My husband has the opposite problem He was treated successfully with bcg for bladder cancer and he has been clear for 6 years Following blood appearing in his urine a couple of months ago a tumour was found in his ureter Kidney and ureter  removal  not an option as kidney on tumour free side has low function due to previous  kidney stones Consultant reluctant to do anything  other than monitor and laser recurrence whilst it remains  in ureter but it will at some stage get out and the treatment will be palliative 

Would you let me know what treatment you have had and the details of the trial

Good luck with you future bladder treatment 

best wishes 

Wilbert

Hi Wilbert

Just to let you know that my Ronnie did really well on his first BCG. In and out in 20 mins. Did not feel a thing and had no pain after at the loo. So i just hope the next one on Saturday goes as good as the first. He managed the 2 hours and was told to drink after the first hour. We managed to get home in 50 mins so all was well. Thinking of you and David. 

Take care and stay safe

Regards Renny

I used the word but who ever runs the site substituted **** Gave me a giggle 

It amuses me i do swear and people looked shocked For some reason  people who dont know me well think I am ladylike but it's all a facade 

Love 

Celia x

You have made my night 

x

xx

Hi Renny 

Half way to hospital today (its 40 minutes from. home ) phone rang no mitomycin so getting some from another hospital some miles away appt put back 2 hours Decided to stop at Trafford Centre nearby have coffee and cake using vouchers leave John reading paper whilst I shopped Shopping is my favourite hobby and I'm pretty accomplished lol Artived at hospital Unfortunately mitomycin hadnt Offrred coffee and  biscuits Forty five minutes later carrier pigeon arrived with mitomycin John gave them urine sample which was ok and disappeared off for installation Two minutes later nurse called me to follow her she said pharmacist needs to explain ie I'm not giving you bad news Seems the other hospital which is a major Manchester teaching hospital had sent the wrong stuff Apparently the boxes are similar !! Choice was wait 3 hours or return Monday so its return Monday I asked for assurance that 5 doses would be available so John could complete his course without further complications and was assured yes it would be 

Decided to go out for a late lunch and enjoy a bottle of red wine come home and siesta

I sincerely hope all goes well for Ronnie tomorrow 

lots if love 

Wilbert xx

Oh my god what a day you had. I could not believe you went though all that. Your poor John getting himself all worked up for the therapy and that happened. All that way as well and hanging about. Lets hope THAT doesnt happen again. Let me know how it goes on Monday. Poor lad.

Ronnie got his 5th BCG this morning. No hitches at all this time and just a few shivers when we got home same as last week but he was OK after a few hours. It was his 82nd birthday yesterday and my niece who is deaf and her partner came for there tea. She has a real soft spot for Ronnie so at the moment worried about him. We are going to Yellowtop Country Park on tuesday for 4 days for Ronnie to do some fishing. Also i will try and calm down after getting 2 letters for Ronnie to go for dye ct scans on just about everywhre on his torso. The cancer nurse ordered them. She also sent him for a blood test and she said that was for his kidney funcion ( which was fine ) so that was ok to put the dye in. I dont know if there looking to check on the ureter to see if it has grown etc. Another is for his bladder and another for his bowl as he has divicular dease. So there checking everything. So thats another worry till the results come. 

We are looking forwards to getting the last one over with. They changed his time at the clinic as we will be away and need time to get home. They really have been great with him and me. 

Well i will go make a cuppa although he is sleeping at the moment. Both of us never sleep the night before the BCG. So maybe i will get a few hours tonight.

Take care and regards to your John. I ment to tell you I bought Ronnie a bike ( exspensive) a few years ago so he could nip to the shops ETC. Then i read that rideing a bike for a man is not good for prostate or lower bladder problems. So thats in the garage ready to be sold.( not takeing any chances ) Looking forwards to your next email.

Sylvie x

Glad things went ok for Ronnie and also that you are having a few days away I'm sure it will do you both good 

Waiting for tests is always stressful and you wonder what they are looking for and my mind goes into overdrive Fingers crossed  all is good 

We asked our consultant if cycling was ok and he said yes no problem which was good John had always been a keen cyclist his Mum use to say he should have been born with pedals not feet He was really pleased as we bought him a new bike a couple of years ago that cost as much as our first house 

Wish Ronnie a very happy birthday from us both

Take care

Love 

Celia xx

Hi Renny

jJohn had  his 2nd  mitomycin today no problems Just bit of a headache We were 10 minutes early for the appointment  but they saw him straight away and 10 minutes later he was done and dusted 

He feels ok now after having a sleep this afternoon 

Enjoy your holiday 

Love

Wilbert x

So pleased he got the treatment and he is ok. Lets hope it goes as smooth next week will he have it on Monday seeing as they changed it this time ? 

Love Renny x

No sticking with Friday so we have to go again this week But bothered keeps him on track and nurse said no problem  with two in one week 

Now off to the hairdressers 

love 

Wilbert x

Got to keep looking pretty for your man LOL

Let me know how he goes on on Friday hope it's not too much for him. The nurse would say he will be fine it's not her there putting the stuff in. 

Off to pack the car. With all the food for just 2 looks like where off for a week instead of 4 nights.

Take care regards to your John

Love Sylvia x

Got to keep looking pretty for your man LOL

Let me know how he goes on on Friday hope it's not too much for him. The nurse would say he will be fine it's not her there putting the stuff in. 

Off to pack the car. With all the food for just 2 looks like where off for a week instead of 4 nights.

Take care regards to your John

Love Sylvia x