Hiya 

I am new to the forum and I am so worried as well.

I found a lump on my right breast a couple of days ago and i have an appointment with my gp next Thursday...the waiting game is the hardest ...I cannot stop crying and thinking the worst...it is really hard .

I hope you get some great results .

You too it's a worrying  time for sure.  I feel exactly  the same.  My best day this week as so busy at work.  Distraction  seems to be the best thing right now. Hope your results are good too x

Hi Madgee and Elvira114, 

I hope you both are well .  

I feel tired today ,I think it is all te stress all these weeks!!

Tomorrow I have an appointment with the plastic surgeon about the masectomy and reconstruction.  I hope he will give me all the advice I need so I can make a decision.  I think I will go with using my own tissue but I know it is going to be painful!

Are you both have any advice for me please? 

So much information, I think my brain is going to explode ..

I wish you both to have a lovely evening..rest well .

Keep in touch please. 

We got this

Bless you  not sure of yr age but I am 59 so reconstruction  not on my priority list but irrelevant  of age if your appearance  is very important I totally get it because it's very important to have some normality to look forward to and to be the You you want to be when it's all over.  Just research but go for what's right for you  hunn it's so important  you  get thru this and are comfortable with how you look st the end of it all.  Sorry I'm not much help hun x

Hi Madgee, 

I had no idea about the reconstruction but the Dr mentioned it during the discussion yesterday.  I am 45 years old . I  am not really sure what I will go for , I just want everything to finish and kill this horrible disease!

I  hope u have a good night xxxx

Hi V1234, 

I think it's completely normal to feel tired, the stress is exhausting! I hope you still managed to get some sleep?

I've had a brief conversation with my surgeon, she will do the mastectomy and node clearance and if possible a reconstruction straight away. We haven't discussed it in detail yet as I need to get through chemo first, but in an ideal world, I would do it from my own tissue because for some reason it makes it feel more like 'me'. But if not possible, it's not the end of the world personally either. This is super personal though, you need to do whatever you feel comfortable with. Maybe discuss all the options with your surgeon and they might be able to advise you best :)

But I agree on wanting evertyhing to finish and beat this things butt!! 

Madgee I hope you have heard some more news on next steps and went to start treatment. Great shout on the wig shopping.. I've been contemplating on using a cold cap, but have had so much hair loss already from the stress (ironic isnt it) that I'm not sure if making myself more uncomfortable during chemo is worth it. Did you go to a special store? Not even sure where to start!

Sending love to you both xxx

Hi Girls got my date start next Monday just want to crack on now.  Sadly couldn't squeeze my covid booster jab in. My wig lady was lovely and it's really quite nice but need my hairdresser to trim the fringe. I also bought some bandanna type hats and i plan to get a cheaper wig for walks in the winter in case it gets wet. I'm spending the weekend with my best pals at a cottage obviously  all being well they healthy  and all doing lateral flows think that will be great for my mental health and a fab distraction.  Hope you both coping  and ready to rid of this disease so you can move on and enjoy everything  once again.   It won't beat us.  Love to you both we got this xxxx

Your so much younger than me hun it might be the right thing for you to have a reconstruction  but you have time to consider your options.  I have spoken with a lovely lady who is coming to the end of this journey.   She chose to have reconstruction  and is about to have her other breast me to match.  I guess it's on howi mportant it is to each individual.   Who knows I may have a change of heart.  Stay positive  and take one day at a time.  Sending love x

Hi Madgee and Elvira114, 

I hope you are both well. I was thinking about you both today.

It has been not a very good day for me today,I was feeling a  bit  down .

Feeling a bit better this evening when my husband and my daughter came back .

Have a good night. Sending my love to you both. Stay strong and positive xxx

Tomorrow  will be better  hun. We are going to have some really rubbish days on this journey but there will be good days too as we adjust to this new way of life but remember  it's not forever.  Stay strong sending a huge hug. Sometimes  I feel a lot better after a good cry, don't bottle it up, taking is good. Take care  x

Hi ladies,

Madgee- going away for the weekend sounds lovely! Taking your mind off of things and spending some quality time is such a good idea. How are you feeling about Monday? 
I'd bought a wig over the weekend (just from Amazon for fun) and have decided that I am fully going to embrace the shave and just use bandanas and wigs. It's just hair right? And when else do I get to wear wigs like that? 
 

v1234- it's ok to have bad days. We're not robots and emotions and anxiety is high when you have to deal with this. Don't be too hard on yourself, try to take it one day at a time and tomorrow is a new day <3  you got this, you're strong!

Im starting to get a bit anxious about chemo coming up and side effects. Putting a brave face on, but I find it difficult waiting now for 2 weeks for it to start. I know it'll be hard so let's just get this over with! I'm also afraid that the cancer is slowly growing and spreading while I'm waiting for chemo to start, even though my oncologist has told me it won't go that fast. Anyone feels this? 90% if my day I'm my positive bubbly self, but the other 10% dark thoughts creep in.. 

Thank you lovely ladies for being here, you have no idea how much it means xxx

Hi lovely I'm really nervous about Monday but gone from dreading it coming to wanting to get started.   The sooner I start the sooner I get rid of it.  Pleases yr embracing the Wig situation.   We get  a voucher towards a wig apparently  but haven't got mine yet.  I've already decided when it grows back, I had long her right now, I'm going very white blonde and funky and I'm getting some doc marten boots, I'm definitely  going to embrace the cropped look.  Today is  a good day for me but I've had some shockers and suspect there will be more along the journey but at the end of this long journey I think there will be a new and better me x

Hi lovely I'm really nervous about Monday but gone from dreading it coming to wanting to get started.   The sooner I start the sooner I get rid of it.  Pleases yr embracing the Wig situation.   We get  a voucher towards a wig apparently  but haven't got mine yet.  I've already decided when it grows back, I had long her right now, I'm going very white blonde and funky and I'm getting some doc marten boots, I'm definitely  going to embrace the cropped look.  Today is  a good day for me but I've had some shockers and suspect there will be more along the journey but at the end of this long journey I think there will be a new and better me x

I am thinking of you. I hope you've enjoyed your weekend! 
 

i'm sending you all the strength and positive thoughts for tomorrow. You're strong, and we are with you every step of the way! 

