Tonsil cancer - Update. Would love to hear from others

Good evening everyone it's Fooman, I have not left a post for a while. I have just completed  12 Radio sessions out of 30, and have also had 1 Chemo Sessions out of 2. I have lost my taste and my appetite has gone my mouth is  sore and hurts and everything tastes of cardbord. I.have also lost some weight. I have been feeling tied but having said all of that I don't  feel to bad. I have been using the protein drinks provided to keep my strength up. I tried some soup last night but could only manage a couple of spoon fulls. Regarding my weight I was over weight to be honest I am 6ft 2inch tall and at the start I weighed 15stone 7lbs I am now 15stone still a stone over weight correct weight of 14 stone. If any of you have some experience with tonsil cancer it would be much appreciated. I never asked my doctor the stage of my cancer, he just said it was treatable and with the type of Cancer I have they have a 90% success rate of cure. Keep positive everyone. Fooman keep it green.

  • Hello again,

    I'm glad to hear your treatment is all going according to plan.

    I'm sure someone who underwent the same course of treatment will be along soon.

    Take care & hang on in there.

  • My husband is about to start his last week of radiotherapy, chemo finished last week. 
    He wasn't told what stage he was, but we found out as it was on the letter that is sent to his GP which you should of had a copy of. Then Dr Google came in to play! 
    but if your success rate is 90%, you have a great outcome. 
    My husband had a peg fitted which he hated but when his mouth got sore and he couldn't manage to eat and drink He was pleased he had it. He has lost some weight and is now having fortisip drinks down the peg  

    Chris 

  • Hey how are things ?


    need a bit of advice really  

    I can't seem to eat anything now everything and ever way I try it is just burning I've got a really bad cough due to covid which hasn't helped

    but was wondering what sort of things to eat that want burn I've not really eaten now for 4 days x

  • Damn this throat stuff!!

    you got covid too. Goodness! As if you haven't enough to cope with! 
    Have you tried milk based things like custard or rice pudding. If you are still having problems. Have the hospital given you phone numbers for help and advice? 
    chrissy x 

  • :cry:Chrissy I have tried literally everything even Farley I'm at my wits end I've not eating nothing today even my medication is burning my throat they said do meds gargle do numbing sprays then eat Ive tried all this but after like 5 mouthful the pain is unbearable am I being a baby ? Will have a look for hospital number I haven't seen my team due to covid missed 1 chemo but still had treatment late in day but it's broke me all the coughing :cry:

  • You are def not being a baby!! you've more than enough to put up with.

    Are you now negative for covid? 

    There is a help line at the bottom of this page if that helps. 
    Hopefully you can find phone numbers for your chemo unit. Should be always available. 
    Chrissy x 

  • Yes been negative for 2 days and Thankyou I think im going to ring them as im feeling. Awful 

    I hope hubby is ok x

  • Hubby is in slow recovery.

    Great that you are now Negative. 
     

    You look after yourself. 
    Please let me know how you get on 

    Chrissy x 

  • HunOh dear that's  .....  covid and cancer. How far into treatment are you I do know where you are  coming from inwas towards=end of week 3 when I just couldn't swallow. You can try poached eggs they tend to slip down, what I did was in the Monday see dietician and insisted  that a ng feedingbtube was put in. It was a lifesaver for me all my meds water and feed went via the tube. Intoo was given the med to help you swallow it didn't help. Are you on sufficient pain  killers don't codomol , oramorph etc.  you may need your  pain meds looking at as well.lTs a long slog , don't stress about missing chemo it's a top uo to the main treatment of radiotherapy . i was down for 3 x10 hour sessions but my last one I cancelled min conjunction with oncologist l

    Do try getting in touch with hospotaomit hard on a weekend. 
    You can also try the hugh calorie food supplements ensure or fortisip if yiu have them or supermarkets sell complan worth a try. Yiu need hydration and nutrition by any means you can.

    Good luck Hazel