Hi Madgee,

I was wondering if you already have clarity in your treatment? You mentioned you were working towards treatment, so am wondering if you also already know more?

Sending hugs xx
 

Hi there, my treatment  is outlined but have my final results on Wed.  They will be the results of Pet Scan, MRI with contrast.  I had a marker inserted in my breast on Friday.  So Wednesday  I'm back with consultant and hoping cancer is in situ and the plan remains unchanged.  Plan if no secondaries  is 18 or 20 weeks chemo and herceptin  with Herceptin  continuing for a full year. Surgery may follow Chemo.   Some days I'm OK some days  not.  Need Wednesday  out to way and a good outcome and date to start treatment.  Its hard to digest how life changing it all is but am hopeful that it's one year of my life and that is achievable.  Sending love to you how are you coping and have you any news? Stay strong lovely x

Sounds like you've had a very busy week! The wait for the scans remains horrible doesn't it.

Am I right to assume you also have an HER2 positive breast cancer? Because I've had pretty much the same news and treatment outlay. I found out early in the week that I'm hormone negative but HER2 positive, which meant that we will start with chemo for 6 months, then surgery (still confirmed due to the amount of DCIS in my breast around the invasive cancer) and then radiotherapy.  But also have to take Herceptin for a year. They told me this type of cancer reacts really well to chemo and the herceptin so I suppose that's a good thing. I've had my CT scan and MRI results, which we're clear but still waiting for my PET scan results which I get tomorrow. Meanwhile I've started fertility treatment, and chemo is scheduled for 22nd of Nov.. 

Trying not to worry too much about scan results anymore but to focus on treatment plan, but easier said than done!!

We got this!! Xxx

Bless you stay positive hun.  I think we have identical diagnosis and my treatment  plan the same apart from they haven't mentioned  radiotherapy.  They also told me the Herceptin  directly targets the cancer cells and the combination  or that and chemo has amazing  results. Yes the wait is really tough and as I am 59 I'm fretting that all those little aches and pains I've had are not just getting older but realistically they probably are, it's hard to stop your thoughts running away with you.  We can do this and you are young and presumably  otherwise healthy so dont let it crush your future dreams, I won't allow it to do that. Hope IVF goes OK and will let you  know when I get my date. Holding your hand in my heart keep in touch xxxx

Yes they told me the same about chemo and herceptin! And I completely understand what you mean with little aches and pains, for some reason everytime I have as scan I all of a sudden feel pain everywhere. But exactly like you say don't let your thoughts run away with you.

I'm not sure if this helps you, but one of the nurses recommended this to me - I currently allow myself to think and worry about scan results etc twice a day for about 15-20 min, and then I try to park it for the rest of the day. Because I have 'worry-time' it helps me focus on other things the rest of the day. 

I hope Wednesday brings you some clarity (I also have scan results Monday and Wednesday, so I'll be thinking of you) and that you'll know when you can start treatment! So many things are changing, but exactly like you said - it's a year, we can do this and we will come out stronger. 

Sending positive thoughts and hugs!! xxx

Hi Elvira114, 

You are so kind . How are you ? All OK with your treatment?

It has been a nightmare really.  I went on Wed to the breast clinic and the oncologist told me that he was not concerned. 

I did mammogram, oultrasound and biopsy . They found 2 small lumps in the right breat that seem to be as tge radiologist said lesions.

 They seem solid and have irregular shape. 

I was so co fused and terrified when he told me . The nurse was in the room and gave me her card for any questions. 

I could not believe it that in less than an hour my worls change so drastically!!

I was shaking!! I did not know if ot was all just a bad dream...

I have  an appointment on Wed to discuss the results and discuss a plan .

I don't know what to do. The doctor told me that he was surprised about the lumps as one of them he did not feel it .

I just need to wait till Wed and find out my fate ..

I hope you are having a nice Sunday afternoon. 

I am taking my little girl and her friend trick or treating, even if I don't feel like it at all, but a nice walk will do me good.

I will let you know what will happen in my appointment next week.

Please keep in touch .xxxx

Oh bless you, It does feel like the world is upside down as soon as they confirm they found something. I reacted exactly like you, I ended up shaking like crazy on the table when they did my ultrasound and biopsy. 

I know this is easier said than done, but try not to worry too much until you have all of the details. Will they give you the results of the biopsy on Wednesday or have you already had those too? 
Taking your girl out trick or treating sounds like a great idea, get some fresh air and distraction. 
 

Please keep us posted, know that we are all here for you xxx

Hi Elvira114, 

You are such a wonderful person ! I was so terrified, I couldn't stop shaking when they were doing the biopsy, my mind was racing !!

I haven't had any results yet but tye radiologist was saying that she thinks they are suspicious lesions ,both solid.

The oncologist was a bit surprised at the end but he said that we will discuss the biopsy results on Wednesday...

I did ask him if it is cancer then what will happen??  He said maybe operation and maybe treatment afterwards..

I was so confused when neither him or the GP felt anything during the breast examination.

Going trick or treating was good . So happy to see my little girl so happy with her friends.  They were planning what they were going to do next year for Halloween..this when it hit me and I started crying without them seeing me ..thinking..will I be here next year ?? 

Have a good night and please keep in touch it's so lovely speaking to you .xxxxx

The not knowing what it is and waiting for biopsy and scan results is the most horrible part of it all in all honesty. I think Jemimah said it in an earlier post as well, but as soon as you know what you're dealing with, a lot of the anxiety will go. Its the not knowing that drives us all mad :)

The most important part is that you went and had it checked out! Try not to think too much about what ifs until you have some answers, although I'm aware that this is so so difficult. I'm happy that trick or treating at least took your mind off of things, even if it's just for a little bit!

And if it is what you fear - please remember that they have so many treatments for breast cancer these days and you have a team of professionals behind you, who will help you every step of the way (and we will as well!). 

I'll have all my fingers and toes crossed for you for Wednesday xxx

Thank you so much Elvira114  

You so caring and do strong . I do get lots of confidence from you advice, thank you. 

How are you ? How are you feeling? 

Sending lots of virtual hugs xxxxx