Please let us know how you are xx
 

Hi lovely ladies,

I hope you had a restful weekend . 

Thinking of you Madgee. I know everything will be absolutely fine.  

Sending love and hugs to both of you.xxxxx

Oh thank you  Elvira114  and V1234 I had such a lovely time I cried when it ended.  Had my hair cut really short tonight and it's OK.  I also got my wig trimmed which looks better than my own hair so that's given me a lift.  When I get home tomorrow  that's one chemo down 5 to go and thats the first big step.  Will let u know how I get on.  Kindle charged and loaded. Spotify playlists ready.  Candy Crush ready to go.  Just need to hold my nerves.  How are you my lovelies Hope your both holding up and trying to be as positive as possible.   It's a journey but it's not forever.  Have you anymore updates ladies ? Sending loads of love to you both.   

I'm so glad you had a lovely time!! You sound very well prepared and I'm convinced you got this lady. The countdown can begin now, and exactly like you said it's not forever!

my update.. ive finished my fertility treatment this week (went well they got quite some eggs out ️) and had my port placed in my arm on Thursday. I didn't even knew that was possible, I thought they always went in your chest!
I start Zoladex tomorrow (for ovarian suppression to give me better chances at keeping fertility after chemo). I've spoken to my oncologist a few times as I've been concerned about changes in my breast but he thinks it's mainly driven by the hormones I've been taking for fertility, so I'm trying my best to keep calm until I start chemo on the 22nd. 
 

I'm starting with EC and then moving on to paclitaxel and herceptin. They've given me a lot to read but the nurses were lovely! Feel very happy they've given me a 24hr line to call in case I need them. It's nice to know they're people ready to help you.
 

All in all.. im doing ok ️ My brother was over this week from back home (im Dutch originally) and that was a great distraction. Now im ready to kick cancers butt!! 
 

Let us know how you get on. Sending love xxx

Oh wonderful lots of eggs is great my friend doing IVF at min.  I'm so pleased you caught up with yr brother too.  Yes the support is just incredible you will kick it's butt for sure and before you know it you will be cooking those eggs and looking at prams.  Stay strong lovely lots to look forward to after this journey  for us all

Hi both,

So.good to hear from both of you and how well prepared you both are.

So good to hear Madgee about you new hair . I am sure you look beautiful! You are so organised as well ...I am so the opposite at the moment I am usually so organised and always want to know what I am doing but now ...I am still waiting for the " fish request " ..I am hoping that I will find out more details this week.

Elvira114 I am so so happy for you, such wonderful news about the eggs  

On the 22nd I suppose to be having my mri scan of my arteries but not sure if this will change this week.

Please keep in touch ,so good to hear from both of you.

Have a good night xxxx

Hello Elvira114 and V1234 how are you two lovelies?

Just wanted to update you both.  I had my first Chemo yesterday and have to say you have nothing to stress about at all.  I had an hours wait as do busy I met some of the loveliest patients men and women in the waiting area and we all chatted it was so reassuring and got lots of tips.  I then went for my treatment and the nurse administrating the chemo was fabulous.  Mine was put in to a cannula  slowly thru syringe not sure everyone's is done like this.  Mine took an hour and we chatted the whole time she was lovely.  I did not feel stressed at any point so please don't worry. I did feel unwell this morning but have improved as day gone on but don't want to say to much as think I might feel a bit more rubbish tomorrow.  I had to go back for heart scan today and didn't feel up to it really but all went fine and spent afternoon on sofa.  I had a fresh soup with bread for tea and enjoyed it, not my normal appetite.  Just know how worried you will be and you don't need to be.  It was quite a nice social experience.  Here if u need to ask anything stay strong and don't worry girls we are going to get through this ️ ️ ️ ️

Hi Madgee,

So good to hear from you and so so happy everything went well!

Reading your message it really gave me so much strength that I can do this ...I can face it . Thank you so much   

I hope tomorrow is a better day for you my dear.

I definitely will have lots of questions when I fund out when mu treatment will start...

Elvira114, I hope you are well too my lovely. 

I wish you both have a good night , rest well. Xx

Hello lovelies,

Madgee thank you so much for your reassuring message! I'm not going to lie, with chemo coming up on Monday I am really anxious at the moment but your message really helped!!

I hope you're still feeling relatively ok and that the side effects are manageable! 
 

V1234 - I know your MRI scan is coming up too, I'll be thinking of you. Hope you're doing ok at the moment?

Stay strong ladies ️

Hi lovely ladies!

I hope you are both well. 

I am thinking both of you. I am always so happy to see a message that I have an email from ine if you great ladies.

My mri is on Monday morning, I am a bit scared but it needs to be done !

I did have a call yesterday from one ofvthe nurses to let me know that my operation is on the 9th of December..I am terrified but again there is nothing I can do ...unfortunately!

I am still waiting for the fish request test and hopefully I will know by tomorrow, if I need chemo myself maybe after the operation...I am still a bit confused as I thought I will have my chemo,if needed ,before my operation but I will wait and see wht the Dr will day tomorrow. 

I am thinking of both of you . 

We will make it ! 

Good luck for Monday Elvira114

Stay strong night night xx