Tonsil cancer - Update. Would love to hear from others

Good evening everyone it's Fooman, I have not left a post for a while. I have just completed  12 Radio sessions out of 30, and have also had 1 Chemo Sessions out of 2. I have lost my taste and my appetite has gone my mouth is  sore and hurts and everything tastes of cardbord. I.have also lost some weight. I have been feeling tied but having said all of that I don't  feel to bad. I have been using the protein drinks provided to keep my strength up. I tried some soup last night but could only manage a couple of spoon fulls. Regarding my weight I was over weight to be honest I am 6ft 2inch tall and at the start I weighed 15stone 7lbs I am now 15stone still a stone over weight correct weight of 14 stone. If any of you have some experience with tonsil cancer it would be much appreciated. I never asked my doctor the stage of my cancer, he just said it was treatable and with the type of Cancer I have they have a 90% success rate of cure. Keep positive everyone. Fooman keep it green.

Parents
  • My husband is about to start his last week of radiotherapy, chemo finished last week. 
    He wasn't told what stage he was, but we found out as it was on the letter that is sent to his GP which you should of had a copy of. Then Dr Google came in to play! 
    but if your success rate is 90%, you have a great outcome. 
    My husband had a peg fitted which he hated but when his mouth got sore and he couldn't manage to eat and drink He was pleased he had it. He has lost some weight and is now having fortisip drinks down the peg  

    Chris 

  • Hey how are things ?


    need a bit of advice really  

    I can't seem to eat anything now everything and ever way I try it is just burning I've got a really bad cough due to covid which hasn't helped

    but was wondering what sort of things to eat that want burn I've not really eaten now for 4 days x

  • Thanks for the advice Ive pretty tried and doing everything you have suggested yes very weird drinking warm water buts that me now  lol

    I was scared of tube at first but now I will do anything to get me through this last weeks

    I can cope with the pain drinking water but the rest is unbearable  I'm even now gagging up the mucus (think my phobia of being sick as gone haha ) 

    im sipping water all day I really think the covid as took it out of me X

    angie 

  • Hi Angie Caz fir the mucus c do you have a nebuliser if si use it up ti 6 times a day it helps. You can use plain boiled water you can interchange with saline. Some times it's our fingers in mouth and literally pull it out. I went through boxes of tissues. Yiu made me laugh re phobia ood being sick. 
    Ask hospital for loan if nebuliser or use a bowl of hot water and towel over head to steam it works as well just be careful as kniw one or 2 whi hsvr burnt themselves falling asleep with bowl of water. It's hard.  Good luck with n g tube you might need to be firm it even cry !!! I did both xxHazel 

  • My husband hated having his gastro fitted. But welcomed it once problems started. 
    Good luck at app tomorrow. I'm sure they will sort you out x 

    Damn that covid!! 

    Chrissy x 

  • Aww Chrissy I was wondering if hubby had it fitted at what stage did he have it done hope he is getting better now X

  • He was to have it before the treatment started but our daughter had covid. So he had got it, week 3. Still using it, as nil by mouth Struggling with mucus but I will say it is getting less.

    first day today that he hadn't napped during the morning 

    He has check up appt tomorrow with oncology. I'm sure they will encourage him to take sips of water to get his throat muscles working better.  

     

    let us know how you get on 

     

    Chrissy x 

     


     

  • Hi,

    I have had tonsil cancer and 6 weeks of radio therapy.  I had to spend the last month in hospital with a NG tube, and oramorph. It's a difficult time, but 10 years later I'm still here!  You've just got to get through it I'm afraid, and lookforward to getting back to health.

  • Hi Angie 
    Hope you have got some relief from the horrid throat. 
     

    Chrissy x

  • Hi hope this message finds you and hubby well just wanted to let you know I had the all clear yesterday I'm so happy I hope

    your hubby is doing well I still have alot of issue with eating my mouth is so sensitive with everything and my mouth is so dry they are going to try Acupuncture I'm on the waiting list 

    anyway thanks for your advice along the way take care xx

  • Hi hope you are well haven't been on here for ages as bee

     busy back to work etc just wanted to let you know I had the all clear yesterday I'm CANCER FREE it's still sinking In but over the moon is a understatement still got a long way to go regarding eating etc but I'm so happy thanks for all your advice It really did mean so much take care and enjoy life xx

  • Hi well done you're welcome only too pleased to help others. I'm 4 years in August onwards and upwards baby steps you'll get there. Eating will slowly improve. 
    hugs Hazel x

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