The waiting game

I'm so glad I found this forum and now know that waiting for results is difficult for everyone at times I think I'm just a negative person but it seems the waiting game is tough.  I had duct ecstasia around 8 years ago with no reoccurrence.  I recently decided I would get the lump checked behind my left nipple but wasn't concerned as my nipple has been inverted for 8 years and I fully expected to be told it's duct blockage again.  Came as a shock to find that's not likely. .  3 biopsies on lump and one in Lymph node.  Words used like worried and highly suspicious during consultation.  To be honest I'm in shock that awful sick feeling in your tummy and another ten days till results appointment.  I asked some direct questions but obviously she wouldn't commit till results are in but in her experience I will be having treatment. Keeping as busy as I can but an emotional wreck right now. Relieved to hear this is the norm for most of you awaiting results. 

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  • Hiya 

     

    I am new to the forum and I am so worried as well.

    I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

     

    I hope you get some great results .

  • You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

  • Don't apologise, you make complete sense! :) 

    I know it's really hard when you're alone, I have the same and they are the moments when I can't stop either. But 
     

    I'm really glad you know when your appointment will be, at least you know when the next step is, and hopefully they will be able to give you some answers. 
     

    Is there anything you could do meanwhile to take your mind off of things, something that you enjoy doing? 
     

    thinking of you, sending all positive thoughts!! X

  • Thank you so much  

    I am trying to occupy my mind with work and house work when I am alone at home and then when my hubby and my little daughter is back home it is a bit easier .

    My hubby is very supportive which is so good but I have not said anything to tye rest of the family.  When I see them and I feel so guilty bug I don't want to worry them.  I know they will start fussing and get very stressed and worried for me .

    I am hoping  next week I will find my fate and have a plan of what will happen.

    Thank you so much for your kind words.

    Have a good night. Sending my love.xxx

  • Just wanted to let you know I'm thinking of you and sending you all my positive thoughts for tomorrow. I hope you get some clarity!

     

    hugs x

  • Thank you so much Elvira114,

     

    You are so kind . I am terrified and so stressed.  

    In a few hours I will find my fate .

    I hope you are well with you and everything is going according to plan.

    I will let you know later on what the doctor said. 

    Xxx

  • Morning V1234,

    I just wanted to let you know I was thinking of you. I hope your appointment went as well as it could go.

    Please know we're here for you xx

  • Hi Madgee,

    I was wondering if you already have clarity in your treatment? You mentioned you were working towards treatment, so am wondering if you also already know more?

    Sending hugs xx
     

     

  • Hi there, my treatment  is outlined but have my final results on Wed.  They will be the results of Pet Scan, MRI with contrast.  I had a marker inserted in my breast on Friday.  So Wednesday  I'm back with consultant and hoping cancer is in situ and the plan remains unchanged.  Plan if no secondaries  is 18 or 20 weeks chemo and herceptin  with Herceptin  continuing for a full year. Surgery may follow Chemo.   Some days I'm OK some days  not.  Need Wednesday  out to way and a good outcome and date to start treatment.  Its hard to digest how life changing it all is but am hopeful that it's one year of my life and that is achievable.  Sending love to you how are you coping and have you any news? Stay strong lovely x

  • Sounds like you've had a very busy week! The wait for the scans remains horrible doesn't it.


    Am I right to assume you also have an HER2 positive breast cancer? Because I've had pretty much the same news and treatment outlay. I found out early in the week that I'm hormone negative but HER2 positive, which meant that we will start with chemo for 6 months, then surgery (still confirmed due to the amount of DCIS in my breast around the invasive cancer) and then radiotherapy.  But also have to take Herceptin for a year. They told me this type of cancer reacts really well to chemo and the herceptin so I suppose that's a good thing. I've had my CT scan and MRI results, which we're clear but still waiting for my PET scan results which I get tomorrow. Meanwhile I've started fertility treatment, and chemo is scheduled for 22nd of Nov.. 

    Trying not to worry too much about scan results anymore but to focus on treatment plan, but easier said than done!!

    We got this!! Xxx

  • Bless you stay positive hun.  I think we have identical diagnosis and my treatment  plan the same apart from they haven't mentioned  radiotherapy.  They also told me the Herceptin  directly targets the cancer cells and the combination  or that and chemo has amazing  results. Yes the wait is really tough and as I am 59 I'm fretting that all those little aches and pains I've had are not just getting older but realistically they probably are, it's hard to stop your thoughts running away with you.  We can do this and you are young and presumably  otherwise healthy so dont let it crush your future dreams, I won't allow it to do that. Hope IVF goes OK and will let you  know when I get my date. Holding your hand in my heart keep in touch xxxx

  • Yes they told me the same about chemo and herceptin! And I completely understand what you mean with little aches and pains, for some reason everytime I have as scan I all of a sudden feel pain everywhere. But exactly like you say don't let your thoughts run away with you.

    I'm not sure if this helps you, but one of the nurses recommended this to me - I currently allow myself to think and worry about scan results etc twice a day for about 15-20 min, and then I try to park it for the rest of the day. Because I have 'worry-time' it helps me focus on other things the rest of the day. 

    I hope Wednesday brings you some clarity (I also have scan results Monday and Wednesday, so I'll be thinking of you) and that you'll know when you can start treatment! So many things are changing, but exactly like you said - it's a year, we can do this and we will come out stronger. 

    Sending positive thoughts and hugs!! xxx

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  • Yes they told me the same about chemo and herceptin! And I completely understand what you mean with little aches and pains, for some reason everytime I have as scan I all of a sudden feel pain everywhere. But exactly like you say don't let your thoughts run away with you.

    I'm not sure if this helps you, but one of the nurses recommended this to me - I currently allow myself to think and worry about scan results etc twice a day for about 15-20 min, and then I try to park it for the rest of the day. Because I have 'worry-time' it helps me focus on other things the rest of the day. 

    I hope Wednesday brings you some clarity (I also have scan results Monday and Wednesday, so I'll be thinking of you) and that you'll know when you can start treatment! So many things are changing, but exactly like you said - it's a year, we can do this and we will come out stronger. 

    Sending positive thoughts and hugs!! xxx

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