no problems Just bit of a headache We were 10 minutes early for the appointment  but they saw him straight away and 10 minutes later he was done and dusted 

He feels ok now after having a sleep this afternoon 

Enjoy your holiday 

Love

Wilbert x

So pleased he got the treatment and he is ok. Lets hope it goes as smooth next week will he have it on Monday seeing as they changed it this time ? 

Love Renny x

No sticking with Friday so we have to go again this week But bothered keeps him on track and nurse said no problem  with two in one week 

Now off to the hairdressers 

love 

Wilbert x

Got to keep looking pretty for your man LOL

Let me know how he goes on on Friday hope it's not too much for him. The nurse would say he will be fine it's not her there putting the stuff in. 

Off to pack the car. With all the food for just 2 looks like where off for a week instead of 4 nights.

Take care regards to your John

Love Sylvia x

how things there how is your John doing

lv sylvie x

Sorry just realised  I had not posted the reply I typed!

Still ok but headache lasted a little longer than last week The nurse did say the effects of the treatment  could be cumulative 

I love the new profile  picture what a whopper Ronnie caught 

Love Wilbert x ps sent you a friend request 

Just as long as things are going according to plan with your john that's good.

Ronnie didn't get his 6th bcg yesterday. He came back from the toilet with a face like fear and anger. He had a bit of blood in the urine and like a peace of dried blood the size of half his finger nail. So no bcg they wouldn't take the chance and we have to go back next week. His head nurse said not to worry it happens to loads of her patients and it would be OK to get the 6th next week. Today his urine is cloudy so i am going to phone his nurse tomorrow if it is the same  and ask if they think he has a urine infection. I still have the antibiotics from 2 week ago but she might say get to the docs for a test. That's easier said than done. Honestly when we got back in the car i could have cried. I was so upset for Ronnie. I said i thought it was too good to be true. Anyway we had a nice 4 days away at yellow tops and he caught some nice big fish. It did us both good to get away from the post man and all the rotten post he brings us. The only thing is we had to come back to reality. So back again next week and the nurse said he should be all clear to have the 6th with him not having it yesterday. Melting away in this heat today. Off for a cold shower. Regards to your John.

Love from Sylvie xx

That's rotten about the infection I'm on pins waiting to see it John's going to get the treatment or if he has uti The nurse was reassuring about it but being  a big issue but it us to us 

Hooe you get thro to gp if not start Ronnueon the antibiotics you have cant hurt 

So glad you had a good time I feel bit like you about the postman 

Just off to our local Italian he gets us nice fish on Sunday evening and does a big salad and his aircon is good Take care 

Love to you both 

Celia xx

Hi Celia

I phoned 111 last night and they told me to take him to our walk in center in Selby and to phone his cancer nurse in the morning. So i left a message with the clinic and went to the walk in. He was seen straight away and they took a dip test and he did have a water infection and said to start the antibiotics straight away. So know we are hoping it will have cleared up by Saturday to get his last one. Fingers crossed. 

Glad you managed to get treatment quickly Hope all cleared by  Saturday Ita such a worry 

John was going for a bike ride today but he says his legs feel heavy and he feels lacking in energy He isnt a  great one for hot weather unlike me His appetite  is ok  I worry when he us off his food 

I'm going to make sure he drinks plenty of water Ir could br having 2 doses of mitomycin in one week Its ok for them to say its not a problem they are having it 

All the best

Celia x

Glad you managed to get treatment quickly Hope all cleared by  Saturday Ita such a worry 

John was going for a bike ride today but he says his legs feel heavy and he feels lacking in energy He isnt a  great one for hot weather unlike me His appetite  is ok  I worry when he us off his food 

I'm going to make sure he drinks plenty of water Ir could br having 2 doses of mitomycin in one week Its ok for them to say its not a problem they are having it 

All the best

Celia x

Poor lad but as long as he is eating that is the main thing. Ronnie has a good apatite so i always know when he is poorly if he says no to his meals. The cancer clinic just phoned to find out what was happening and she said i did the right thing but if the tablets are for 5 days Ronnie might not be able to get the 6th dose on Saturday. The main cancer nurse is off today so they said they will phone tomorrow and let Ronnie know if he should turn up on Saturday or not. I would rather not go than be told not today again. Going all that way does my head in. So we will see what they say tomorrow but the nurse that phoned didn't sound too positive. It never rains but it pours.

Be back tomorrow

Love Syvie x

What a situation Hope cancer nurse is more helpful tomorrow 

I wonder if you could get urine dip sticks from Gp or chemist so you could do a check at home before your appointment Or maybe practice nurse could do one Friday for you 

Keep me posted

love

Celia x

You have to make an appointment to see our practice nurse which takes waiting time maybe 7-8 days. The dip stick don't come on it's own you have to have a color chart as well and some sort of solution to dip it in . I don't think it is just water they dip it in and I don't think the cancer nurse would go for that they like to see for themselves. It would save a lot of time and petrol if we could do that but nothing is that easy is it.Just have to wait till tomorrow and see what they say. All part of the process. 

Stay safe 

Love Sylvie x

Lloyd pharmacy sell the test kit with all you need and so I understand do Tesco Hopefully when you speak to the nurse tomorrow ahe may have an option to save you a wasted journey She may be able to get you a check at your local walk in  clinic particularly as it's such a long trip for you 

love

Celia x

I will have a word when she phones and let you know 

x sylvie

Hi Celia, the cancer nurse phoned yesterday at 7pm and wonted to know what was going on with Ronnie. So i told her everything and she said if he finnishes the antibiotics  on Friday he can get his BCG on Saturday as planned but only if there is no blood in the urine. So lets hope it is clear and he get the thumbs up. 

Keep me up dated on your John and i will let you know how Ronnie fairs.

Stay safe 

Love Sylvie x

I've been thinking about you  you both Glad to know bcg can go ahead if there is no blood I have everything crossed for Ronnie I'm not really any religion these days but my devout Roman catholic friend has been praying to St Jude and I've put in a request to him that Ronnie gets his bcg 

John has been out on his bike and I've been to lunch with girls Youngest is 70 oldest 80 !!

Take care 

love 

Celiaxx

Thanks Celia, the head nurse sounded confident so we will just see. I have my 2 main angels watching over  Ronnie that is my mam and dad. They loved Ronnie very much. So i say to them before i try to sleep "please look after my Ronnie" that is all i can do. So thank you for the nice thought.

Had another phone call from the bowl place and made an appointment for Ronnie to go for a colonography on the 29th of this month. But first he has to go for the dye ct scans next Thursday..

It really is draining me all this. Every week it's the hospital. thank the lord Ronnie can drive cos i cant. 

Take care

Love Sylvie x 

I'm like you I'm not keen on driving When I had my lovely Rover mini which was British racing green with a white roof I was happy driving but Unfortunately it reached the end the end of the road Glaucoma plus my lack of confidence means I rarely drive these days Life does seem full of hospital appointments 

I try to counter them with a nice lunch out but it's hard when I feel like just pulling over the duvet and staying in.bed 

Hang on in there every thing will pass and better times ahead for us all I I Hope 

lots of live Celia ps I'm a bit tipsy xx

Good for you LOL

x: